Disability Memoir

Ever since he was small, John Robison had longed to connect with other people, but by the time he was a teenager, his odd habits, an inclination to blurt out non sequiturs, avoid eye contact, dismantle radios, and dig five-foot holes, had earned him the label "social deviant". No guidance came from his mother or his father. It was no wonder he gravitated to machines, which could, at least, be counted on.

Despite being a winner of the Pulitzer Prize for Poetry in 2008, Philip Schultz could never shake the feeling of being exiled to the “dummy class” in school, where he was largely ignored by his teachers and peers and not expected to succeed. Not until many years later, when his oldest son was diagnosed with dyslexia, did Schultz realize that he suffered from the same condition.

We meet Andrew Leland as he’s suspended in the liminal state of the soon-to-be blind: he’s midway through his life with retinitis pigmentosa, a condition that ushers those who live with it from sightedness to blindness over years, even decades. He grew up with full vision, but starting in his teenage years, his sight began to degrade from the outside in. Soon— but without knowing exactly when—he will likely have no vision left. Full of apprehension but also dogged curiosity, Leland embarks on a sweeping exploration of the state of being that awaits him.

One morning in 2008, desperate and impoverished while trying unsuccessfully to write, Davidson plucked a flyer out of his mailbox that read, "Bus Drivers Wanted". That was the first step toward an unlikely new career: driving a school bus full of special-needs kids for a year. Armed only with a sense of humor akin to that of his charges, a creative approach to the challenge of driving a large, awkward vehicle while corralling a rowdy gang of kids, and unexpected reserves of empathy, Davidson takes us along for the ride.

Ido in Autismland opens a window into non-verbal autism through dozens of short, autobiographical essays each offering new insights into autism symptoms, effective and ineffective treatments, and the inner emotional life of a severely autistic boy. In his pithy essays, author Ido Kedar, a brilliant 16-year-old with autism, challenges what he believes are misconceptions in many theories that dominate autism treatment today while he simultaneously chronicles his personal growth in his struggles to overcome his limitations.

In The Future Is Disabled, Leah Laksmi Piepzna-Samarasinha asks some provocative questions: What if, in the near future, the majority of people will be disabled—and what if that's not a bad thing? And what if disability justice and disabled wisdom are crucial to creating a future in which it's possible to survive fascism, climate change, and pandemics and to bring about liberation?

First came the boom - the loud, deep, unapologetic bellow that seemed to erupt from the very core of the Earth. Eerily, the majestic high-rise slowly leaned to the south. On the 78th floor of the World Trade Center's north tower, no alarms sounded, and no one had information about what had happened at 8:46 a.m. on September 11, 2001. Blind since birth, Michael couldn't see a thing, but he could hear the sounds of shattering glass, falling debris, and terrified people flooding around him and his guide dog, Roselle.

So begins Chloé Cooper Jones’s bold, revealing account of moving through the world in a body that looks different than most. Jones learned early on to factor “pain calculations” into every plan, every situation. Born with a rare congenital condition called sacral agenesis which affects both her stature and gait, her pain is physical. But there is also the pain of being judged and pitied for her appearance, of being dismissed as “less than.”

Women's lives are shaped by sexism and expectations. Disabled people's lives are shaped by ableism and a complete lack of expectations. But what happens when you're subjected to both sets of rules? This powerful, honest, hilarious, and furious memoir from journalist and advocate Lucy Webster looks at life at the intersection; the struggles, the joys, and the unseen realities of being a disabled woman.

In 1895, a specialist straps five-year-old Katharine Hathaway, then suffering from spinal tuberculosis, to a board with halters and pulleys in a failed attempt to prevent her from becoming a “hunchback” like the “little locksmith” who does odd jobs at her family’s home. Forced to endure her confinement for ten years, Katharine remains immobile until age fifteen, only to find that none of it has prevented her from developing a deformity of her own.

Christopher Reeve has mastered the art of turning the impossible into the inevitable. In Nothing Is Impossible, Reeve shows that we are all capable of overcoming seemingly insurmountable hardships. Published on the eve of both his fiftieth birthday and the seventh anniversary of his spinal cord injury, Nothing Is Impossible reminds us that life is not to be taken for granted but to be lived fully with zeal, curiosity, and gratitude.

In 2011, three years after leaving the NFL, Steve Gleason was diagnosed with ALS, a terminal disease that paralyzes the entire body. Doctors gave him three years to live. He was thirty-four years old. As Steve says, he is now ten years past his expiration date. His memoir is the chronicle of a remarkable life, one filled with optimism and joy, despite the trauma and pain and despair he has experienced.

This groundbreaking memoir offers a glimpse into an activist's journey to finding and cultivating community and the continued fight for disability justice, from the founder and director of the Disability Visibility Project.

Oksana Masters was born in Ukraine—in the shadow of Chernobyl—seemingly with the odds stacked against her. She came into the world with one kidney, a partial stomach, six toes on each foot, webbed fingers, no right bicep, and no thumbs. Her left leg was six inches shorter than her right, and she was missing both tibias.

A riveting and candid account of a young journalist's awakening to a life of chronic illness, weaving together her personal story with reporting to shed light on how Americans live with long-term diagnoses today.

On a hot July afternoon, Joni Eareckson Tada's life was dramatically altered in a split second. A reckless dive into shallow water took an athletic young woman from health and success to life as a quadriplegic in a wheelchair. In the 45 years since the release of this book - which has more than five million copies in print in over 40 languages - Joni's earnest struggle to find hope has resonated with millions of listeners around the world.

In 1958, Riva is one of the first children born with spina bifida to survive. Her parents and doctors are determined to "fix" her, sending the message over and over again that she is broken. That she will never have a job, a romantic relationship, or an independent life. Enduring countless medical interventions, Riva tries her best to be a good girl and a good patient in the quest to be cured. Everything changes when, as an adult, Riva is invited to join a group of artists, writers, and performers who are building Disability Culture.

Abigail Heringer made her television debut as an instant fan-favorite on season 25 of The Bachelor. Stepping out of the limousine, she approached her bachelor with a playful declaration: she would be staring at his lips all night for two compelling reasons—her profound deafness since birth, and because he had some nice lips! But Abigail’s journey wasn’t always marked by such confidence. Growing up deaf and introverted, she dreaded being the center of attention, fearing her disability would burden those around her.

In this poignant and uplifting memoir, Dancing with the Stars sensation Amy Purdy reveals the story of how losing her legs led her to find a spiritual path. When the Las Vegas native was just nineteen, she came down with bacterial meningitis and was given less than a two percent chance of survival. In a near-death experience, she saw three figures who told her: “You can come with us, or you can stay. No matter what happens in your life, it's all going to make sense in the end." In that moment, Amy chose to live.

There Plant Eyes probes the ways in which blindness has shaped our ocularcentric culture, challenging deeply ingrained ideas about what it means to be “blind”. For millennia, blind­ness has been used to signify such things as thoughtlessness (“blind faith”), irrationality (“blind rage”), and unconsciousness (“blind evolution”). But at the same time, blind people have been othered as the recipients of special powers as compensation for lost sight (from the poetic gifts of John Milton to the heightened senses of the comic book hero Daredevil).