Disability Memoir

On July 4th, 2013, Connor Sparrowhawk, also known as Laughing Boy or LB, was found dead in a specialist NHS unit. Connor, who had autism and epilepsy, had a seizure while in the bath, and no member of staff was on hand to stop him from drowning. An entirely preventable death. Sara Ryan presents a frank, sometimes funny and touching account of her son's early life and preventable death and the unfolding #JusticeforLB campaign.

Jeremy Schreiber was on top of the world—athletic, newly married, successful. And then something went terribly wrong. In this moving memoir, he shares his journey after he received a terrifying diagnosis: ALS. As the devastating disease robbed him of movement and speech, he was abandoned by his wife and betrayed by a society that shuns people with disabilities. But it’s not all doom and gloom. He found love, support, and a powerful purpose. While fighting for his independence and then for his life, Jeremy gave his all to the ALS and disability communities.

When John Tovey lost his sight at the age of 42, he thought his life was over. He was wrong, it was just beginning. John had followed a bad path drifting in and out of trouble. He was sent to improvement schools, a young offenders institute and eventually a prison. John was on self-destruct and thought nothing or no one could help him. Then he became the victim of a vicious attack by a notorious train ‘steaming’ gang. John knew he had to take the witness stand.

Stephen Kuusisto was born legally blind - but he was also raised in the 1950s and taught to deny his blindness in order to "pass" as sighted. Stephen attended public school, rode a bike, and read books pressed right up against his nose. As an adult, he coped with his limited vision by becoming a professor in a small college town, memorizing routes for all of the places he needed to be. Then, at the age of 38, he was laid off. With no other job opportunities in his vicinity, he would have to travel to find work.

Wie können wir Inklusion endlich umsetzen? Eine so persönliche wie politische Geschichte. 2016 wird Hadija Haruna-Oelker Mutter eines behinderten Kindes. Immer wieder trifft sie auf Barrieren und trennende Systeme, die seit Jahrzehnten bekannt sind: Bürokratie, pseudoinklusive Schulen oder unhinterfragte Diskriminierungen und Abwertungen im Alltag.

This book is written by the husband of a stroke victim. The husband is the caregiver of 25 years to his wife in helping her in her battle to recovery from a massive stroke. It describes some of her challenges over the years and the tools that she has used to meet these challenges to make her life easier in the world that she knows of it today.

It was a crisp winter day when six-year-old Kacey McCallister lost both of his legs, forever altering the course of his life. This unthinkable trial could have broken him, but from that day forward, he chose to rise above his circumstances and learn to live without limits. For those struggling to find hope in the depths of physical, spiritual, or emotional trials, this incredible story of one man’s unbreakable courage will inspire and motivate listeners to not only survive, but thrive amidst life’s challenges.

The story of one man’s experience of a major stroke and his attempts to recover from it ….. but, enough of that - this is also an account of a dog’s experience of life with unpredictable, irrational human beings and his attempts to deal with all of that.

Sipping Dom Pérignon Through a Straw is an inspirational and truly intersectional memoir from global humanitarian and disability-justice advocate Eddie Ndopu—a queer, Black wheelchair user. Ndopu’s incredible story begins with his childhood being raised by a single mother fleeing Apartheid South Africa before rocketing through every boundary put in front of him—because of his disability, his ethnicity, and his sexuality—to eventually hold official positions at both the United Nations and the World Economic Forum.

At the age of 30, Jake found himself hospitalized, grappling with the weight of anxiety, depression, and paranoia. Soon, he received the life-altering diagnosis of schizophrenia. In this intimate and illuminating book, you are invited into Jake's world, a world he shares with his mother, Laurette, through alternating chapters.

Waking one morning to find he has little to no motor control, Jamieson only wants the world to return to how it had been before. After a diagnosis of multiple sclerosis, he thinks his life is over. What he doesn’t know is that it’s only just begun. Trying to navigate through the world in a body he no longer understands, Jamieson must travel through the dark forest of depression while waging a constant battle against himself. Over time, he learns what he’s truly capable of and what it actually means to be courageous.

Medical aid in dying has been legal in New Mexico since 2021. This collection of stories about courageous terminally ill adults who have chosen medical aid in dying, is told with compassion and clarity. Dr. Sparks provides the service in New Mexico, one of 10 states, as well as Washington DC, where the practice is legal. NM currently has the most progressive law, and is the model for at least 17 other states seeking passage of similar legislation in 2024.

Rosemary Mahoney tells the story of Braille Without Borders, the first school for the blind in Tibet, and of Sabriye Tenberken, the remarkable blind woman who founded the school. Fascinated and impressed by what she learned from the blind children of Tibet, Mahoney was moved to investigate further the cultural history of blindness. As part of her research, she spent three months teaching at Tenberken's international training center for blind adults in Kerala, India, an experience that reveals both the shocking oppression endured by the world's blind, as well as their great resilience.

Growing Up With Asperger's provides advice, stories, and anecdotes for autistic listeners both young and old, and parents of autistic children. Funny and down-to-earth with an honest look at life from an autistic perspective.

"La situazione di Cesare è molto grave. È giusto che te lo dica. Fate tutto quello che potete con lui, non rimandate." La storia di Valentina, Federico, Ale, Terry e Cece si è interrotta qui, tra le mura di un ospedale e la paura di non avere più tempo. Loro, però, si erano Fatti una promessa: anche nei momenti più bui, tra le ombre, avrebbero cercato la felicità. Così, tra feste di compleanno e gite in canoa, la loro storia continua, e con l’estate ormai alle porte il loro viaggio diventa molto di più.

When her son was diagnosed with autism at the age of three, Irma Velasquez was devastated. It was the pre-internet era of the early 1990s, and both information and experts were hard to find. Desperate for answers, she sought out therapists and educational programs designed to teach Aaron how to become successful in school and in life. But those early years ended up teaching Irma more than they taught Aaron. Irma realized her desire to "fix" her son had been a masquerade to fulfill her own needs, and she began to love him just as he was: perfect.

As a child, Matt Hay didn’t know his hearing wasn’t the way everyone else processed sound—because of the workarounds he did to fit in, even the school nurse didn’t catch his condition at the annual hearing and vision checks. But by the time he was a prospective college student and couldn’t pass the entrance requirements for West Point, Hay’s condition, generated by a tumor, was unavoidable: his hearing was going, and fast. A personal soundtrack was Hay’s determined compensation for his condition.

Junius Wilson (1908-2001) spent 76 years at a state mental hospital in Goldsboro, North Carolina, including 6 in the criminal ward. He had never been declared insane by a medical professional or found guilty of any criminal charge. But he was deaf and Black in the Jim Crow South. Unspeakable is the story of his life.

Adventurous international teacher, Amy Bovaird, is diagnosed with Retinitis Pigmentosa, a hereditary eye disease that will blind her. In spite of that, she manages to continue teaching overseas. Then her father's final illness brings her back home for good. There, friends and acquaintances begin to notice that she doesn't always recognize them and sometimes stumbles as if drunk! Insensitive students ridicule her in the classroom.

Autism is often misunderstood by mainstream society. Colin takes us on a journey through the key moments in his life with undiagnosed Autism. The added struggles with Dyslexia, Dysgraphia and Dyscalculus are all part of who he is. There are sad times, funny times, times when he felt disdain for himself, but an underlying drive to carve out a life of normality is always there. A graduate of Edinburgh University shows to people that those on the spectrum are not daft or simpletons, only that they process information differently.