Disability Memoir

What would your life look like if you measured success by your improvements instead of your victories? Chris Nikic, the first person with Down syndrome to ever complete an IRONMAN® triathlon, inspires others to achieve their goals by getting one percent better better every day.

Rachel Kolb was born profoundly deaf the same year that the Americans with Disabilities Act (ADA) was passed, and she grew up as part of the first generation of deaf people with legal rights to accessibility services. Still, from a young age, she contorted herself to expectations set by a world that prioritizes hearing people. Now in Articulate, Kolb blends personal narrative with cultural commentary to explore the different layers of deafness, language, and voice.

The Magic Circle tells the story of what happens when Charmaine Chan's sister Elaine is diagnosed with a rare and aggressive cancer. As the illness progresses, family members living on different continents gather together during Elaine's last days. Striving to distract Elaine from the worst effects of the cancer, Charmaine takes to the pen: conjuring up the vanished world of their childhood in Singapore, and discovering a way to keep her promise to Elaine's six-year-old daughter.

Waking one morning to find he has little to no motor control, Jamieson only wants the world to return to how it had been before. After a diagnosis of multiple sclerosis, he thinks his life is over. What he doesn’t know is that it’s only just begun. Trying to navigate through the world in a body he no longer understands, Jamieson must travel through the dark forest of depression while waging a constant battle against himself. Over time, he learns what he’s truly capable of and what it actually means to be courageous.

In 2004, Mindy begins hearing a voice in her head, someone she calls "Joe," and sees signs everywhere that hold mysterious clues only for her. What she doesn't know at the time is that she is experiencing her first schizophrenic episode. For the next decade, she oscillates between two worlds -- a normal life and a secret voice-filled one -- until she begins the journey of merging her two worlds back into one. Becoming Whole documents her onset of schizophrenia and the subsequent years spent learning about it and how to live with it. It is her journey to find solace.

After a shocking diagnosis for a rare pituitary disease, and with her eighteen-year marriage in shambles, Risa's life has fallen far from picture-perfect. Recovering from brain surgery and desperate to get back to her former self, she signs up for the bike tour of a lifetime-six weeks from Canada to Mexico on the Pacific Coast Highway. The old Risa could have done the ride in her sleep, but for the new Risa, trapped in a body that no longer feels like her own and stuck in the company of her brain tumor, Bubba, the ride becomes a challenge unlike anything she's ever faced.

One afternoon, Emma Nadler gets a call from her daughter's doctor that changes her life forever. Faced with the realities of raising a child with a rare genetic condition, Nadler must confront her preconceptions of motherhood and her perfectionistic beliefs. Nadler—who also happens to be a psychotherapist—offers a rare window into the unconventional ways she and her family adapt to their improbable path. Every relationship in her life—with herself, her husband, children, friends, and even clients—is reimagined as she navigates the heartbreak and hilarity of her daily life.

Condamné par la maladie, Olivier Goy partage avec la journaliste Anne Fulda son inlassable combat pour mieux faire accepter le handicap et lever des fonds pour la recherche, et, surtout, appelle à regarder et aimer la vie pleinement?! Olivier a 46 ans quand on lui diagnostique la maladie de Charcot en 2020. Une maladie neurodégénérative qui se traduit par une paralysie progressive des muscles, mais laisse au malade ses pleines capacités intellectuelles. Espérance de vie?: 3 à 5 ans.

A revelatory collection of essays on the DeafBlind experience, and a manifesto on the power and untapped potential of touch. Born Deaf into an ASL-speaking family and blind by adolescence, John Lee Clark learned to embrace the possibilities of his tactile world. He is on the frontlines of the Protactile movement, which gave birth to an unprecedented tactile language and a way of life based on physical connection.

As a child, Matt Hay didn’t know his hearing wasn’t the way everyone else processed sound—because of the workarounds he did to fit in, even the school nurse didn’t catch his condition at the annual hearing and vision checks. But by the time he was a prospective college student and couldn’t pass the entrance requirements for West Point, Hay’s condition, generated by a tumor, was unavoidable: his hearing was going, and fast. A personal soundtrack was Hay’s determined compensation for his condition.

