Disability Memoir

At a time when we are all more rudderless than ever, we look for the very best teachers and mentors to guide us. In Fully Alive, an unusual and gripping memoir, Timothy Shriver shows how his teachers have been the world's most forgotten minority: people with intellectual disabilities. In these pages we meet the individuals who helped him come of age and find a deeper and more meaningful way to see the world.

Andrea Lytle Peet was thirty-three years old—an urban planner living in D.C., newly married, and a triathlete—when she received the death sentence of an ALS diagnosis (also known as Lou Gehrig's disease). After grappling with the fact that she will likely become paralyzed and die within two to five years, Andrea experienced an unexpected spark that changes her outlook in the most magnificent way.

Given an epilepsy diagnosis at age 49, Linda’s once solid life fell apart. Her seizures uncontrolled by medications and with no access to treatment, Linda had no choice but to seek help in another province. From 2016 to 2018, she travelled between BC and AB, spending up to four weeks in a hospital apart from family and friends.

There Are No Answers Here, Only Questions is the true story of two life-altering events and the personal transformation that resulted from their unlikely collision. It's the story of an owner preparing to sell his business and retire just as he is diagnosed with cancer.

This audiobook provides insight into the life of a neurodiverse Black girl from the Midlands as she embarks on her journey through the UK school system. This book unveils and highlights the unique experiences of neurodiverse people of color and the many challenges they face. In this book, 24-year-old British-Nigerian Oluseyitan Ojedokun gives an account of her struggles through school. She shares the many dreams and goals she had, despite the feeling of constant dismay.

In this heartfelt, thought-provoking and often hilarious book, Lottie Jackson reflects on her experiences of living with disability: from the pitfalls of going shopping on a mobility scooter, and the headache of defining oneself on a tick-box form, to a slapstick scuffle with the so-called 'easy-pull' tights aid, and the intense pleasure of finally swapping a hospital gown for a slinky dress. Lottie captivatingly expresses the raw vulnerabilities, injustices and untold joys of disability, as well as the bizarre everyday occurrences that able-bodied people usually don't experience.

Rosemary Mahoney tells the story of Braille Without Borders, the first school for the blind in Tibet, and of Sabriye Tenberken, the remarkable blind woman who founded the school. Fascinated and impressed by what she learned from the blind children of Tibet, Mahoney was moved to investigate further the cultural history of blindness. As part of her research, she spent three months teaching at Tenberken's international training center for blind adults in Kerala, India, an experience that reveals both the shocking oppression endured by the world's blind, as well as their great resilience.

What would it be like to see everyone as a friend? Twelve-year-old Eli D'Angelo has a genetic disorder that obliterates social inhibitions, making him irrepressibly friendly, indiscriminately trusting, and unconditionally loving toward everyone he meets. It also makes him enormously vulnerable. Eli lacks the innate skepticism that will help his peers navigate adolescence more safely - and vastly more successfully.

In this unique and exhilarating autobiography, Allan Jones - Canada’s first blind diplomat - vividly describes how an untreatable eye disease slowly decimated his visual world, most challengingly during his postings in Tokyo and New Delhi, and how he discovered and took to heart the revelatory Indian philosophy that changed his life.

A puddle of water on a highway changed Dinesh Palipana's life forever. Halfway through medical school, Dinesh was involved in a catastrophic car accident that caused a cervical spinal cord injury. After his accident, his strength and determination saw him return to complete medical school—now with quadriplegia. Dinesh was the first quadriplegic medical intern in Queensland, and the second person with quadriplegia to graduate medical school in Australia. Despite all of the pain and hardship he's faced, Dinesh now sees his accident as a turning point for the better in his life.

A collision with a moose on a dark highway left Susan Mockler with an incomplete spinal injury, suddenly compromising her ability to walk and to care for herself. She spent months in a rehabilitation facility learning how to adjust to her new reality, and though her body partially recovered, every aspect of her life changed.

When Ellie Goldstein was first diagnosed with Down Syndrome, her mother was soon told that her new-born would amount to nothing. For 21 years and counting, Ellie Goldstein has been defying the odds and overcoming every hardship thrown at her. Told she wouldn't walk, Ellie has danced on mainstages. Told she wouldn't learn, she has gained a college education. And told not to dream, Ellie has gone on to become the first model with Down Syndrome to be photographed for Gucci and continues to change the face of fashion from the inside out in countless international campaigns.

From non-verbal to radio announcer, Good Morning, Blake: Growing Up Autistic and Being Okay lays bare—from cradle to adulthood—the myriad steps Blake has taken to find his voice and rightful place in society.

Are You Two Sisters? is Susan Krieger's candid, revealing, and engrossing memoir about the intimacies of a lesbian couple. Krieger explores how she and her partner confront both the inner challenges of their relationship and the invisibility of lesbian identity in the larger world. Using a lively novelistic and autoethnographic approach that toggles back and forth in time, Krieger reflects on the evolution of her 40-year relationship. She describes building a life together, from sharing pets and travels to getting married.

Told with shocking honesty and in unbelievable detail, Bipolar: A Gift of Thorns is a profoundly insightful memoir that shines a light on one woman’s courageous journey and the stigma of bipolar disorder.

A profoundly beautiful memoir about disability, difference, and living as a vulnerable body. Jan Grue had just become a father when he inherited a stack of his childhood medical records. Following a diagnosis of spinal muscular atrophy at the age of three, the raft of doctors' notes, clinical descriptions and case histories defined his body as defective and his future as bleak and limited. They conjured a childhood nothing like the one he remembered, that failed to anticipate the life he lived now. "I Live a Life Like Yours" is Grue's beautiful, groundbreaking search for a literary language that could better tell his story.

When Jeremy and Emily Freeman’s teenage son Caleb was in a devastating car accident, doctors gave him a 10 percent chance of survival. Fear of losing a child was all too fresh for the Freemans—their seven-year-old son, Trey, had died just four years earlier from a genetic immunodeficiency. But God. In #butGod Jeremy shares the incredible story of Caleb’s recovery, the darkness that nearly overtook their family in the waiting, and the #butGod movement that captured the prayers of Christians around the world.

This memoir combines the drastic losses which occur due to severe episodic memory deficits with the greater agency currently afforded to all of us as made capable via ingenuity and technology. In this book memory loss is considered within the present-day environment of novel solutions heretofore unimaginable. All of us may never need to worry about recalling key life events ever again.

A sudden rise in opioid addicts coinciding with a sudden drop in legally available opioids, created a desperation for prescription drugs never seen before in this country. Physicians shut down their previous practice of repeated refills, once the death toll was too high to ignore. As hospitals and rehab facilities instituted drug testing and CORI checks to ensure employees were clean, one health-care option stood alone as a place to easily obtain painkillers. That place was home health care.

Sugar Mamas is a book of personal stories of women who have a condition called lipedema, which affects 11% of women in the world and results in often debilitating fat deposits in the legs, thighs, hips, arms and other areas. While lipedema is primarily a woman's disease, the research on the condition has only in the last five years really taken off, so the causes and treatments are still in early research stages.