Disability Politics

In this collection of essays, Lambda Literary Award-winning writer and longtime activist and performance artist Leah Lakshmi Piepzna-Samarasinha explores the politics and realities of disability justice, a movement that centers the lives and leadership of sick and disabled queer, trans, Black, and brown people, with knowledge and gifts for all. Care Work is a mapping of access as radical love, a celebration of the work that sick and disabled queer/people of color are doing to find each other and to build power and community.

Now, as more families like Michael's are affected by a growing number of disorders and difficulties ranging from autism to food allergies, the need for programs and paradigm shifts is greater than ever. Beates thus seeks to motivate churches to pursue ministry to children and adults with developmental disabilities. He works through key Bible passages on brokenness and disability to develop helpful principles for believers and churches, teaching them first to embrace their own brokenness and then to embrace those who are more physically and visibly broken.

In Unmasking Autism, Dr. Devon Price shares their personal experience with masking and blends history, social science research, prescriptions, and personal profiles to tell a story of neurodivergence that has thus far been dominated by those on the outside looking in. For Dr. Price and many others, Autism is a deep source of uniqueness and beauty. Unfortunately, living in a neurotypical world means it can also be a source of incredible alienation and pain.

One in five people in the United States lives with a disability. Some disabilities are visible, others less apparent - but all are underrepresented in media and popular culture. Now, just in time for the 30th anniversary of the Americans with Disabilities Act, activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people.

What is autism: a lifelong disability or a naturally occurring form of cognitive difference akin to certain forms of genius? In truth, it is both of these things and more - and the future of our society depends on our understanding it. Wired reporter Steve Silberman unearths the secret history of autism, long suppressed by the same clinicians who became famous for discovering it, and finds surprising answers to the crucial question of why the number of diagnoses has soared in recent years.

A quarter of a century after her memoir, Thinking in Pictures, forever changed how the world understood autism, Temple Grandin—the “anthropologist from Mars,” as Oliver Sacks dubbed her—transforms our awareness of the different ways our brains are wired. Do you have a keen sense of direction, a love of puzzles, the ability to assemble IKEA furniture without crying? You are likely a visual thinker.

An approachable guide to being a thoughtful, informed ally to disabled people, with actionable steps for what to say and do (and what not to do) and how you can help make the world a more accessible, inclusive place.

Lamar Hardwick was thirty-six years old when he found out he was on the autism spectrum. While this revelation helped him understand and process his own experience, it also prompted a difficult re-evaluation of who he was as a person. And as a pastor, it started him on a new path of considering the way disabled people are treated in the church. Disability and the Church is a practical and theological reconsideration of the church's responsibilities to the disabled community.

For hundreds of years, humans and animals have had special bonds with each other. We've lived side-by-side through thick and thin - these relationships are not just about raising pets and farm animals. In Animal Kind, Emma Lock of YouTube fame shares stories of the incredible ways that animals keep us healthy and happy, physically and mentally. You'll be inspired by the tales of remarkable recovery, from vision-impaired individuals who have gained independence with the help of seeing-eye dogs, to the woman who found new life as an equestrian champion after an arm amputation.

There's nothing more frustrating than watching your bright, talented son or daughter struggle with everyday tasks like finishing homework, putting away toys, or following instructions at school. Your "smart but scattered" child might also have trouble coping with disappointment or managing anger. Drs. Peg Dawson and Richard Guare have great news: There's a lot you can do to help.

First published in 1999, the groundbreaking Exile and Pride is essential to the history and future of disability politics. Eli Clare's revelatory writing about his experiences as a white disabled genderqueer activist/writer established him as one of the leading writers on the intersections of queerness and disability and permanently changed the landscape of disability politics and queer liberation.

In Bodyminds Reimagined Sami Schalk traces how Black women's speculative fiction complicates the understanding of bodyminds - the intertwinement of the mental and the physical - in the context of race, gender, and (dis)ability. Bridging Black feminist theory with disability studies, Schalk demonstrates that this genre's political potential lies in the authors' creation of bodyminds that transcend reality's limitations.

A brilliant and utterly original thinker, Andrew Solomon's journey began from his experience of being the gay child of straight parents. He wondered how other families accommodate children who have a variety of differences: families of people who are deaf, who are dwarfs, who have Down syndrome, who have autism, who have schizophrenia, who have multiple severe disabilities, who are prodigies, who commit crimes, who are transgender.

In the wake of the 2014 Ferguson riots, and sick with a chronic condition that rendered them housebound, Johanna Hedva turned to the page to ask: How do you throw a brick through the window of a bank if you can’t get out of bed? It was not long before this essay, “Sick Woman Theory”, became a seminal work on disability, because in reframing illness as not just a biological experience but a social one, Hedva argues that under capitalism—a system that limits our worth to the productivity of our bodies—we must reach for the revolutionary act of caring for ourselves and others.

As a senior non-commissioned officer of Delta Force, the most elite and secretive special operations unit in the US military, Command Sergeant Major Tom Satterly fought some of this country's most fearsome enemies. Tom is a legend even among other Tier One special operators. Yet the enemy that cost him three marriages, and ruined his health physically and psychologically, existed in his brain. Told through Satterly's firsthand experiences, it also weaves in the reasons for his career-long battle against the most insidious enemy of all: post-traumatic stress.

We meet Andrew Leland as he’s suspended in the liminal state of the soon-to-be blind: he’s midway through his life with retinitis pigmentosa, a condition that ushers those who live with it from sightedness to blindness over years, even decades. He grew up with full vision, but starting in his teenage years, his sight began to degrade from the outside in. Soon— but without knowing exactly when—he will likely have no vision left. Full of apprehension but also dogged curiosity, Leland embarks on a sweeping exploration of the state of being that awaits him.

Writing about the rhythms and textures of what it means to live in a body that doesn’t fit, Rebekah reflects on everything from the complications of kindness and charity, living both independently and dependently, experiencing intimacy, and how the pervasiveness of ableism in our everyday media directly translates to everyday life. Disability affects all of us, directly or indirectly, at one point or another. Sitting Pretty challenges us as a society to be patient and vigilant, practical and imaginative, kind and relentless, as we set to work to write a different story.

From the Periphery consists of more than 30 first-person narratives of everyday people who describe what it's like to be treated differently by society because of their disabilities. The stories are raw and painful, but also surprisingly funny and deeply inspiring. The oral histories describe anger, independence, bigotry, solidarity, and love - in the family, at school, and at the workplace. From the Periphery will become a classic collection that increases understanding of the lived experiences of people with disabilities.

In 1997, Daniel Trush, a bright, active, outgoing twelve-year-old, collapsed on the basketball court and fell into a deep coma. Rushed to the hospital, he was found to have five previously undetected aneurysms in his brain. One had burst, causing a massive cerebral hemorrhage. While Daniel remained comatose, the uncontrolled pressure inside his skull caused him to suffer multiple strokes.

In The Future Is Disabled, Leah Laksmi Piepzna-Samarasinha asks some provocative questions: What if, in the near future, the majority of people will be disabled—and what if that's not a bad thing? And what if disability justice and disabled wisdom are crucial to creating a future in which it's possible to survive fascism, climate change, and pandemics and to bring about liberation?