Disability Memoir

As a deafblind woman with partial vision in one eye and bilateral hearing aids, Elsa Sjunneson lives at the crossroads of blindness and sight, hearing and deafness—much to the confusion of the world around her. And she knows how wrong our one-size-fits-all definitions of disability can be. Part memoir, part cultural criticism, part history of the deafblind experience, Being Seen explores how our cultural concept of disability is more myth than fact, and the damage it does to us all.

Jeff Bauman woke up on Tuesday, April 16th, 2013, and he had no legs. Just 30 hours prior, Jeff was surrounded by revelry at the finish line of the 2013 Boston Marathon. The first bomb went off at his feet as he awaited his girlfriend's finish. When Jeff awoke days later from hours of surgery, rather than take stock of his now completely altered life, Jeff ripped out his breathing tube and tried to speak. He couldn't. Jeff asked for a pad and paper and he wrote down seven words, "Saw the guy. Looked right at me," setting off one of the biggest manhunts in the country's history....

Kevin’s life was forever changed on a random Wednesday when he was just 20 years old. An aspiring musician at the time, he was planning to attend music school and pursue his dream of becoming a composer. A stroke dismantled every plan and everything in his life. In Taken By Surprise, Kevin chronicles his battles with the stroke. After a risky brain surgery, he was in a coma for nearly a month and spent six weeks in an acute rehab facility to learn how to walk and talk all over again.

On paper, Coach Rob Mendez sounds like any other football coach on any other field across America: passionate, authoritative, knowledgeable. But he’s unlike any other coach you know - in fact, he’s probably unlike any other person you know. Born with an extraordinarily rare condition called tetra-Amelia syndrome, Rob has no arms or legs. He moves with the assistance of a custom-made, motorized wheelchair that he operates with his back and shoulders.

This English professor grew up spacey and overweight. Drowning in the unrealistic demands of motherhood, Livingston steals her son's ADHD medication and watches it transform her life—for good and bad. She grows weary of subjective diagnoses and chemical treatments from traditional psychology experts, and experiments with functional medicine—brain mapping and nutritional supplements—as a way to understand her brain's potential, bio-hacking her way to a healthy body and mind.

Like many of us, James Lindsay is no stranger to stress and anxiety. But in his case, leaving those struggles untreated led to a full psychotic episode that hospitalized him for the better part of a month. With the help of medication and therapy, he has now overcome this dark period and is currently living a much happier life.

The world spun and rolled as I collapsed at Macy’s in San Francisco to the voices of Christmas carols being sung and bells ringing. Fresh out of the ICU and a week later, a beige man gave me a beige folder with a dark diagnosis that would color the rest of my life - multiple sclerosis. This set off a tidal wave, a tsunami inside of me that ravaged my body and crushed my lungs. The MS Diaries is a memoir that seeks to impart the journey inside one man’s mind struggling with a severe chronic illness through uncensored personal anecdotes and humorous situations.

Darryl Jefferson was diagnosed with Asperger's syndrome at the age of eight and encountered many hurdles in life due to the condition. Despite this, he persevered through many challenges in school, work, relationships, and the military. In this story, he takes us on a journey through one man's experience of living with autism and its effects on school, work, relationships, friendships, and many other life challenges.

Bárbara Anderson narra con brutal franqueza el día a día de tener un hijo con discapacidad: los retos dentro y fuera de casa, las complicaciones de salud y de vida; los cambios de prioridades; el Everest de cada día al tener un hijo con - hasta ahora - un diagnóstico irreversible como es la parálisis cerebral infantil.

At the age of 27, Whitney Dafoe was forced to give up his life as a photographer who traveled the world. Bit by bit a mysterious illness stole away the pieces of his life: First, it took the strength of his legs, then his voice, and his ability to eat. The Puzzle Solver follows several years in which he desperately sought answers. Whitney's father, Ron Davis, PhD, a world-class geneticist at Stanford University whose legendary research helped crack the code of DNA, suddenly changed the course of his career in a race against time to cure his son's debilitating condition.

