Disability Memoir

Carla Sosenko was born with Klippel-Trenaunay Syndrome, a rare vascular disorder that resulted in legs of different sizes, a mass of flesh on her back,­­ a hunched posture, and other idiosyncrasies big and small. She spent years trying to hide under layers of clothing, and then experimented with the opposite: wearing tiny dresses and short shorts, daring people to stare so she could make them regret it. No matter what she did, she was worried that she didn’t measure up.

Ellen Keane spent most of her teens uncomfortable with her limb difference and battling to hide her insecurities. It was only when she embraced her difference that she found her superpower. She started to believe in her unique abilities and gradually find the success that she had never dreamed possible. Perfectly Imperfect is for anyone struggling to accept who they are. With anecdotes from her own life, practical advice and good-natured humour, Keane challenges you to let go of waiting until everything is perfect and instead embrace your imperfections and accept who you are, flaws and all.

From the author of the viral New York Times op-ed column "To Siri with Love" comes a collection of touching, hilarious, and illuminating stories about life with a 13-year-old boy with autism that hold insights and revelations for us all.

Imagine waking up and everything you knew was suddenly unrecognizable. No memory of your friends, family, or even your children remains. This is the story of one brave woman beginning her new life after a traumatic brain injury. Join her on this journey of discovering faith, love, adversity, and victory through the unforeseen events of life.

Do you know an adult with autism, Down syndrome, or another special need? One in eight people on our planet live with some form of disability. And they all deserve to live productive, engaged lives. Are we willing to help them accomplish this goal? The mother of an adult with autism, Andrea Moriarty leveraged her son’s passion, talent, and personality to help him create an out-of-the-box vocation: A podcast. After more than 80 interviews, she recognized three vital attitudes that people with disabilities teach us - risk taking, humility, and kindness.

Darlene was a small-town single mother from Arkansas. Bert was a small-town preacher’s son from Oklahoma. Polio crippled both of them as teenagers. When their paths crossed at a rehab center in 1952, these young adults questioned how anything good could come from this crippling virus. Bert’s faith in the Biblical passage of Romans 8:28 gave him hope that “Polio was not good, but God would bring good out of it.” Darlene’s journey to the rehab center was “the one way for God to get me in the right place at the right time.”

Three months into her pregnancy with her first child, Hilary Yancey received a phone call that changed everything. As she learned the diagnosis - cleft lip and palate, a missing right eye, possible breathing complications - Hilary began to pray in earnest. Even in the midst of these findings, she prayed that God would heal her son. God could do a miracle unlike anything she had seen. Only when Hilary held her baby, Jack, in her arms for the first time did she realize God had given her something drastically different than what she had demanded.

A raccoon bite on the arm doesn’t seem that serious, but it soon becomes a life-or-death medical crisis for Melissa Loomis. After days of treatment for recurring infection, it becomes obvious her arm must be amputated. Rewired is the inspirational, miraculous story of Dr. Ajay Seth’s revolutionary surgery that allows Melissa to not just move a prosthetic arm simply by thinking, but to actually feel with the prosthetic hand, just as she would with her natural arm. This resulted in what others have recognized as the world’s most advanced amputee.

Ben Mattlin lives a normal, independent life. Why is that interesting? Because Mattlin was born with spinal muscular atrophy, a congenital weakness from which he was expected to die in childhood. Not only did Mattlin live through childhood, he became one of the first students in a wheelchair to attend Harvard, from which he graduated and became a professional writer. His advantage?

This collection of poems was written from the day the author was sent to the emergency room through her first phase of radiation and chemotherapy treatment. Christina uses poetry to share her lived experience as a teacher, a patient, a psychologist, and a neurodivergent person. Kiss Your Brain: Diagnosis Diaries shares poems that fit under the categories of “on beautiful brains", “on resilience", and “on renewal".

Pascuala Herrera, a Mexican immigrant woman with a physical disability resulting from childhood polio, had the odds against her, yet she conquered simply by working hard, having unfailing faith, and finding her own life purpose. Although her mother always told her that life was a valley of tears, Pascuala learned that although there were many difficult moments in her life, there were also beautiful miracles that happened every day.

Blind Vision is a fascinating account of a unique and inspiring career in open-water swimming. But more than that, it is a story for anyone that’s ever been told they can’t. James Pittar is living proof that no matter what the odds, with dedication, passion, and the right people around you, you can.

Born with severe brain defects, Suzy was sentenced to a life of “nevers.” With the unwavering support of her mother, Jane, and extended family, Suzy’s miraculous journey has given many experts reason to question the medical textbooks that have been written. From predictions that she would never walk, talk, or function in society, Suzy overcame all these obstacles with determination and perseverance—not even allowing final-stage renal failure at the age of twenty-four to deter her.

At the age of 30, Jake found himself hospitalized, grappling with the weight of anxiety, depression, and paranoia. Soon, he received the life-altering diagnosis of schizophrenia. In this intimate and illuminating book, you are invited into Jake's world, a world he shares with his mother, Laurette, through alternating chapters.

In 2019, Greta Morgan was on the rise. She had toured with Vampire Weekend, collaborated with Jenny Lewis, and garnered critical acclaim with her own musical projects. But in March 2020, after contracting COVID-19, she was diagnosed with spasmodic dysphonia, a neurological disorder with no known cure that left her unable to sing. Her once crystalline voice now reduced to a hush, she saw her career come to an abrupt standstill.

Challenging the view that autism is something that needs to be ‘cured', Virginia Bovell testifies to the extraordinary care Danny has received for over 30 years and the everyday kindness and decency of the people – ‘the band of angels' – that surround him. She asks us to consider what makes a thriving individual versus an inadequate one; what it means to be ill versus what it means to not to conform; what roles society values and rewards; and how humans might flourish outside of failing political and economic systems.

Told through an experimental mix of intimate anecdotes and interactive visuals, this book immerses listeners in Emmy Award–winning documentary filmmaker James Robinson's point of view, allowing them to see the world through his disabling eye conditions.

The art of avoiding diabetes and its complications has been known to humankind for over 2500 years. Yet, people have not learned to live with it. Is it impossible for a person with diabetes to live healthy for his entire lifespan? Embark on an extraordinary journey with Dr. Kamal Kant Lal as he shares a deeply personal odyssey in How I Fell in Love with My Diabetes. This memoir isn't just about managing diabetes, it's an inspiring testament to resilience, self-discovery, and a radical shift in perspective towards living with this condition.

After 35 years, the author knows many of the ins and outs of living with Multiple Sclerosis. JJ Leander went from a promise of a wheelchair ride toward an early death, to a winning formula for surviving into Old Age that is anything but a quick trip to the funeral home.

With aspirations of being a successful lawyer, Jonathan embarks on a path to make his dreams come true, but is ultimately, unable to do so due to his schizoaffective disorder. In this candid and unflinching memoir, Jonathan reveals his story in all its rawness: the ups, the downs, the wins, the losses, the highs and the darkest of lows.