Kevin’s life was forever changed on a random Wednesday when he was just 20 years old. An aspiring musician at the time, he was planning to attend music school and pursue his dream of becoming a composer. A stroke dismantled every plan and everything in his life. In Taken By Surprise, Kevin chronicles his battles with the stroke. After a risky brain surgery, he was in a coma for nearly a month and spent six weeks in an acute rehab facility to learn how to walk and talk all over again.

An eye-opening wife’s journal which speaks about an amazing and unbelievable traumatic brain injury adventure. Written with love, respect, and humor, this is a must-listen for anyone who wants to know about a TBI survivor’s daily routine.

CANCER WITHOUT FEAR–A YEAR TO LIVE is the remarkable unconventional story of Chuck Sirko's terminal cancer diagnosis. When Chuck refused mainstream's “Gold Standard of Care”, his wife Jacqueline dedicated herself to researching alternative methods of treatment. The goal: to make Chuck’s remaining time free from any repercussions of radiation and chemotherapy and to live life to the fullest.

As a stroke survivor who has seen every obstacle imaginable, giving up would have been easy, but "where there's a Bill, there's a way." Along with the support of his family, stroke buddies, countless friends, faith, hope and perseverance he has beaten all odds. Born and raised in South Texas, an athlete his entire life, with a root in faith and family, Bill was well on his way to writing a book about coaching and basketball when a severe stroke stopped him in his tracks.

Clem Bastow grew up feeling like she’d missed a key memo on human behaviour. She found the unspoken rules of social engagement confusing, arbitrary and often stressful. Friendships were hard, relationships harder and the office was a fluorescent-lit nightmare of anxiety. It wasn’t until Clem was diagnosed as autistic, at age 36, that things clicked into focus. Clem reflects as an autistic adult on her formative experiences as an undiagnosed young person, from the asphalt playground of St Joseph's Primary School in Melbourne to working as an entertainment journalist in Hollywood.

A serious illness destroyed Helen Keller's sight and hearing before she reached the age of two. At seven, she was introduced to Ann Sullivan, the beloved teacher and friend who helped Helen to make contact with her world. Through sheer determination and resolve, Helen learned to speak, read, and write, and prepared herself for entry into prep school by the age of 16. She later enrolled at Radcliffe and graduated with honors. Her motto: "There are no handicaps, only challenges."

In Imperfect, Jim Abbot retraces his remarkable journey. Born without a right hand, Jim Abbott as a boy dreamed of being a great athlete. Raised in Flint, Michigan, by parents who saw in his condition not a disability but an extraordinary opportunity, Jim became a two-sport standout in high school, then an ace pitcher for the University of Michigan. But his journey was only beginning. By 21, he’d won the gold medal game at the 1988 Olympics and cracked the starting rotation of the California Angels....

Disability is neither strange nor distant. Part autobiography, part reflections of social advocate Cassandra Chiu's experiences as a person living with visual impairment, A Place For Us is the story of the first woman to be a guide dog handler in Singapore and the first Young Global Leader of the World Economic Forum in Southeast Asia who happens to be blind.

As director of legendary Pommery Champagnes, Philippe Pozzo di Borgo was not generally someone in the habit of asking for help. Then, in 1993, an accident left him a quadriplegic. Passing his days hidden in his Paris townhouse, Philippe found himself the modern equivalent of an “untouchable.” The only person who seemed not to be bothered by Philippe’s condition was someone who had been marginalized his entire life - Abdel, the unemployed, uninhibited immigrant from the outskirts of society who would become Philippe’s caretaker.

Uncommon Vision by Matt Hendrick is a deeply moving memoir that captures the essence of human resilience. After a devastating accident leaves him paralyzed, Matt embarks on a life-changing journey that challenges both his physical limits and his perceptions of the world. From the depths of despair in a hospital bed to his adventures in the digital and supernatural realms, Matt's story is a riveting exploration of recovery, self-discovery, and the relentless pursuit of one's dreams despite the odds.