Disability Memoir

Arriving in the UK from Jamaica at the tender age of 14, Keisha shares her empowering lived experiences growing up with undiagnosed Dyslexia and Dyspraxia, while facing several intersectional challenges that include culture, race, and the UK education system.

When I was six years old, I started wearing glasses. My view of my low vision quickly changed when I was twenty years old and found out that my brother had suddenly gone blind. He was told that he was suffering from Retinitis Pigmentosa (RP), a disorder that slowly destroys the pigment cells in the eyes. So far, there are no known cures. At the tender age of twenty-one, I was also diagnosed with RP. Since then, I have been slowly going blind, not knowing when my world would finally fade away forever. Battling against such a crippling disease led me through a labyrinth of challenges.

What would you do if it happened to you? If you awoke one day when you were twelve years old to be informed that your life was suddenly over? Well . . . Here is what I did. If you became the wealthiest person you would ever know just three and a half years later? What would that be like? Well, this is what it was like when it happened to me.

At the age of thirty-one, Dave Kelly lost his eyesight to a rare disease called retinitis pigmentosa (RP). Up until then, he had lived a life like any other young man, albeit one blessed to be growing up in Liverpool during the heyday of The Beatles and Liverpool FCs win against Leeds in the 1965 FA Cup. But then, one day everything changed. Dave was faced with a choice. He could either let blindness defeat him or he could face it head-on and live as fulfilling a life as he possibly could.

From our family to yours, here are humorous stories from our crazy past, mixed with ideas for handling some of the issues facing a family raising kids with autism. Inside you will find ideas for stimming aids, dietary help, and even links to companies who hire adults with autism. Humor, hope, and help for families like yours traveling Through the Wormhole.

Penny Fisher is on vacation with her family when she becomes ill and disoriented. An urgent care facility reads her temperature at 104.5 and sends her by stretcher to the emergency room. There, doctors find nothing wrong, and they send her home. Twenty-four hours later, Penny is on life support and her husband is told to say his goodbyes.

At 90 years old and blind, Lorraine decided there was never a better time to get started as a writer. Juggling career, marriage, motherhood, and staying a vibrant senior demands constant skill upgrading. Lorraine’s early childhood development expertise, for instance, was perfected during her 81 months of pregnancy. As a first generation of Russian immigrant parents, Lorraine’s daily walk with God is a testament to her belief and love-filled life. She says, “Hope is not a plan, but it is a promise that’s given when faith and belief become action.”

The GIs called her Joey. Hundreds owed their lives to the tiny Filipina who stashed explosives in spare tires, tracked Japanese troop movements, and smuggled maps of fortifications across enemy lines. As the Battle of Manila raged, Josefina Guerrero walked through gunfire to bandage wounds and close the eyes of the dead. Her valor earned her the Medal of Freedom, but what made her a good spy was also destroying her: leprosy, which so horrified the Japanese they refused to search her.

In Get in the Boat, Darlene Fuchs shares the powerful and poignant story of her father Richard's experience as a caregiver to his wife Gail during her decline into dementia. This memoir, based on the journals of Richard Sonnichsen, is a heart-wrenching yet inspiring exploration of the enduring power of love, faith, and resilience in the face of life's most difficult challenges.

At the height of popularity for radio stations and DJs in the '70s and '80s, Curry blazed a trail for himself as “Kid” Curry. His iconic “Bed Check” segment helped propel him to star status in Miami. It followed him during his 20-year path to the dream job of Major Market program director. The perks of the job included hanging out with music legends, being invited to the White House, meeting Johnny U and a Watergate burglar, traveling around the world to find the next “number one” song and, the best part, helping listeners in need.

Not that anyone wishes to be paralyzed in a motorcycle accident, but tragedy set the stage for triumph and the making of a real life fairy tale. When the harsh reality of paralysis turned the dream of having a family together into a nightmare for Erik and Jennifer, they had to face their deepest fears and live courageously, because sometimes fairy tales are just stories of love's perseverance.

Jordan’s traumatic birth caused brain damage, whose limits he refused to accept. He embraced every struggle, learned to work through his weaknesses, and ultimately, redefined himself despite his learning disability label. All thanks to his dedicated cheer squad - family, friends, and God - he knows his potential has no limits, except those he puts on himself. But that doesn’t mean he’s escaped significant hiccups and challenges along the way.

Emily Owen was a highly intelligent teenager who was also athletic and a skilled musician. Tragically, in her late teens she was diagnosed as suffering from Neurofibromatosis Type 2 (NF2). Since then, Emily has survived many complicated surgical procedures, been close to death, and seen the gradual erosion of all the abilities that defined her personality including the total loss of her hearing. Despite this, she has a remarkable sense of humor and has coped with everything she has been through due to her strong Christian faith, her supportive family, and indomitable personality.

At the age of four, Joshua Miele was blinded and badly burned when a delusional neighbor poured sulfuric acid over his head in a crime that shocked New York. It could have ended his life, but instead, Miele—naturally curious, and a born problem solver—not only recovered, but thrived. Throughout his life, Miele has found increasingly inventive ways to succeed in a world built for the sighted, and to help others to do the same. At first reluctant to even think of himself as blind, he eventually embraced his blindness and became a committed advocate for disability and accessibility

Mit drei Jahren erlitt Ingrid Mundschin-Bohn eine Hirnhautentzündung, an der sie fast gestorben wäre. In Deutschland, wo sie als Tochter eines deutschen Vaters und einer Schweizer Mutter aufwuchs, war gerade der Krieg zu Ende gegangen, die Medikamente waren immer noch knapp, und die Ärzte wollten keine Antibiotika verschwenden an einem Kind, das in ihren Augen bereits abgeschrieben war. Aber Ingrid Mundschin ließ sich nicht abschreiben, sondern wuchs zu einer lebensfrohen und selbstbewussten Frau heran.

David Aguilar was born missing part of one arm, a small detail that seemed to define his life and limit people’s ideas of who he was and who he could be. But in this funny and heartfelt memoir, David proves that he can throw out the rulebook and people’s expectations and maybe even make a difference in the world—and all with a sense of humor.

Follow the journey of Tanita Allen, a courageous Black woman confronting the challenges of Huntington's Disease. We Exist documents her harrowing two-year struggle for a diagnosis while living in a toxic NYC apartment that triggered the early onset of her condition. Learn how she wages an impossible, decade-long legal battle against those responsible, unveiling the staggering barriers faced by marginalized communities in both medical and legal systems.

My name is Christopher Miller, the view I happen to have is a view from a wheelchair. I live with spastic cerebral palsy which affects my mobility and speech. I believe that people with disabilities need to be involved in the political process. I just happen to have A View From a Seat.

An Unexpected Story of Hope & Perserverance: As a young child, something was wrong with Michael. He lacked basic motor skills and was unable to follow simple instructions or answer questions. Testing revealed a diagnosis of autism with a low IQ. Experts insisted that leading an independent life would be impossible for him...and school was not an option.

My neurologist stunned me when she said, “You have multiple sclerosis, and looking at your MRI, you are a walking time bomb. You may not have symptoms today, but it’s just a matter of time.” As the MS tightened its grip on my body, I plunged deep into a myriad of strange feelings—denial and depression for over a year.