Disability Science

David Paterson overcame severe disability and racial prejudice to become a state senator, lieutenant governor, and - unexpectedly - governor of New York. Paterson was the first and only blind governor - other than a man who held the title for 11 days in 1975 - and the fourth person of African descent to hold the office of governor in American history. Paterson may also be the only governor in history to have been arrested outside the governor's office prior to his service.

As director of legendary Pommery Champagnes, Philippe Pozzo di Borgo was not generally someone in the habit of asking for help. Then, in 1993, an accident left him a quadriplegic. Passing his days hidden in his Paris townhouse, Philippe found himself the modern equivalent of an “untouchable.” The only person who seemed not to be bothered by Philippe’s condition was someone who had been marginalized his entire life - Abdel, the unemployed, uninhibited immigrant from the outskirts of society who would become Philippe’s caretaker.

Who knows better about developing the talents of those with autism than Temple Grandin? This updated and expanded third edition of Developing Talents considers the continuing dismal employment statistics for individuals with autism. The authors take an in-depth look at entrepreneurship and many other options.

Jarra never wanted to be a celebrity. All she ever wanted was to gain some respect for the people left on Earth: the unlucky few whose immune system prevents them from portaling to other planets. Except now she's the most famous Earth girl in the universe - but not everyone in the universe is happy about it, nor the fact that she has found love with a norm. Jarra's actions have repercussions that spread further than she ever could have imagined, and political unrest threatens to tear apart the delicate balance of peace between humanity's worlds.

Jarra is one of the unlucky few born with an immune system that cannot survive on other planets. Derided as an “Ape” - a “throwback” - by the rest of the universe, she is on a mission to prove that Earth girls are just as good as anyone else. Except now the planet she loves is under threat by what could be humanity’s first-ever alien contact. Jarra’s bravery - and specialist knowledge - will once again be at the center of the maelstrom, but will the rest of the universe consider Earth worth fighting for?

In Imperfect, Jim Abbot retraces his remarkable journey. Born without a right hand, Jim Abbott as a boy dreamed of being a great athlete. Raised in Flint, Michigan, by parents who saw in his condition not a disability but an extraordinary opportunity, Jim became a two-sport standout in high school, then an ace pitcher for the University of Michigan. But his journey was only beginning. By 21, he’d won the gold medal game at the 1988 Olympics and cracked the starting rotation of the California Angels....

This is the real-life story of Owen Suskind, the son of the Pulitzer Prize-winning journalist Ron Suskind and his wife, Cornelia. An autistic boy who couldn't speak for years, Owen memorized dozens of Disney movies, turned them into a language to express love and loss, kinship, brotherhood. The family was forced to become animated characters, communicating with him in Disney dialogue and song; until they all emerge, together, revealing how, in darkness, we all literally need stories to survive.

At the age of 27, Whitney Dafoe was forced to give up his life as a photographer who traveled the world. Bit by bit a mysterious illness stole away the pieces of his life: First, it took the strength of his legs, then his voice, and his ability to eat. The Puzzle Solver follows several years in which he desperately sought answers. Whitney's father, Ron Davis, PhD, a world-class geneticist at Stanford University whose legendary research helped crack the code of DNA, suddenly changed the course of his career in a race against time to cure his son's debilitating condition.

In Sleepyhead, science writer Henry Nicholls uses his own experience with chronic narcolepsy as a gateway to better understanding the cryptic, curious, and relatively uncharted world of sleep disorders. Charming, eye-opening, and deeply humanizing, Sleepyhead will help us all uncover the secrets of a good night's sleep.

How I Became a Human Being is Mark O'Brien’s account of his struggles to lead an independent life despite a lifelong disability. In 1955 he contracted polio and became permanently paralyzed from the neck down. O'Brien describes growing up without the use of his limbs, his adolescence struggling with physical rehabilitation and suffering the bureaucracy of hospitals and institutions, and his adult life as an independent student and writer. Despite his physical limitations, O'Brien crafts a narrative that is as rich and vivid as the life he led.

