Disability Memoir

Henry Markram is the Elon Musk of neuroscience, the man behind the billion-dollar Blue Brain Project to build a supercomputer model of the brain. He has set the goal of decoding all disturbances of the mind within a generation. This quest is personal for him. The driving force behind his grand ambition has been his son Kai, who has autism. Raising Kai made Henry Markram question all that he thought he knew about neuroscience, and then inspired his groundbreaking research that would upend the conventional wisdom about autism, expressed in his now-famous theory of Intense World Syndrome.

A powerful journey from star athlete to sudden paralysis to creative awakening, award-winning science-fiction writer Nnedi Okorafor shows that what we think are our limitations have the potential to become our greatest strengths.

An unflinching and luminous memoir that explores a father’s philosophical transformation when he must reconsider the questions what makes us human? and whose life is worth living? Before becoming a father, Chris Gabbard was a fast-track academic finishing his doctoral dissertation at Stanford. A disciple of Enlightenment thinkers, he was a devotee of reason, believed in the reliability of science, and lived by the dictum that an unexamined life is not worth living. That is, until his son August was born.

Before a surfing accident caused 33-year-old Devon Raney to lose all but 15 percent of his vision, he had already lived an extraordinary life. Time and again, he'd gone against the grain to maximize time for his passions - surfing, skateboarding, and snowboarding - bringing him into the direct path of colorful characters, unexpected adventures, and even the occasional brush with death. Through it all, Devon's commitment to outdoor adventure never wavered.

Most people know life will not necessarily go as they planned. But what do we do when nothing goes as we had hoped? How do we cope with unpredictable changes in body and spirit - changes that require constant shifting of our view of ourself, other people, and the world? Jenni, diagnosed in 2009 with Amyotrophic Lateral Sclerosis (ALS, or Lou Gehrig’s Disease), has been forced to find answers to these questions every day.

In April of 2004, the long downward spiraling of Amy Bingaman's mental illness could no longer be hidden or ignored much less written off as a side-product of a colorful and quirky character. With no family able to help and no resources, she was involuntarily locked up in the draconian, archaic labyrinth that is the Wyoming Mental Health System. Armed with only a pocket dictionary and any paper she could find to write on, Amy wrote not only as a journal but at times as her only coping mechanism to salvage what was left of a breaking mind in a love/hate relationship with her alter-ego.

Johann König verliert als Kind durch einen Unfall fast vollständig seine Sehkraft. Wie kann man sich Kunst erschließen, wenn man sich auf seine Augen nicht verlassen kann? Was ist Sehen überhaupt, wenn die Welt um einen herum verschwimmt? In seinem Buch "Blinder Galerist" beschreibt Johann König, wie es ihm gelang, die Welt und die Kunst neu wahrzunehmen. "Die Bilder, die im Kopf entstehen, sind genauso wichtig wie die Bilder an der Wand".

Given an epilepsy diagnosis at age 49, Linda’s once solid life fell apart. Her seizures uncontrolled by medications and with no access to treatment, Linda had no choice but to seek help in another province. From 2016 to 2018, she travelled between BC and AB, spending up to four weeks in a hospital apart from family and friends.

Left partially paralysed below the rib cage by polio, Anne Wafula Strike was forced to flee her native Kenyan village, moving across the country with her family. After overcoming additional adversity, including the loss of her mother and ableist prejudice, Anne moved to the UK, where she discovered her talent for wheelchair racing. The first East African to compete in her sport, representing Kenya in the 2004 Paralympics before joining Paralympics GB, Anne is now a fierce advocate for the promotion of the games around the world, and a champion of disabled rights.

On paper, Coach Rob Mendez sounds like any other football coach on any other field across America: passionate, authoritative, knowledgeable. But he’s unlike any other coach you know - in fact, he’s probably unlike any other person you know. Born with an extraordinarily rare condition called tetra-Amelia syndrome, Rob has no arms or legs. He moves with the assistance of a custom-made, motorized wheelchair that he operates with his back and shoulders.

