Disability Memoir

Carly-Jay Metcalfe was born with cystic fibrosis, survived a double-lung transplant at the age of 21 and faced a rare cancer at the age of 30. What she has endured should have killed her, but her humour, courage and optimism became her best survival skills. From her hospitalised childhood to her many friendships, loves and losses, Metcalfe shares the fickle nature of life with candour and warmth. She writes with compelling insight about organ donation, opioid addiction and survivor's guilt, while still managing to find joy amongst the wreckage.

Imagine if you were to lose your sight? Would it feel like the end of everything worthwhile? There is a way forward. Once you realise that blindness is a word and not a sentence, life takes on a new perspective. There are ways to thrive with vision loss. This book reveals how to turn such a life-challenge into a lifestyle you can fully manage and enjoy.

In a candid and witty memoir, Jodi recounts how her life was transformed when, as a 33-year-old wife and mother, she was diagnosed with an inoperable brain tumor. Unwilling to accept her new fate, Jodi's family searches for a doctor who will join their fight against the odds.

We think of Alexander Graham Bell as the inventor of the telephone, but that’s not how he saw his own career. As the son of a deaf woman and, later, husband to another, his goal in life from adolescence was to teach deaf students to speak. Even his tinkering sprang from his teaching work; the telephone had its origins as a speech reading machine. The Invention of Miracles takes a new look at an American icon, revealing the astonishing true genesis of the telephone and its connection to another, far more disturbing legacy of Bell’s.

At the age of 27, Whitney Dafoe was forced to give up his life as a photographer who traveled the world. Bit by bit a mysterious illness stole away the pieces of his life: First, it took the strength of his legs, then his voice, and his ability to eat. The Puzzle Solver follows several years in which he desperately sought answers. Whitney's father, Ron Davis, PhD, a world-class geneticist at Stanford University whose legendary research helped crack the code of DNA, suddenly changed the course of his career in a race against time to cure his son's debilitating condition.

Eric Davidson was a beautiful, fair-haired toddler when the Halifax Explosion struck, killing almost 2,000 people and seriously injuring thousands of others. Eric lost both eyes - a tragedy that his mother never fully recovered from. Eric, however, was positive and energetic. He also developed a fascination with cars and how they worked, and he later decided, against all likelihood, to become a mechanic. Assisted by his brothers, who read to him from manuals, he worked hard, passed examinations, and carved out a decades-long career.

Jeremy Schreiber was on top of the world—athletic, newly married, successful. And then something went terribly wrong. In this moving memoir, he shares his journey after he received a terrifying diagnosis: ALS. As the devastating disease robbed him of movement and speech, he was abandoned by his wife and betrayed by a society that shuns people with disabilities. But it’s not all doom and gloom. He found love, support, and a powerful purpose. While fighting for his independence and then for his life, Jeremy gave his all to the ALS and disability communities.

Thirty-four-year-old Rebecca Alexander is a psychotherapist, a spin instructor, a volunteer, and an athlete. She is also almost completely blind, with significantly deteriorated hearing. Not Fade Away is a deeply moving exploration of the obstacles we all face-physical, psychological, and philosophical. Rebecca's story is an exquisite reminder to live each day to its fullest.

Sipping Dom Pérignon Through a Straw is an inspirational and truly intersectional memoir from global humanitarian and disability-justice advocate Eddie Ndopu—a queer, Black wheelchair user. Ndopu’s incredible story begins with his childhood being raised by a single mother fleeing Apartheid South Africa before rocketing through every boundary put in front of him—because of his disability, his ethnicity, and his sexuality—to eventually hold official positions at both the United Nations and the World Economic Forum.

Le 8 décembre 1995, à la suite d’un accident vasculaire cérébral, Jean-Dominique Bauby est plongé dans un coma profond. Quand il en sort, toutes ses fonctions motrices sont détériorées. Atteint de ce qu'on appelle le " locked-in syndrome ", il est littéralement enfermé à l'intérieur de lui-même ; il ne peut plus bouger, manger, parler ou même simplement respirer sans assistance. Dans ce corps inerte, seul un œil bouge.

