Disability Memoir

«Sono Rachele e ho 29 anni. A un mese dalla nascita, è stato detto ai miei genitori che avevo la fibrosi cistica, una malattia genetica degenerativa da cui non si può guarire. La malattia non si vede perché colpisce principalmente gli organi interni; tutte le secrezioni sono alterate e molto dense, il muco ristagna ed è difficile respirare. Quando sono stata invitata a un evento della Fondazione per la Ricerca sulla Fibrosi Cistica, mi sono chiesta: come faccio a unire la mia passione per i motori con quello che mi sta più a cuore?»

An inspiring story of hope, strength and courage. After doctors said there was no hope for her newborn daughter, this mother refused to give up. Despite her daughter’s severe disabilities, Lucy went on to touch many lives with her presence and became her mother’s greatest teacher.

You'll relate, you'll cry, and you'll want to learn more. A story of triumph over tragedy, again. In this moving tale, you'll follow Cristi Bundukamara's life as a blissful newlywed who hopes to give back to the world. Her family grows quickly in the form of both biological and adopted children. Cristi has all that she hoped for and more when a senseless drowning rocks her family. While struggling to pick up the pieces, more tragedy ensues and Cristi has to dig deep to keep moving forward.

Cassy is the first of her generation born into a Christian Lebanese family after they emigrated to Australia, and she was set to be the golden grandchild. But when it was discovered that she had cerebral palsy, the promise of her wonderful future vanished, and a veil of shame descended. Now an embarrassment to the family, Cassy was hidden away from the community, just tolerated at home, and told she was an embarrassment, useless and would have no future.

From childhood stutterer to inspirational speaker! The Courage to Shine is a powerful and inspirational memoir by Eileen Forrestal, a former anesthesiologist who transformed her life. After a lifetime of "putting people to sleep", Eileen is now in the business of "waking people up" as a writer, speaker, and coach. In The Courage to Shine, Eileen retraces her journey. She shares her childhood trauma of an accidental overdose of junior aspirin that led to her subsequent speech impediment, the embarrassment of which caused her to hide her voice in silent shame.

A sudden rise in opioid addicts coinciding with a sudden drop in legally available opioids, created a desperation for prescription drugs never seen before in this country. Physicians shut down their previous practice of repeated refills, once the death toll was too high to ignore. As hospitals and rehab facilities instituted drug testing and CORI checks to ensure employees were clean, one health-care option stood alone as a place to easily obtain painkillers. That place was home health care.

I Kept Walking opens in 1940s Tehran when a misguided prank leaves three- year-old Minou frozen in fear. Days later, a doctor breaks the news to her mother: "Your daughter has polio." To understand why nothing is as it seems-the cause of her polio or why her dutiful Jewish mother, who was married off at 13, thwarted her dream of marriage, Minou must flee Iran and confront the psychological toll of her polio. I Kept Walking is the audacious account of a bold young woman who was unwilling to be crushed by polio or the prohibitions of a conservative society.

Left partially paralysed below the rib cage by polio, Anne Wafula Strike was forced to flee her native Kenyan village, moving across the country with her family. After overcoming additional adversity, including the loss of her mother and ableist prejudice, Anne moved to the UK, where she discovered her talent for wheelchair racing. The first East African to compete in her sport, representing Kenya in the 2004 Paralympics before joining Paralympics GB, Anne is now a fierce advocate for the promotion of the games around the world, and a champion of disabled rights.

Born deaf and discovering encroaching blindness at the age of 16, Anthony Lawton’s future appeared to be full of locked doors. Prejudice. Delayed education. Distorted speech. Limited sight. But when benign strangers intercede and inner gifts reveal themselves the opportunity to pursue a childhood dream of speaking and participating in mainstream society become a realisable vision. He would need to do this before the consequences of dual sensory loss would again close the doors.