As a child, Matt Hay didn’t know his hearing wasn’t the way everyone else processed sound—because of the workarounds he did to fit in, even the school nurse didn’t catch his condition at the annual hearing and vision checks. But by the time he was a prospective college student and couldn’t pass the entrance requirements for West Point, Hay’s condition, generated by a tumor, was unavoidable: his hearing was going, and fast. A personal soundtrack was Hay’s determined compensation for his condition.

A serious illness destroyed Helen Keller's sight and hearing before she reached the age of two. At seven, she was introduced to Ann Sullivan, the beloved teacher and friend who helped Helen to make contact with her world. Through sheer determination and resolve, Helen learned to speak, read, and write, and prepared herself for entry into prep school by the age of 16. She later enrolled at Radcliffe and graduated with honors. Her motto: "There are no handicaps, only challenges."

This is a very real and bloody look at the journey I made from 19 to 29. I will walk you through the icy halls of drug addiction and dealing, college in Santa Barbara (specifically Isla Vista), depression, suicide, and overdoses. The second part of the book I could only write just recently, as I was, by the Grace of God, able to live the life I knew I always should. Please come with me through the very real and honest look at what it was like to be a young man in the 2010s and how through a million close calls, I finally found life.

This book chronicles the journey of Eritrean-born Joseph Woldu. As a child refugee, he found himself having to adapt to changes of place, language, and customs; then as a man forced to relearn much of the same after involvement in a disastrous accident two days before the 9/11 terrorist attacks. What makes Joseph's story so incredible is not that he survived change and tragedy, but how he continually found the strength to improve himself and his circumstances. His story reflects the importance good relationships play in our lives.

A profoundly beautiful memoir about disability, difference, and living as a vulnerable body. Jan Grue had just become a father when he inherited a stack of his childhood medical records. Following a diagnosis of spinal muscular atrophy at the age of three, the raft of doctors' notes, clinical descriptions and case histories defined his body as defective and his future as bleak and limited. They conjured a childhood nothing like the one he remembered, that failed to anticipate the life he lived now. "I Live a Life Like Yours" is Grue's beautiful, groundbreaking search for a literary language that could better tell his story.

Tiffani, the author, becomes an intimate friend as you speaks to you about her deepest thoughts, fears, and worries. Her love, strength, honesty, and determination to care for her family at all costs is inspiring.

Half a world away from home in 1976, 18-year old Anne B. Thomas awakens on the side of a two-lane road paralyzed from the chest down. Fast forward through a rigorous year of physical therapy to when her doctor gives her an ominous warning: “You will live a long time and be a burden on your family for the rest of your life unless you check yourself into a nursing home”.

A displaced person (now called refugee or economic migrant), aged 19, escapes in 1950 from behind the Iron Curtain with his mother's and her friends' help. He maneuvers through minefields and swims across icy waters and past Russian patrols to reach Salzburg and then Switzerland, hoping to catch up with his brother (who by then had migrated to Australia). He makes it back again, falls in love, but then emigrates to Canada to start a new life, gets to University in Toronto, and is then joined by his mother after escaping in 1956 during the Hungarian uprising.

At age 16, James Tate Hill was diagnosed with Leber’s hereditary optic neuropathy, a condition that left him legally blind. After high school friends stopped calling and a disability counselor advised him to aim for C's in his classes, he used his remaining blurry peripheral vision to pretend he could still see. Feigning eye contact, memorizing common routes, filling shelves with paperbacks he read via tape cassettes, he organized his life around passing for sighted.

Jan Grue was diagnosed with spinal muscular atrophy at the age of three. Shifting between specific periods of his life - his youth with his parents and sister in Norway; his years of study in Berkeley, St. Petersburg, and Amsterdam; and his current life as a professor, husband, and father - he intersperses these histories with elegant, astonishingly wise reflections on the world, social structures, disability, loss, relationships, and the body: in short, on what it means to be human.