What would it be like to see everyone as a friend? Twelve-year-old Eli D'Angelo has a genetic disorder that obliterates social inhibitions, making him irrepressibly friendly, indiscriminately trusting, and unconditionally loving toward everyone he meets. It also makes him enormously vulnerable. Eli lacks the innate skepticism that will help his peers navigate adolescence more safely - and vastly more successfully.

There are 1.3 billion people around the world who identify as having a disability. When you include friends and family, the disability market touches 53 percent of all consumers. It is the world’s largest emerging market. Unleash Different reveals how companies like Google, PepsiCo, and Nordstrom are attracting people with disabilities as customers and as employees. Replacing “nice to do” with “return on investment” allows market forces to take over and the world’s leading brands to do what they do best: serve a market segment - in this case, the disability market.

Boldly claiming a space in which people with disabilities can be seen and heard as they are-not as others perceive them - About Us captures the voices of a community that has for too long been stereotyped and misrepresented. Speaking not only to those with disabilities, but also to their families, coworkers, and support networks, the authors in About Us offer intimate stories of how they navigate a world not built for them.

More than 2,000 years ago, Aristotle said: "let there be a law that no deformed child shall live." This idea is alive and well today. During the past century, Supreme Court Justice Oliver Wendell Holmes Jr. argued that the United States can forcibly sterilize intellectually disabled women and philosopher Peter Singer argued for the right of parents to euthanize certain cognitively disabled infants. The Life Worth Living explores how and why such arguments persist by investigating the exclusion of and discrimination against disabled people across the history of Western moral philosophy.

For more than 40 years, professionals in the field of disability studies have engaged in debates over the use of aversive interventions (such as electric shock) like the ones used at the Judge Rotenberg Center. This book is a historical case study of the Judge Rotenberg Center, named after the judge who ruled in favor of keeping its doors open to use aversive interventions.

If you grow up in a world where wrinkles are practically illegal, going bald is cause for a mental breakdown, and women over size zero are encouraged to shoot themselves (immediately), what the hell do you do if you're, gasp... disabled? Whatever body you’re born into, the pressure to be normal is everywhere. But have you ever met a normal person? What do they look like? Where do they live? What do they eat for breakfast? And what the **** does normal mean anyway?

Ben Mattlin's wife, ML, recalls falling in love with his confidence and sheer determination. On one of their earliest dates, he persuaded her to ride on his lap in his wheelchair on their way home from an Elvis Costello concert. Thirty years later, they still travel like this from time to time, undaunted by the curious stares following them down the street. But In Sickness and in Health is more than an "inspiring" story of how a man born with spinal muscular atrophy

As a deafblind woman with partial vision in one eye and bilateral hearing aids, Elsa Sjunneson lives at the crossroads of blindness and sight, hearing and deafness—much to the confusion of the world around her. And she knows how wrong our one-size-fits-all definitions of disability can be. Part memoir, part cultural criticism, part history of the deafblind experience, Being Seen explores how our cultural concept of disability is more myth than fact, and the damage it does to us all.

Jen Powley was diagnosed with multiple sclerosis at 15. By 35, she had lost the use of her arms and legs. Just Jen is a powerful memoir that tells the story of Powley’s life at the time of her diagnosis and the infinite, irrevocable ways it has changed since. Powley’s writing pulls no punches. She is lively, bold, and unapologetic, answering questions people are often afraid to ask about living with a progressive disease.

Are You Two Sisters? is Susan Krieger's candid, revealing, and engrossing memoir about the intimacies of a lesbian couple. Krieger explores how she and her partner confront both the inner challenges of their relationship and the invisibility of lesbian identity in the larger world. Using a lively novelistic and autoethnographic approach that toggles back and forth in time, Krieger reflects on the evolution of her 40-year relationship. She describes building a life together, from sharing pets and travels to getting married.