In this audiobook, you will catch intimate glimpses of how manic depression or bipolar disorder affects not only those diagnosed but the entire support structure around them. You'll find inspiration and hope that our fractured mental health system still holds opportunities for healing and unearthing resilience. In Hard Pill to Swallow: My Manic Memoir, Logan carries you through his struggles with his identity as a gay/bisexual man coming to terms with addiction while simultaneously battling bipolar disorder.

While finishing off her degree in Gerontology at Umass Boston, Yvonne Decelis started writing about her life in the hope of showing others with similar conditions that they are not alone in the trials they face. Yvonne goes over her upbringing and life prior to, during, and after diagnosis covering things like medications, “healthful living”, work, SSDI disability benefits, friendships, and relationships, etc. This was also written for people seeking information on how to interact with others who have "invisible illnesses" like MS, Fibro, Post-traumatic Stress injury, etc.

Sumérgete en la extraordinaria vida de Gerardo Schmedling, un hombre cuyo poder espiritual inquebrantable desafió las adversidades de la parálisis de Guillain-Barré en su juventud y las secuelas que afectaron su movilidad de por vida. Este relato, narrado por su prima María Mercedes Olivares Schmedling, conocida como Mechas, quien compartió con él desde su infancia, revela cómo Gerardo se convirtió en el arquitecto de un movimiento global de transformación personal y social.

Elaine, What Happened? A History follows the thirty year life of Elaine who was born without eyes and had other deformities. Besides trying to find out what caused her defects, it is a history of the changes that took place in the medical field, in public education and most notably in society's customs and attitudes regarding people with disabilities.

Theirs was an unlikely life together. Sheila gave birth to Josephine on 11th May 1993 and for twenty-three years they co-existed in a loving mother-daughter relationship, but one with a difference. Josephine suffered catastrophic brain injury at birth, never spoke to Sheila, rarely smiled and was barely able to see the faces of the people who loved her.

I am not trying to be a role model, just a possibility. There are obstacles, and people may not always treat you properly, but there is progress. My story is one of many that doesn't choose death over paralysis. It's just a story that doesn't get told often enough.

When Emmett de Monterey is eighteen months old, a doctor diagnoses him with cerebral palsy. Words too big for his 25-year-old artist parents and their happy, smiling baby. Growing up in South East London in the 1980s, Emmett is spat at on the street and prayed over at church. At his school for disabled children, he's told he will be expelled if the rumours are true, if he's gay; at his mainstream school, teachers refuse to schedule his classes on the ground floor, and he loses a stone from the effort of getting up the stairs.

Darkness—that’s what Bozena Gasior remembers feeling when she first heard her two-year-old son’s autism diagnosis. What followed was a cacophony of despair and cries, not knowing what to do, say, or feel. It was the day she thought that part of her son’s life had died. But one eventful day some four years later, his fingers touched the piano keys for the first time, and she felt something—a glimmer of light shining down, illuminating her home and family.

The story of Dr Amo Raju OBE DL is truly remarkable. Today, he is a multi-award winning member of society. Yet as a disabled child to present day, many around him have attempted to determine his future according to their own limiting expectations which led him to a thirty-year secret ‘relationship’ with depression. Authors Amo and Mani have ensured the protagonist, AJ Rai, based on Dr Amo Raju OBE DL, takes you on a journey of pain, heartache, laughter and triumph whilst capturing real-life scenarios which will keep you gripped to the next chapter.

Damaged is a story of survivor's guilt coupled with resentment tempered by love. It reveals the changing dynamics of a family faced with an injury no one could heal. Nancy Klein was in the first trimester of her second pregnancy when she made headlines as "Coma Mom." This intimate memoir, written by Klein's sister, reveals all that happened to her and her family after the news cycle moved on. The family: a mother who never gave up hope, even when hope was long gone, and a father who couldn't live without his wife's love.

Tales from my Yellow Room is a first-hand account of the challenges of living with a congenital disability, and the invisible difficulties society adds to such a life. Written with candor and humor, this Scottish-American story may change people’s perception of disability.