In the fall of 1988, Sue Miller found herself caring for her father as he slipped into the grasp of Alzheimer's disease. She was, she claims, perhaps the least constitutionally suited of all her siblings to be in the role in which she suddenly found herself, and in The Story of My Father she grapples with the haunting memories of those final months and the larger narrative of her father's life.

After three long years, Johnny’s young son, Sam, experiences a breakthrough. But even as calm comes to Sam's body, the illness makes off with his mind. Violent outbursts, strange obsessions - what has happened to his sweet boy? Cinematically weaving three generations of fatherhood, Remember, You’re the Greatest is a memoir of hard questions. Of unexpected joy in the ache of mystery. And the power of a special needs child to teach a father what greatness truly looks like.

Waking one morning to find he has little to no motor control, Jamieson only wants the world to return to how it had been before. After a diagnosis of multiple sclerosis, he thinks his life is over. What he doesn’t know is that it’s only just begun. Trying to navigate through the world in a body he no longer understands, Jamieson must travel through the dark forest of depression while waging a constant battle against himself. Over time, he learns what he’s truly capable of and what it actually means to be courageous.

In 2004, Mindy begins hearing a voice in her head, someone she calls "Joe," and sees signs everywhere that hold mysterious clues only for her. What she doesn't know at the time is that she is experiencing her first schizophrenic episode. For the next decade, she oscillates between two worlds -- a normal life and a secret voice-filled one -- until she begins the journey of merging her two worlds back into one. Becoming Whole documents her onset of schizophrenia and the subsequent years spent learning about it and how to live with it. It is her journey to find solace.

Sandra Allen did not know their uncle Bob very well. As a child, Sandy had been told Bob was “crazy”, that he had spent time in mental hospitals while growing up in Berkeley in the '60s and '70s. But Bob had lived a hermetic life in a remote part of California for longer than Sandy had been alive, and what little Sandy knew of him came from rare family reunions or odd, infrequent phone calls. Then in 2009, Bob mailed Sandy his autobiography.

Having grown up on their great-grandfather’s stories, Royd Tolkien and his brother, Mike, have always enjoyed adventures. So when Mike is diagnosed with motor neurone disease, also known as ALS, the brothers decide to use the time they have left to tick off as much as possible from Mike’s bucket list, from remote camping in Norway to travelling through Royd’s beloved New Zealand. Yet, when Royd loses Mike, he discovers his brother had been writing another kind of bucket list: 50 things he wanted Royd to do after his death.

An unflinching and luminous memoir that explores a father’s philosophical transformation when he must reconsider the questions what makes us human? and whose life is worth living? Before becoming a father, Chris Gabbard was a fast-track academic finishing his doctoral dissertation at Stanford. A disciple of Enlightenment thinkers, he was a devotee of reason, believed in the reliability of science, and lived by the dictum that an unexamined life is not worth living. That is, until his son August was born.

This book is written by the husband of a stroke victim. The husband is the caregiver of 25 years to his wife in helping her in her battle to recovery from a massive stroke. It describes some of her challenges over the years and the tools that she has used to meet these challenges to make her life easier in the world that she knows of it today.

Find Another Dream, written and performed by Maysoon Zayid, is the true story of how a Muslim Jersey girl with cerebral palsy creates her own path to stardom. The daughter of Palestinian immigrants, as a child she dreamed of one day dancing on Broadway. As a teen, a bubble-bursting choreographer told her to “find another dream”, so she set her sights on becoming a soap star, undeterred by the fact that the odds were against her.

There Plant Eyes probes the ways in which blindness has shaped our ocularcentric culture, challenging deeply ingrained ideas about what it means to be “blind”. For millennia, blind­ness has been used to signify such things as thoughtlessness (“blind faith”), irrationality (“blind rage”), and unconsciousness (“blind evolution”). But at the same time, blind people have been othered as the recipients of special powers as compensation for lost sight (from the poetic gifts of John Milton to the heightened senses of the comic book hero Daredevil).