Disability Memoir

From our family to yours, here are humorous stories from our crazy past, mixed with ideas for handling some of the issues facing a family raising kids with autism. Inside you will find ideas for stimming aids, dietary help, and even links to companies who hire adults with autism. Humor, hope, and help for families like yours traveling Through the Wormhole.

Penny Fisher is on vacation with her family when she becomes ill and disoriented. An urgent care facility reads her temperature at 104.5 and sends her by stretcher to the emergency room. There, doctors find nothing wrong, and they send her home. Twenty-four hours later, Penny is on life support and her husband is told to say his goodbyes.

I Sverige finns mer än en miljon anhöriga som vårdar eller stöttar en närstående med fysisk eller psykisk ohälsa eller funktionsnedsättning. Även om var och en har sin unika historia är det mycket som förenar oss. Anhörig i ett hav av känslor ger röst åt våra berättelser. Om ovisshet och oro, otillräcklighet och frustration, skuld och skam, sorg och maktlöshet. En situation som kan utveckla oss som människor, men också utmana och slita ut oss. Det handlar om avgrunder och guppande känslohav, men också om stillsamma solgläntor och fascinerande utsiktsplatser.

"Det var inget jag hade valt, detta att inte höra ihop med dem. Det var bara så att jag inte gjorde det. Jag kunde inte ändra på det och jag visste inte vad en människa var meningen att vara. Inuti kände jag mig ledsen. Varför blev de alltid så arga? Varför begrep de inte?". Redan i tidig ålder insåg Gunilla Gerland att hon inte var som alla andra. Hon ville gärna röra vid saker som var böjda, undvek helst att tugga maten och hade ett stort behov av att få vara ifred.

Lissa Bachner was born with a passion for horses and won her first blue ribbon at age five. Other awards would follow as a young rider, and for years Lissa trained with jumpers, tackling more difficult leaps, and working to perfect her ride. When blindness struck in her teens, it appeared her passion for riding would come to an end. How could she jump hurdles when she could barely navigate through her own home? But success, trust, and love came to Lissa when her trainer convinced her to buy a "diamond in the rough" from Germany.

At 90 years old and blind, Lorraine decided there was never a better time to get started as a writer. Juggling career, marriage, motherhood, and staying a vibrant senior demands constant skill upgrading. Lorraine’s early childhood development expertise, for instance, was perfected during her 81 months of pregnancy. As a first generation of Russian immigrant parents, Lorraine’s daily walk with God is a testament to her belief and love-filled life. She says, “Hope is not a plan, but it is a promise that’s given when faith and belief become action.”

At the height of popularity for radio stations and DJs in the '70s and '80s, Curry blazed a trail for himself as “Kid” Curry. His iconic “Bed Check” segment helped propel him to star status in Miami. It followed him during his 20-year path to the dream job of Major Market program director. The perks of the job included hanging out with music legends, being invited to the White House, meeting Johnny U and a Watergate burglar, traveling around the world to find the next “number one” song and, the best part, helping listeners in need.

Emily Owen was a highly intelligent teenager who was also athletic and a skilled musician. Tragically, in her late teens she was diagnosed as suffering from Neurofibromatosis Type 2 (NF2). Since then, Emily has survived many complicated surgical procedures, been close to death, and seen the gradual erosion of all the abilities that defined her personality including the total loss of her hearing. Despite this, she has a remarkable sense of humor and has coped with everything she has been through due to her strong Christian faith, her supportive family, and indomitable personality.

Mit drei Jahren erlitt Ingrid Mundschin-Bohn eine Hirnhautentzündung, an der sie fast gestorben wäre. In Deutschland, wo sie als Tochter eines deutschen Vaters und einer Schweizer Mutter aufwuchs, war gerade der Krieg zu Ende gegangen, die Medikamente waren immer noch knapp, und die Ärzte wollten keine Antibiotika verschwenden an einem Kind, das in ihren Augen bereits abgeschrieben war. Aber Ingrid Mundschin ließ sich nicht abschreiben, sondern wuchs zu einer lebensfrohen und selbstbewussten Frau heran.

