Disability Memoir

Due to horrible physical deformities, he spent much of his life as a fairground freak. He was hounded, persecuted, and starving, until his fortune changed and he was rescued, housed, and fed by the distinguished surgeon, Frederick Treves. The subject of several books, a Broadway hit, and a film, Joseph Merrick has become part of popular mythology. Here, in this fully revised edition containing much fresh information, are the true and un-romanticized facts of his life.

A powerful journey from star athlete to sudden paralysis to creative awakening, award-winning science-fiction writer Nnedi Okorafor shows that what we think are our limitations have the potential to become our greatest strengths.

Hilda’s family didn’t know she had muscular dystrophy. They just knew their preschooler was losing her ability to walk. But they were determined to find a cure. Being disabled in Cameroon meant not only obstacles to transport, but visits to diviners and evangelists, threats of sexual assault, discrimination, and a crisis of faith. Despite the hardship Hilda has faced, her family’s unwavering support and God’s unwavering grace have helped her persevere to become a national broadcaster.

"La situazione di Cesare è molto grave. È giusto che te lo dica. Fate tutto quello che potete con lui, non rimandate." La storia di Valentina, Federico, Ale, Terry e Cece si è interrotta qui, tra le mura di un ospedale e la paura di non avere più tempo. Loro, però, si erano Fatti una promessa: anche nei momenti più bui, tra le ombre, avrebbero cercato la felicità. Così, tra feste di compleanno e gite in canoa, la loro storia continua, e con l’estate ormai alle porte il loro viaggio diventa molto di più.

Told with shocking honesty and in unbelievable detail, Bipolar: A Gift of Thorns is a profoundly insightful memoir that shines a light on one woman’s courageous journey and the stigma of bipolar disorder.

One afternoon, Emma Nadler gets a call from her daughter's doctor that changes her life forever. Faced with the realities of raising a child with a rare genetic condition, Nadler must confront her preconceptions of motherhood and her perfectionistic beliefs. Nadler—who also happens to be a psychotherapist—offers a rare window into the unconventional ways she and her family adapt to their improbable path. Every relationship in her life—with herself, her husband, children, friends, and even clients—is reimagined as she navigates the heartbreak and hilarity of her daily life.

Through the intimate writing of critically acclaimed autistic author Kay Kerr, Love & Autism presents an uplifting celebration of neurodivergent love, the search for it and a deeper look into the lives of autistic Australians.

Adventurous international teacher, Amy Bovaird, is diagnosed with Retinitis Pigmentosa, a hereditary eye disease that will blind her. In spite of that, she manages to continue teaching overseas. Then her father's final illness brings her back home for good. There, friends and acquaintances begin to notice that she doesn't always recognize them and sometimes stumbles as if drunk! Insensitive students ridicule her in the classroom.

A story about a dead man walking. A journey through depression, happiness, divorce, death, survival, and so much more. Stories about life as a chef and life with a traumatic brain injury (TBI). These are the real stories about the difficult process of recovery from a motorcycle accident and how life continues afterward.

In this powerful new history, New York Times bestselling author Max Wallace draws on groundbreaking research to reframe Helen Keller’s journey after the miracle at the water pump, vividly bringing to light her rarely discussed, lifelong fight for social justice across gender, class, race, and ability. Peeling back the curtain that obscured Keller’s political crusades in favor of her “inspirational” childhood, After the Miracle chronicles the complete legacy of one of the 20th century’s most extraordinary figures.

When Pepper Stetler was told that her daughter who has Down Syndrome would be regularly required to take IQ tests to secure support in school, she asked a simple question: why? In questioning the authority and relevance of the test, Stetler sets herself on a winding investigation into how the IQ test came to be the irrefutable standard for measuring intelligence. The unsettling history causes Stetler to wonder what influence this test will have over her daughter's future and whether Louisa should be taking it at all.

The Umbrella Picker tells the true story of a woman who was lost for 45 years until she learned that she is Autistic. After a long and relentless journey of searching for answers, the hand of fate finally revealed to her what she had waited a lifetime for. Learning she was Autistic was life changing. She is no longer lost, and having found her own, unique way, Jane has written the (brutally honest!) book she wished was available to her years earlier.

This is a very real and bloody look at the journey I made from 19 to 29. I will walk you through the icy halls of drug addiction and dealing, college in Santa Barbara (specifically Isla Vista), depression, suicide, and overdoses. The second part of the book I could only write just recently, as I was, by the Grace of God, able to live the life I knew I always should. Please come with me through the very real and honest look at what it was like to be a young man in the 2010s and how through a million close calls, I finally found life.

This book chronicles the journey of Eritrean-born Joseph Woldu. As a child refugee, he found himself having to adapt to changes of place, language, and customs; then as a man forced to relearn much of the same after involvement in a disastrous accident two days before the 9/11 terrorist attacks. What makes Joseph's story so incredible is not that he survived change and tragedy, but how he continually found the strength to improve himself and his circumstances. His story reflects the importance good relationships play in our lives.

A profoundly beautiful memoir about disability, difference, and living as a vulnerable body. Jan Grue had just become a father when he inherited a stack of his childhood medical records. Following a diagnosis of spinal muscular atrophy at the age of three, the raft of doctors' notes, clinical descriptions and case histories defined his body as defective and his future as bleak and limited. They conjured a childhood nothing like the one he remembered, that failed to anticipate the life he lived now. "I Live a Life Like Yours" is Grue's beautiful, groundbreaking search for a literary language that could better tell his story.

Tiffani, the author, becomes an intimate friend as you speaks to you about her deepest thoughts, fears, and worries. Her love, strength, honesty, and determination to care for her family at all costs is inspiring.

Half a world away from home in 1976, 18-year old Anne B. Thomas awakens on the side of a two-lane road paralyzed from the chest down. Fast forward through a rigorous year of physical therapy to when her doctor gives her an ominous warning: “You will live a long time and be a burden on your family for the rest of your life unless you check yourself into a nursing home”.

A displaced person (now called refugee or economic migrant), aged 19, escapes in 1950 from behind the Iron Curtain with his mother's and her friends' help. He maneuvers through minefields and swims across icy waters and past Russian patrols to reach Salzburg and then Switzerland, hoping to catch up with his brother (who by then had migrated to Australia). He makes it back again, falls in love, but then emigrates to Canada to start a new life, gets to University in Toronto, and is then joined by his mother after escaping in 1956 during the Hungarian uprising.

At age 16, James Tate Hill was diagnosed with Leber’s hereditary optic neuropathy, a condition that left him legally blind. After high school friends stopped calling and a disability counselor advised him to aim for C's in his classes, he used his remaining blurry peripheral vision to pretend he could still see. Feigning eye contact, memorizing common routes, filling shelves with paperbacks he read via tape cassettes, he organized his life around passing for sighted.

Jan Grue was diagnosed with spinal muscular atrophy at the age of three. Shifting between specific periods of his life - his youth with his parents and sister in Norway; his years of study in Berkeley, St. Petersburg, and Amsterdam; and his current life as a professor, husband, and father - he intersperses these histories with elegant, astonishingly wise reflections on the world, social structures, disability, loss, relationships, and the body: in short, on what it means to be human.