Disability Politics

An unflinching and luminous memoir that explores a father’s philosophical transformation when he must reconsider the questions what makes us human? and whose life is worth living? Before becoming a father, Chris Gabbard was a fast-track academic finishing his doctoral dissertation at Stanford. A disciple of Enlightenment thinkers, he was a devotee of reason, believed in the reliability of science, and lived by the dictum that an unexamined life is not worth living. That is, until his son August was born.

Jeremy Schreiber was on top of the world—athletic, newly married, successful. And then something went terribly wrong. In this moving memoir, he shares his journey after he received a terrifying diagnosis: ALS. As the devastating disease robbed him of movement and speech, he was abandoned by his wife and betrayed by a society that shuns people with disabilities. But it’s not all doom and gloom. He found love, support, and a powerful purpose. While fighting for his independence and then for his life, Jeremy gave his all to the ALS and disability communities.

In Disability Pride, disabled journalist Ben Mattlin weaves together interviews and reportage to introduce a cavalcade of individuals, ideas, and events in engaging, fast-paced prose. He traces the generation that came of age after the ADA reshaped America, and how it is influencing the future. He documents how autistic self-advocacy and the neurodiversity movement upended views of those whose brains work differently. He lifts the veil on a thriving disability culture showing how the politics of beauty for those with marginalized body types and facial features is sparking widespread change.

Jessica Slice’s disability is exactly what her child needed as a newborn. After becoming disabled a handful of years prior from a shift in her autonomic nervous system, Jessica had done the hard work of disentangling her worth from productivity and learning how to prepare for an unpredictable and fragile world. Blending her experience of becoming disabled in adulthood and later becoming a parent with interviews, social research, and disability studies, Slice describes what the landscape is like for disabled parents.

In Imperfect, Jim Abbot retraces his remarkable journey. Born without a right hand, Jim Abbott as a boy dreamed of being a great athlete. Raised in Flint, Michigan, by parents who saw in his condition not a disability but an extraordinary opportunity, Jim became a two-sport standout in high school, then an ace pitcher for the University of Michigan. But his journey was only beginning. By 21, he’d won the gold medal game at the 1988 Olympics and cracked the starting rotation of the California Angels....

In this collection of beautiful and raw essays, Amy S. F. Lutz writes openly about her experience - the positive and the negative - as a mother of a now 21-year-old son with severe autism. Lutz's human emotion drives through each moment and challenges commonly held ideas that define autism either as a disease or as neurodiversity.

In the second edition of About Canada: Disability Rights, Deborah Stienstra explores the historical and current experiences of people with disabilities in Canada, as well as the policy and advocacy responses to these experiences. Stienstra demonstrates that disability rights enable people with disabilities to make decisions about their lives and future, claim rights on their own behalf, and participate actively in all areas of Canadian society.

Developing a cybernetic model of subjectivity and personhood that honors disability experiences to reconceptualize the category of the human.

An inclusive and empowering manifesto for change in women’s healthcare – exploring the systemic and deep rooted sexism within medicine, and offering actionable ways for women to advocate for ourselves and others and get the diagnosis and treatment we need. Have you ever been to a doctor and felt like you were being fobbed off or ignored? Did they belittle or overlook your concerns about your health? Ever been told you’re just ‘hormonal’? You’re not alone.

This book explores the sex lives of women with disabilities in Nepal, showing that many women suffer more than men despite prevailing disability policies that emphasize nondiscrimination against people with disabilities. It also argues that far from general perceptions of women as asexual, women with disabilities are capable of leading highly creative and fulfilling sexual lives.

If you grow up in a world where wrinkles are practically illegal, going bald is cause for a mental breakdown, and women over size zero are encouraged to shoot themselves (immediately), what the hell do you do if you're, gasp... disabled? Whatever body you’re born into, the pressure to be normal is everywhere. But have you ever met a normal person? What do they look like? Where do they live? What do they eat for breakfast? And what the **** does normal mean anyway?

Junius Wilson (1908-2001) spent 76 years at a state mental hospital in Goldsboro, North Carolina, including 6 in the criminal ward. He had never been declared insane by a medical professional or found guilty of any criminal charge. But he was deaf and Black in the Jim Crow South. Unspeakable is the story of his life.

In the beloved classic book The Way I See It, Dr. Temple Grandin gets to the real issues of autism — the ones parents, teachers, and individuals on the spectrum face every day. In this updated and expanded fifth edition, Temple offers helpful dos and don’ts, practical strategies, and try-it-now tips all based on her insider perspective and a great deal of research.

Boldly claiming a space in which people with disabilities can be seen and heard as they are-not as others perceive them - About Us captures the voices of a community that has for too long been stereotyped and misrepresented. Speaking not only to those with disabilities, but also to their families, coworkers, and support networks, the authors in About Us offer intimate stories of how they navigate a world not built for them.

Rosemary Mahoney tells the story of Braille Without Borders, the first school for the blind in Tibet, and of Sabriye Tenberken, the remarkable blind woman who founded the school. Fascinated and impressed by what she learned from the blind children of Tibet, Mahoney was moved to investigate further the cultural history of blindness. As part of her research, she spent three months teaching at Tenberken's international training center for blind adults in Kerala, India, an experience that reveals both the shocking oppression endured by the world's blind, as well as their great resilience.

In 2016, a United Nations report found the UK government culpable for ‘grave and systematic violations’ of disabled people’s rights. Since then, driven by the Tory government’s obsessive drive to slash public spending whilst scapegoating the most disadvantaged in society, the situation for disabled people in Britain has continued to deteriorate. Punitive welfare regimes, the removal of essential support and services and an ideological regime that seeks to deny disability has resulted in a situation described by the UN as a ‘human catastrophe’.

What would it be like to see everyone as a friend? Twelve-year-old Eli D'Angelo has a genetic disorder that obliterates social inhibitions, making him irrepressibly friendly, indiscriminately trusting, and unconditionally loving toward everyone he meets. It also makes him enormously vulnerable. Eli lacks the innate skepticism that will help his peers navigate adolescence more safely - and vastly more successfully.

In the tiny Iowa farm town of Atalissa, dozens of men, all with intellectual disabilities and all from Texas, lived in an old schoolhouse. Before dawn each morning, they were bussed to a nearby processing plant, where they eviscerated turkeys in return for food, lodging, and $65 a month. They lived in near servitude for more than 30 years, enduring increasing neglect, exploitation, and physical and emotional abuse.

Are You Two Sisters? is Susan Krieger's candid, revealing, and engrossing memoir about the intimacies of a lesbian couple. Krieger explores how she and her partner confront both the inner challenges of their relationship and the invisibility of lesbian identity in the larger world. Using a lively novelistic and autoethnographic approach that toggles back and forth in time, Krieger reflects on the evolution of her 40-year relationship. She describes building a life together, from sharing pets and travels to getting married.

On July 4th, 2013, Connor Sparrowhawk, also known as Laughing Boy or LB, was found dead in a specialist NHS unit. Connor, who had autism and epilepsy, had a seizure while in the bath, and no member of staff was on hand to stop him from drowning. An entirely preventable death. Sara Ryan presents a frank, sometimes funny and touching account of her son's early life and preventable death and the unfolding #JusticeforLB campaign.