Disability Politics

Behind our current caregiving crisis, in which a broken system has left parents and caregivers exhausted, sits a fierce addiction to independence. But what would happen if we started to appreciate dependency, and the deep meaning of one person caring for another? If we start to care about care? With a curiosity and desire to understand more fully one of humanity’s most profound and essential relationships, journalist Elissa Strauss she interrogates our societal obsession with going it alone and poses a challenge to let ourselves be transformed by the act of caregiving.

The Ultimate Guide to Sex and Disability is the first complete sex guide for people who live with disabilities, pain, illness, or chronic conditions. Useful for absolutely everyone, regardless of age, gender, or sexual orientation, the book addresses a wide range of disabilities - from chronic fatigue, back pain, and asthma to spinal cord injury, hearing and visual impairment, multiple sclerosis, and more.

Mothering under normal circumstances takes all you have to give. But what happens when your child is disabled, and sacrificing all you've got and more is the only hope for a decent future? Full of rage and resilience, duty and love, Ashley Bristowe delivers a mother's voice like no other we've heard.

When John Tovey lost his sight at the age of 42, he thought his life was over. He was wrong, it was just beginning. John had followed a bad path drifting in and out of trouble. He was sent to improvement schools, a young offenders institute and eventually a prison. John was on self-destruct and thought nothing or no one could help him. Then he became the victim of a vicious attack by a notorious train ‘steaming’ gang. John knew he had to take the witness stand.

As a deafblind woman with partial vision in one eye and bilateral hearing aids, Elsa Sjunneson lives at the crossroads of blindness and sight, hearing and deafness—much to the confusion of the world around her. And she knows how wrong our one-size-fits-all definitions of disability can be. Part memoir, part cultural criticism, part history of the deafblind experience, Being Seen explores how our cultural concept of disability is more myth than fact, and the damage it does to us all.

An unflinching and luminous memoir that explores a father’s philosophical transformation when he must reconsider the questions what makes us human? and whose life is worth living? Before becoming a father, Chris Gabbard was a fast-track academic finishing his doctoral dissertation at Stanford. A disciple of Enlightenment thinkers, he was a devotee of reason, believed in the reliability of science, and lived by the dictum that an unexamined life is not worth living. That is, until his son August was born.

When Ashley Shew became a self-described "hard-of-hearing chemobrained amputee with Crohn's disease and tinnitus," there was no returning to "normal." Suddenly well-meaning people called her an "inspiration" while grocery shopping or viewed her as a needy recipient of technological wizardry. Most disabled people don't want what the abled assume they want—nor are they generally asked. In vibrant prose, Shew shows how we can create better narratives and more accessible futures by drawing from the insights of the cross-disability community.

A story of fighting to belong in a world that wasn't built for all of us and of one woman's activism - from the streets of Brooklyn and San Francisco to inside the halls of Washington - Being Heumann recounts Judy Heumann's lifelong battle to achieve respect, acceptance, and inclusion in society. From fighting to attend grade school after being described as a "fire hazard" to later winning a lawsuit against the New York City school system for denying her a teacher's license because of her paralysis, Judy's actions set a precedent that improved rights for disabled people.

A 25-year-old backcountry wanderer, a man happiest exploring wild places with his dog, Dan Bigley woke up one midsummer morning to a day full of promise. Before it was over, after a stellar day of salmon fishing along Alaska’s Kenai and Russian rivers, a grizzly came tearing around a corner in the trail. Dan barely had time for “bear charging” to register before it had him on the ground, altering his life forever.

Thirty-four-year-old Rebecca Alexander is a psychotherapist, a spin instructor, a volunteer, and an athlete. She is also almost completely blind, with significantly deteriorated hearing. Not Fade Away is a deeply moving exploration of the obstacles we all face-physical, psychological, and philosophical. Rebecca's story is an exquisite reminder to live each day to its fullest.

The Unteachables examines the overrepresentation of Black students in special education over the course of the twentieth century. As African American children integrated predominantly white schools, many were disproportionately labeled educable mentally retarded (EMR), learning disabled (LD), and emotionally behavioral disordered (EBD). Keith A. Mayes charts the evolution of disability categories and how these labels kept Black learners segregated in American classrooms.

In 2017, President Obama, in his final Oval Office interview, was asked who gave him hope for the future of the country, and Jason Kander was the first name he mentioned. Suddenly, Jason was a national figure. As observers assumed he was preparing a run for the presidency, Jason announced a bid for mayor of Kansas City instead and was headed for a landslide victory. But after eleven years battling PTSD from his service in Afghanistan, Jason was seized by depression and suicidal thoughts. He dropped out of the mayor’s race and out of public life. And finally, he sought help.

In Disability Pride, disabled journalist Ben Mattlin weaves together interviews and reportage to introduce a cavalcade of individuals, ideas, and events in engaging, fast-paced prose. He traces the generation that came of age after the ADA reshaped America, and how it is influencing the future. He documents how autistic self-advocacy and the neurodiversity movement upended views of those whose brains work differently. He lifts the veil on a thriving disability culture showing how the politics of beauty for those with marginalized body types and facial features is sparking widespread change.

Sipping Dom Pérignon Through a Straw is an inspirational and truly intersectional memoir from global humanitarian and disability-justice advocate Eddie Ndopu—a queer, Black wheelchair user. Ndopu’s incredible story begins with his childhood being raised by a single mother fleeing Apartheid South Africa before rocketing through every boundary put in front of him—because of his disability, his ethnicity, and his sexuality—to eventually hold official positions at both the United Nations and the World Economic Forum.

Jen Powley was diagnosed with multiple sclerosis at 15. By 35, she had lost the use of her arms and legs. Just Jen is a powerful memoir that tells the story of Powley’s life at the time of her diagnosis and the infinite, irrevocable ways it has changed since. Powley’s writing pulls no punches. She is lively, bold, and unapologetic, answering questions people are often afraid to ask about living with a progressive disease.

Autism is often diagnosed during childhood but can also be diagnosed well into adulthood. If you feel you have been misunderstood your whole life, take heart, you are not alone.

Despite the progress of decades-old disability rights policy, including the landmark Americans with Disabilities Act, threats continue to undermine the well-being of this population. The U.S. is, thus, a policy innovator and laggard in this regard. In Politics of Empowerment, David Pettinicchio offers a historically grounded analysis of the singular case of U.S. disability policy, countering long-held views of progress that privilege public demand as its primary driver.

Rising Tide Car Wash in Parkland, Florida, isn’t average in any way. When Tom D’Eri and his father John bought the location in 2013, it was struggling. Now it’s one of the highest-volume washes in Florida. Its employee retention rate is five times that of its competitors. It has spun off into two additional locations that have been immediately successful, and the business is absurdly profitable.

In the second edition of About Canada: Disability Rights, Deborah Stienstra explores the historical and current experiences of people with disabilities in Canada, as well as the policy and advocacy responses to these experiences. Stienstra demonstrates that disability rights enable people with disabilities to make decisions about their lives and future, claim rights on their own behalf, and participate actively in all areas of Canadian society.

Ione Gamble never imagined that entering adulthood would mean being diagnosed with an incurable illness. Watching identity politics become social media fodder from the confines of her sickbed Ione began to pick apart our obsession with self-care, personal branding, productivity and #LivingYourBestLife. Using her experience with disability to cast a fresh gaze on the particularly peculiar cultural moment in which young women find themselves, Poor Little Sick Girls explores the pressures faced—as well as the power of existing as an unacceptable woman in our current era of empowerment.