Disability Science

As a deafblind woman with partial vision in one eye and bilateral hearing aids, Elsa Sjunneson lives at the crossroads of blindness and sight, hearing and deafness—much to the confusion of the world around her. And she knows how wrong our one-size-fits-all definitions of disability can be. Part memoir, part cultural criticism, part history of the deafblind experience, Being Seen explores how our cultural concept of disability is more myth than fact, and the damage it does to us all.

Agatha is a Hawk, brave and fierce, who protects her people by patrolling the high walls of their island home. She is proud of her job, though some in her clan whisper that it is meant to keep her out of the way because of the condition she was born with. Jaime, thoughtful and anxious, is an Angler, but he hates the sea. Worse, he’s been chosen for a duty that the clan hasn’t required for generations: to marry. The elders won’t say why they have promised him to a girl in a neighboring clan, but there are rumors of approaching danger.

At a time when we are all more rudderless than ever, we look for the very best teachers and mentors to guide us. In Fully Alive, an unusual and gripping memoir, Timothy Shriver shows how his teachers have been the world's most forgotten minority: people with intellectual disabilities. In these pages we meet the individuals who helped him come of age and find a deeper and more meaningful way to see the world.

In Sleepyhead, science writer Henry Nicholls uses his own experience with chronic narcolepsy as a gateway to better understanding the cryptic, curious, and relatively uncharted world of sleep disorders. Charming, eye-opening, and deeply humanizing, Sleepyhead will help us all uncover the secrets of a good night's sleep.

Disability critiques of architecture usually emphasize the need for modification and increased access, but The Architecture of Disability calls for a radical reorientation of this perspective by situating experiences of impairment as a new foundation for the built environment. With its provocative proposal for "the construction of disability," this book fundamentally reconsiders how we conceive of and experience disability in our world.

When John Tovey lost his sight at the age of 42, he thought his life was over. He was wrong, it was just beginning. John had followed a bad path drifting in and out of trouble. He was sent to improvement schools, a young offenders institute and eventually a prison. John was on self-destruct and thought nothing or no one could help him. Then he became the victim of a vicious attack by a notorious train ‘steaming’ gang. John knew he had to take the witness stand.

Behind our current caregiving crisis, in which a broken system has left parents and caregivers exhausted, sits a fierce addiction to independence. But what would happen if we started to appreciate dependency, and the deep meaning of one person caring for another? If we start to care about care? With a curiosity and desire to understand more fully one of humanity’s most profound and essential relationships, journalist Elissa Strauss she interrogates our societal obsession with going it alone and poses a challenge to let ourselves be transformed by the act of caregiving.

When Ashley Shew became a self-described "hard-of-hearing chemobrained amputee with Crohn's disease and tinnitus," there was no returning to "normal." Suddenly well-meaning people called her an "inspiration" while grocery shopping or viewed her as a needy recipient of technological wizardry. Most disabled people don't want what the abled assume they want—nor are they generally asked. In vibrant prose, Shew shows how we can create better narratives and more accessible futures by drawing from the insights of the cross-disability community.

A 25-year-old backcountry wanderer, a man happiest exploring wild places with his dog, Dan Bigley woke up one midsummer morning to a day full of promise. Before it was over, after a stellar day of salmon fishing along Alaska’s Kenai and Russian rivers, a grizzly came tearing around a corner in the trail. Dan barely had time for “bear charging” to register before it had him on the ground, altering his life forever.

Boldly claiming a space in which people with disabilities can be seen and heard as they are-not as others perceive them - About Us captures the voices of a community that has for too long been stereotyped and misrepresented. Speaking not only to those with disabilities, but also to their families, coworkers, and support networks, the authors in About Us offer intimate stories of how they navigate a world not built for them.

The Midnight Forest. The Fanged Creature. Two fortune-telling cards that spell an untimely death for 17-year-old Clara. Despite the ever-present warning from her fortune-teller grandmother, Clara embarks on a dangerous journey into the deadly Forest Grimm to procure a magical book—Sortes Fortunae, the Book of Fortunes—with the power to reverse the curse on her village and save her mother.

Thirty-four-year-old Rebecca Alexander is a psychotherapist, a spin instructor, a volunteer, and an athlete. She is also almost completely blind, with significantly deteriorated hearing. Not Fade Away is a deeply moving exploration of the obstacles we all face-physical, psychological, and philosophical. Rebecca's story is an exquisite reminder to live each day to its fullest.

The Unteachables examines the overrepresentation of Black students in special education over the course of the twentieth century. As African American children integrated predominantly white schools, many were disproportionately labeled educable mentally retarded (EMR), learning disabled (LD), and emotionally behavioral disordered (EBD). Keith A. Mayes charts the evolution of disability categories and how these labels kept Black learners segregated in American classrooms.

We think of Alexander Graham Bell as the inventor of the telephone, but that’s not how he saw his own career. As the son of a deaf woman and, later, husband to another, his goal in life from adolescence was to teach deaf students to speak. Even his tinkering sprang from his teaching work; the telephone had its origins as a speech reading machine. The Invention of Miracles takes a new look at an American icon, revealing the astonishing true genesis of the telephone and its connection to another, far more disturbing legacy of Bell’s.

Imagine if you were to lose your sight? Would it feel like the end of everything worthwhile? There is a way forward. Once you realise that blindness is a word and not a sentence, life takes on a new perspective. There are ways to thrive with vision loss. This book reveals how to turn such a life-challenge into a lifestyle you can fully manage and enjoy.

At the age of 27, Whitney Dafoe was forced to give up his life as a photographer who traveled the world. Bit by bit a mysterious illness stole away the pieces of his life: First, it took the strength of his legs, then his voice, and his ability to eat. The Puzzle Solver follows several years in which he desperately sought answers. Whitney's father, Ron Davis, PhD, a world-class geneticist at Stanford University whose legendary research helped crack the code of DNA, suddenly changed the course of his career in a race against time to cure his son's debilitating condition.

Set four years after the events of Strings, Currents finds the Ables gang about to start their second year at Goodspeed University. Phillip is struggling more than ever with anxiety and PTSD, and he continues to feel tremendous guilt over the loss of a friend. It's haunting him. He's having vivid nightmares, passing out frequently, and starting to question his role in the world.

Autism is often diagnosed during childhood but can also be diagnosed well into adulthood. If you feel you have been misunderstood your whole life, take heart, you are not alone.

An unflinching and luminous memoir that explores a father’s philosophical transformation when he must reconsider the questions what makes us human? and whose life is worth living? Before becoming a father, Chris Gabbard was a fast-track academic finishing his doctoral dissertation at Stanford. A disciple of Enlightenment thinkers, he was a devotee of reason, believed in the reliability of science, and lived by the dictum that an unexamined life is not worth living. That is, until his son August was born.

In the second edition of About Canada: Disability Rights, Deborah Stienstra explores the historical and current experiences of people with disabilities in Canada, as well as the policy and advocacy responses to these experiences. Stienstra demonstrates that disability rights enable people with disabilities to make decisions about their lives and future, claim rights on their own behalf, and participate actively in all areas of Canadian society.