Disability Memoir

Follow the journey of Tanita Allen, a courageous Black woman confronting the challenges of Huntington's Disease. We Exist documents her harrowing two-year struggle for a diagnosis while living in a toxic NYC apartment that triggered the early onset of her condition. Learn how she wages an impossible, decade-long legal battle against those responsible, unveiling the staggering barriers faced by marginalized communities in both medical and legal systems.

My name is Christopher Miller, the view I happen to have is a view from a wheelchair. I live with spastic cerebral palsy which affects my mobility and speech. I believe that people with disabilities need to be involved in the political process. I just happen to have A View From a Seat.

My name is Joseph A. Peragine. I am a paranoid schizophrenic. On October 22, 2000, I tried to kill myself in a severely hallucinogenic state due to undiagnosed paranoid schizophrenia. I was suffering from this illness for many years leading up to that day. Every October since I started my recovery in 2000, I reflect on my life and am extremely thankful that I was fortunate enough to have been given a second chance.

Theirs was an unlikely life together. Sheila gave birth to Josephine on 11th May 1993 and for twenty-three years they co-existed in a loving mother-daughter relationship, but one with a difference. Josephine suffered catastrophic brain injury at birth, never spoke to Sheila, rarely smiled and was barely able to see the faces of the people who loved her.

An Unexpected Story of Hope & Perserverance: As a young child, something was wrong with Michael. He lacked basic motor skills and was unable to follow simple instructions or answer questions. Testing revealed a diagnosis of autism with a low IQ. Experts insisted that leading an independent life would be impossible for him...and school was not an option.

I am not trying to be a role model, just a possibility. There are obstacles, and people may not always treat you properly, but there is progress. My story is one of many that doesn't choose death over paralysis. It's just a story that doesn't get told often enough.

When Emmett de Monterey is eighteen months old, a doctor diagnoses him with cerebral palsy. Words too big for his 25-year-old artist parents and their happy, smiling baby. Growing up in South East London in the 1980s, Emmett is spat at on the street and prayed over at church. At his school for disabled children, he's told he will be expelled if the rumours are true, if he's gay; at his mainstream school, teachers refuse to schedule his classes on the ground floor, and he loses a stone from the effort of getting up the stairs.

Tech executive, business consultant, and recording artist Sabe Anderson delivers a no-holds-barred account of his spiral into hell, and how he clawed his way out again with the support of family and the women who refused to give up on him. His story dives into bipolar disorder, sexual abuse, and addiction and the financial, mental, spiritual, physical, and emotional hardships that came in their wake.

Cassy is the first of her generation born into a Christian Lebanese family after they emigrated to Australia, and she was set to be the golden grandchild. But when it was discovered that she had cerebral palsy, the promise of her wonderful future vanished, and a veil of shame descended. Now an embarrassment to the family, Cassy was hidden away from the community, just tolerated at home, and told she was an embarrassment, useless and would have no future.

Macular degeneration affects over eight million people in the United States. Patients lose central vision, the ability to read fine print and recognize faces. A diagnosis doesn't mean surrendering to these challenges. Instead, understanding this medical condition will help pave the way toward a better future-for yourself or loved one.

Growing up in Mineral Wells, Texas during the 1950s and 60s was anything but idyllic for Walter Ashby. Due to a misdiagnosis and medical error, his sister Janie went from being a lively young girl to a shell of a person who required their parents’ attention 24 hours a day, every day. To add insult to injury, his parents received another blow: before Walter was six-years-old, he lost 98 percent of his vision, leaving him legally blind.

Our Life Our Way: A Memoir of Active Faith, Profound Love and Courageous Disability Rights explores an extraordinary love story grown out of engagement with both disability rights advocacy and christian faith communities. This memoir contains thoughtful, often entertaining, and sometimes heart-wrenching anecdotes of a couple’s journey to create their profound relationship and Christian marriage, in a world not yet ready for them.

You struggle with your disability. You're tired of being counted out of life. Are you frustrated because you feel, or have been told, you can't be 100% healthy with your disability? It's time for a change! It's time to prove everyone (including your doctors) wrong! Author and certified personal trainer Tony Jacobsen, who has Osteogenesis Imperfecta (Brittle Bones Disease), has transformed his entire life and now shares the formula to empower other people with disabilities.

A gorgeously crafted memoir about resilience, family, and forging your own way, by a woman born without legs. At the age of three, Eileen Cronin first realized that only she did not have legs. Her boisterous Catholic family accepted her situation as "God's will", treating her no differently than her 10 siblings, as she "squiddled" through their 1960s Cincinnati home. But when starting school, even wearing prosthetics, Cronin had to brave bullying and embarrassing questions.

When Joanne Jacobson’s writing about her mother’s respiratory illness was interrupted by her own diagnosis with a rare blood disorder, she found her perspective profoundly altered. Every Last Breath follows these two chronic illnesses as they grow unexpectedly intertwined. Rejecting a fixed, retrospective point of view and the forward-moving trajectory of conventional memoir, Jacobson brings the reader to the emotionally raw present - where potentially fatal illness and “end of life” both remain, emphatically, life.

Shortly after his daughter, Leontine, was born, Christian Donlan's world shifted an inch to the left. He started to miss light switches and door handles when reaching for them. He would injure himself in a hundred stupid ways every day. First playful and then maddening, these strange experiences were the early symptoms of multiple sclerosis, an incurable and degenerative neurological disease.

A touching and deeply personal memoir, Our Brother Jim recounts the author’s experience growing up with a brother with disabilities. Through his parents’ constant care and his family’s loving encouragement, Jim exceeded every doctor’s expectations, learning to do those “everyday” things that proved so difficult for him—like walking, counting, and communicating with others. With a radiant smile and a delightful sense of humor, Jim left a beautiful mark on the world around him. This book is to remember him.

" On ne saura jamais quel aurait été mon destin sans cette maladie – une méningite bactérienne foudroyante à l’âge de six ans –, mais je n’aurais sans doute pas vécu le quart de ce que j’ai eu la chance de vivre jusqu’à présent. Je suis Théo Curin, vingt-deux ans, amputé des quatre membres, bien dans ma tête, bien dans ma peau. Quand on me demande comment je réagirais si on me rendait bras et jambes, je réponds : “Non, merci, je ne saurais qu’en faire !” J’ai des choses à dire et le sentiment d’être écouté, que demander de plus ? "

Medical aid in dying has been legal in New Mexico since 2021. This collection of stories about courageous terminally ill adults who have chosen medical aid in dying, is told with compassion and clarity. Dr. Sparks provides the service in New Mexico, one of 10 states, as well as Washington DC, where the practice is legal. NM currently has the most progressive law, and is the model for at least 17 other states seeking passage of similar legislation in 2024.

This is a philosophical and observational book based on the challenges and the triumphs of Paddy Slattery's life which include a severe spinal cord injury leaving him paralyzed, two near-death experiences, and his debut film hitting the cinema and Netflix just as Covid was beginning to make headlines.