Alle hören auf "Daffy", nur Daffy nicht: Abenteuer Blindenführhündin - von Jennifer Mai, gesprochen von der Autorin. Alle hören auf "Daffy", nur Daffy nicht. Vor allem wenn die ansonsten so zuverlässige Blindenführhündin gerade etwas Schmackhaftes im Freilauf entdeckt hat, kostet dies Jenny, ihrer Arbeitgeberin, viel Geduld. Die hohen Erwartungen der Passanten sind bald noch schlimmer als Daffys Dickkopf. Denn die Leute vergessen eines nur allzu gern: Ein Blindenführhund macht einen verantwortungsvollen Job, allerdings ist und bleibt er immer noch ein Tier.

An Unexpected Story of Hope & Perserverance: As a young child, something was wrong with Michael. He lacked basic motor skills and was unable to follow simple instructions or answer questions. Testing revealed a diagnosis of autism with a low IQ. Experts insisted that leading an independent life would be impossible for him...and school was not an option.

Rheumatoid arthritis was taking over my life. I could barely walk, dress myself, and perform simple daily tasks. I did everything I could to find healing. I tried all of the special diets; I was on all of the medications. Something wasn't right, and I was just getting sicker. This audiobook is about healing from the inside out. Your body is your greatest gift, dearest friend. The only difference between having a body that is your enemy and a body that is your friend is learning to speak its language. You can overcome chronic pain! You are worthy of a great life full of health and happiness!

My neurologist stunned me when she said, “You have multiple sclerosis, and looking at your MRI, you are a walking time bomb. You may not have symptoms today, but it’s just a matter of time.” As the MS tightened its grip on my body, I plunged deep into a myriad of strange feelings—denial and depression for over a year.

Public Hostage, Public Ransom starts with the autobiographical story of William Bronston, the activist physician whose early professional California training steels him with a deep moral, professional, and cultural bond to the huge 6,000-person disabled population he encounters incarcerated in Willowbrook State School in Staten Island, NY, on whose behalf he daily battles to humanize and ultimately catalyze a federal class action lawsuit against the state to close the death-making institution.

My journey with mental illness, specifically bipolar disorder, has woven itself throughout my life for 40 years. Whether it was active, or dormant, it has always lurked in the shadows. But, this illness, like any illness, can be managed and maintained.This story is particularly relevant for today's society. It is our charge to know a segment of our society who, for the most part, is misunderstood. When the Brakes Fail provides a forum for understanding the myths, the injustices, and the stigma of mental illness.

Sam always knew he was starting life on the back foot. When his parents split, Sam, his mother and his brother had to learn to survive in a world not built for single-parent families. Add to that Sam's diagnosis with a form of dwarfism and the odds seemed stacked against them. As surgeons kept breaking and resetting Sam's legs in attempts to keep him walking, disability and poverty collided, and it took all the family's strength not to crumple in the impact. In Broke, lawyer and disability advocate Sam Drummond weaves a poignant, stirring and deeply compassionate tale of life on the fringes.

Bonner Paddock grew up just wanting to be ordinary. Diagnosed with cerebral palsy at age eleven, he guarded the truth about his health, building a normal life and keeping his secret from everyone—most of all himself—for the next eighteen years. But the sudden death of a friend’s young son due to cerebral palsy forced Bonner to reevaluate who he was and spurred him to pursue one breathtaking experience after another.

This book is about the life of the author. It focuses on her faith, her hope, and her endurance during the years of her illness. In this true story, you will learn the how and why about the effects that changed her family’s life—the author’s Crohn’s disease, the 14 blood clots, toxic gut syndrome, colitis, tumors, ulcers, vertigo, weight gain and loss, pregnancies, the many surgeries, and how her body would not wake up after some of her surgeries.

Luisa L’Audace wächst als einziges behindertes Kind in ihrem Heimatdorf auf. Warum sie im Sportunterricht immer als Letzte gewählt wird, in der Pause nicht mitspielen soll und ihre Freundinnen plötzlich nicht mehr neben ihr sitzen wollen, versteht sie lange Zeit nicht. Während andere Kinder Freizeitbeschäftigungen nachgehen, verbringt Luisa viel Zeit in Krankenhäusern, bei Therapien und Spezialist*innen. Als sie mit 14 einen Rollstuhl bekommt, fühlt sie sich zum ersten Mal in ihrem Leben frei. Doch mit der neu gewonnenen Mobilität nehmen auch die Anfeindungen zu.

Si no es cada cuatro años que se celebran los paralímpicos, si no se acerca el Día Internacional de las pcd, cuando las marcas realizan acciones; si no es que el gobierno da beneficios fiscales para impulsar la inserción laboral de este grupo, el resto del tiempo las personas con discapacidad viven entre las sombras.