Disability Science

In 1959, at the age of 21, Max Starkloff was in a car accident that left him paralyzed from the neck down. His doctors doubted he would live longer than a few days, and, if he survived, the hope for his quality of life would be minimal. How did this young man with barely a high school education become the leader of a powerful disability rights movement and the founder of the Starkloff Disability Institute? This is his remarkable story.

Jarra never wanted to be a celebrity. All she ever wanted was to gain some respect for the people left on Earth: the unlucky few whose immune system prevents them from portaling to other planets. Except now she's the most famous Earth girl in the universe - but not everyone in the universe is happy about it, nor the fact that she has found love with a norm. Jarra's actions have repercussions that spread further than she ever could have imagined, and political unrest threatens to tear apart the delicate balance of peace between humanity's worlds.

Jarra is one of the unlucky few born with an immune system that cannot survive on other planets. Derided as an “Ape” - a “throwback” - by the rest of the universe, she is on a mission to prove that Earth girls are just as good as anyone else. Except now the planet she loves is under threat by what could be humanity’s first-ever alien contact. Jarra’s bravery - and specialist knowledge - will once again be at the center of the maelstrom, but will the rest of the universe consider Earth worth fighting for?

In 1959, the year Terry Galloway turned nine, the voices of everyone she loved began to disappear. No one yet knew that an experimental antibiotic given to her mother had wreaked havoc on her fetal nervous system, eventually causing her to go deaf. As a self-proclaimed "child freak," she acted out her fury with her boxy hearing aids and Coke-bottle glasses by faking her own drowning at a camp for crippled children

Rosemary Mahoney tells the story of Braille Without Borders, the first school for the blind in Tibet, and of Sabriye Tenberken, the remarkable blind woman who founded the school. Fascinated and impressed by what she learned from the blind children of Tibet, Mahoney was moved to investigate further the cultural history of blindness. As part of her research, she spent three months teaching at Tenberken's international training center for blind adults in Kerala, India, an experience that reveals both the shocking oppression endured by the world's blind, as well as their great resilience.

A former Social Security Administration (SSA) attorney goes behind the scenes to show you why it’s so difficult to win a Social Security Disability case. Working as an attorney advisor for over 10 years, the author drafted and reviewed thousands of disability decisions. During this time, he learned why the system is stacked against the claimant throughout the process. After he left SSA, he wanted to make this knowledge available to everyone.

Discover six stories sharing one impactful message in this fantasy collection.

This book explores the sex lives of women with disabilities in Nepal, showing that many women suffer more than men despite prevailing disability policies that emphasize nondiscrimination against people with disabilities. It also argues that far from general perceptions of women as asexual, women with disabilities are capable of leading highly creative and fulfilling sexual lives.

When you hear the word “disability”, what comes to mind? Cheryl Schiltz tells her story of being introduced to disability. She shares her journey from a silent world to one that encased her in constant anxiety. Her life as she knew it had disappeared. It became one of a continuous fight between psychological and physical change. Noise. From her childhood, you’ll find yourself traveling with her as she discovers the power to gain control. She shares her story openly and honestly, raw and sensitive.

In the early 2010s, reports began to emerge of deaths linked to a government department. Suicide notes, coroners' reports, and research by disabled activists pointed to failings within the Department for Work and Pensions—the DWP—the government body responsible for the disability benefits system. As years passed, and austerity tightened its grip, the death toll mounted, and an even more disturbing picture emerged: bureaucracy, politicians, and the private sector had combined over thirty years to reckless, deadly effect.

Challenging the view that autism is something that needs to be ‘cured', Virginia Bovell testifies to the extraordinary care Danny has received for over 30 years and the everyday kindness and decency of the people – ‘the band of angels' – that surround him. She asks us to consider what makes a thriving individual versus an inadequate one; what it means to be ill versus what it means to not to conform; what roles society values and rewards; and how humans might flourish outside of failing political and economic systems.

More the Same than Different: What I Wish People Knew About Respecting and Including People with Disabilities is a practical guide for anyone who may not have much experience interacting with people with disabilities and wants to feel more comfortable.

The Underdogs tells the story of Karen Shirk, felled at age 24 by a neuromuscular disease and facing life as a ventilator-dependent, immobile patient, who was turned down by every service dog agency in the country because she was "too disabled". Her nurse encouraged her to tone down the suicidal thoughts, find a puppy, and raise her own service dog. Karen did this, and Ben, a German shepherd, dragged her back into life.

A brilliantly honest, funny, and insightful account of a Buddhist's life, work, and family. For Satyadasa, the Buddhist path has been fulfilling and often joyous, but also full of doubts and obstacles.

Si no es cada cuatro años que se celebran los paralímpicos, si no se acerca el Día Internacional de las pcd, cuando las marcas realizan acciones; si no es que el gobierno da beneficios fiscales para impulsar la inserción laboral de este grupo, el resto del tiempo las personas con discapacidad viven entre las sombras.

Oliver Sacks widmet sich in seinem neuen Werk dem Zusammenhang von visueller Wahrnehmung und Bewusstsein. Es gelingt ihm wieder, komplexe Dinge verständlich zu beschreiben. Das Außergewöhnliche: Sacks schildert, wie er selbst 2005 an einem bösartigen Tumor im Auge erkrankte. Er berichtet vom Leben mit dem Krebs und dem Verlust seiner visuellen Fähigkeiten. Doch er entdeckt auch "positive" Phänomene: milde Illusion, Halluzinationen, Veränderungen in der Wahrnehmung von Farben und Umrissen.

This book is user-friendly. Each chapter will be dedicated to one month. Within each chapter, there will be a subsection for each week. Subsequently, a passage for each day will give the listener a slice of what it means to live with a disability. By taking this cultural journey, the listener will be able to interact with the disabled community and other minority groups authentically.

The success of food allergy activism in highlighting the dangers of foodborne allergens shows how illness communities can effectively advocate for the needs of their members. In Food Allergy Advocacy, Danya Glabau follows parents and activists as they fight for allergen-free environments, accurate labeling, the fair application of disability law, and access to life-saving medications for food-allergic children in the United States.

Public Hostage, Public Ransom starts with the autobiographical story of William Bronston, the activist physician whose early professional California training steels him with a deep moral, professional, and cultural bond to the huge 6,000-person disabled population he encounters incarcerated in Willowbrook State School in Staten Island, NY, on whose behalf he daily battles to humanize and ultimately catalyze a federal class action lawsuit against the state to close the death-making institution.

Luisa L’Audace wächst als einziges behindertes Kind in ihrem Heimatdorf auf. Warum sie im Sportunterricht immer als Letzte gewählt wird, in der Pause nicht mitspielen soll und ihre Freundinnen plötzlich nicht mehr neben ihr sitzen wollen, versteht sie lange Zeit nicht. Während andere Kinder Freizeitbeschäftigungen nachgehen, verbringt Luisa viel Zeit in Krankenhäusern, bei Therapien und Spezialist*innen. Als sie mit 14 einen Rollstuhl bekommt, fühlt sie sich zum ersten Mal in ihrem Leben frei. Doch mit der neu gewonnenen Mobilität nehmen auch die Anfeindungen zu.