Rosemary Mahoney tells the story of Braille Without Borders, the first school for the blind in Tibet, and of Sabriye Tenberken, the remarkable blind woman who founded the school. Fascinated and impressed by what she learned from the blind children of Tibet, Mahoney was moved to investigate further the cultural history of blindness. As part of her research, she spent three months teaching at Tenberken's international training center for blind adults in Kerala, India, an experience that reveals both the shocking oppression endured by the world's blind, as well as their great resilience.

Nineteen people from across the globe, ranging in age from 20 to 70-plus, tell their stories of living and thriving in diverse fields - in sport, the arts, medicine, business, and more. With refreshing frankness, they share their successes along with their struggles - grit is the one characteristic they all have in common. These are not stories of people overcoming disability - they’re stories of people accommodating disability while pursuing their dreams. Pure Grit shines a light on boundless possibility whatever the individual challenge.

Hannah Daly is a pediatric occupational therapist and an advanced sensory integration practitioner who is profoundly dyslexic, dyspraxic, and has sensory processing disorder. She has multiple university degrees but still cannot read or write. In Knowing No Boundaries, she gives an honest account of living with these hidden disabilities. This book is a unique coming-of-age, feel-good memoir that strikes the balance of vulnerability and humor.

If you grow up in a world where wrinkles are practically illegal, going bald is cause for a mental breakdown, and women over size zero are encouraged to shoot themselves (immediately), what the hell do you do if you're, gasp... disabled? Whatever body you’re born into, the pressure to be normal is everywhere. But have you ever met a normal person? What do they look like? Where do they live? What do they eat for breakfast? And what the **** does normal mean anyway?

For 18 years of my life, I dealt with harm daily. I suffered over 40 years with a substantial assortment of trauma-related manifestations. The devastation of the problems began when I was a child and lasted until I was in my mid-40s. I know my story sounds bleak but don’t be discouraged. Peace, laughter, joy, and happiness eventually came my way.

CANCER WITHOUT FEAR–A YEAR TO LIVE is the remarkable unconventional story of Chuck Sirko's terminal cancer diagnosis. When Chuck refused mainstream's “Gold Standard of Care”, his wife Jacqueline dedicated herself to researching alternative methods of treatment. The goal: to make Chuck’s remaining time free from any repercussions of radiation and chemotherapy and to live life to the fullest.

In her moving account of how she came to understand the world around her despite being blind and deaf since childhood, Helen Keller confirms that no physical obstacle can hinder the achievements of the human mind. Included with Keller's poignant autobiography are her letters, spanning 15 years, which reveal her remarkable intellectual growth and empathic soul. Commentary by her teacher, Anne Sullivan, and the book's original editor is also featured, providing illuminating insight from two of Keller's closest companions.

It's not what I lost. It's what I've found. I was only 17, just a girl, when God asked me for everything I had...my health, my hopes, my independence, my dreams, my freedom, and my mobility. He took it all. I was so angry with him that I tried to push him away. God relentlessly held me more closely. Looking back, 40 years later, I understand that God has changed and healed me - my heart and my mind - in the most unexpected ways, giving me rubies of his wisdom about an unbending faith and an experience of his mercy I can now tell you about.

A revelatory collection of essays on the DeafBlind experience, and a manifesto on the power and untapped potential of touch. Born Deaf into an ASL-speaking family and blind by adolescence, John Lee Clark learned to embrace the possibilities of his tactile world. He is on the frontlines of the Protactile movement, which gave birth to an unprecedented tactile language and a way of life based on physical connection.

Not that anyone wishes to be paralyzed in a motorcycle accident, but tragedy set the stage for triumph and the making of a real life fairy tale. When the harsh reality of paralysis turned the dream of having a family together into a nightmare for Erik and Jennifer, they had to face their deepest fears and live courageously, because sometimes fairy tales are just stories of love's perseverance.