Disability Science

In the wake of the 2014 Ferguson riots, and sick with a chronic condition that rendered them housebound, Johanna Hedva turned to the page to ask: How do you throw a brick through the window of a bank if you can’t get out of bed? It was not long before this essay, “Sick Woman Theory”, became a seminal work on disability, because in reframing illness as not just a biological experience but a social one, Hedva argues that under capitalism—a system that limits our worth to the productivity of our bodies—we must reach for the revolutionary act of caring for ourselves and others.

Writing about the rhythms and textures of what it means to live in a body that doesn’t fit, Rebekah reflects on everything from the complications of kindness and charity, living both independently and dependently, experiencing intimacy, and how the pervasiveness of ableism in our everyday media directly translates to everyday life. Disability affects all of us, directly or indirectly, at one point or another. Sitting Pretty challenges us as a society to be patient and vigilant, practical and imaginative, kind and relentless, as we set to work to write a different story.

In the second edition of About Canada: Disability Rights, Deborah Stienstra explores the historical and current experiences of people with disabilities in Canada, as well as the policy and advocacy responses to these experiences. Stienstra demonstrates that disability rights enable people with disabilities to make decisions about their lives and future, claim rights on their own behalf, and participate actively in all areas of Canadian society.

In The Future Is Disabled, Leah Laksmi Piepzna-Samarasinha asks some provocative questions: What if, in the near future, the majority of people will be disabled—and what if that's not a bad thing? And what if disability justice and disabled wisdom are crucial to creating a future in which it's possible to survive fascism, climate change, and pandemics and to bring about liberation?

Christopher Reeve has mastered the art of turning the impossible into the inevitable. In Nothing Is Impossible, Reeve shows that we are all capable of overcoming seemingly insurmountable hardships. Published on the eve of both his fiftieth birthday and the seventh anniversary of his spinal cord injury, Nothing Is Impossible reminds us that life is not to be taken for granted but to be lived fully with zeal, curiosity, and gratitude.

The forces of the entire Th'un Empire are about to come down on Amelia like a 10-ton hammer. Wanted dead or alive by ruthless aliens and with nowhere to run, Amelia must use every ounce of her brilliance to defeat them on Earth. But the Earth is just the beginning. The galaxy is larger than she realized, and their planet isn't the only one in peril.

In 1938, Donald Triplett of Forest, Mississippi, became the first child diagnosed with autism. Beginning with his family’s odyssey, In a Different Key tells the extraordinary story of this often misunderstood condition, from the civil rights battles waged by the families of those who have it to the fierce debates among scientists over how to define and treat it.

Lamar Hardwick was thirty-six years old when he found out he was on the autism spectrum. While this revelation helped him understand and process his own experience, it also prompted a difficult re-evaluation of who he was as a person. And as a pastor, it started him on a new path of considering the way disabled people are treated in the church. Disability and the Church is a practical and theological reconsideration of the church's responsibilities to the disabled community.

We meet Andrew Leland as he’s suspended in the liminal state of the soon-to-be blind: he’s midway through his life with retinitis pigmentosa, a condition that ushers those who live with it from sightedness to blindness over years, even decades. He grew up with full vision, but starting in his teenage years, his sight began to degrade from the outside in. Soon— but without knowing exactly when—he will likely have no vision left. Full of apprehension but also dogged curiosity, Leland embarks on a sweeping exploration of the state of being that awaits him.

In 1997, Daniel Trush, a bright, active, outgoing twelve-year-old, collapsed on the basketball court and fell into a deep coma. Rushed to the hospital, he was found to have five previously undetected aneurysms in his brain. One had burst, causing a massive cerebral hemorrhage. While Daniel remained comatose, the uncontrolled pressure inside his skull caused him to suffer multiple strokes.

Jessica Slice’s disability is exactly what her child needed as a newborn. After becoming disabled a handful of years prior from a shift in her autonomic nervous system, Jessica had done the hard work of disentangling her worth from productivity and learning how to prepare for an unpredictable and fragile world. Blending her experience of becoming disabled in adulthood and later becoming a parent with interviews, social research, and disability studies, Slice describes what the landscape is like for disabled parents.

Set four years after the events of Strings, Currents finds the Ables gang about to start their second year at Goodspeed University. Phillip is struggling more than ever with anxiety and PTSD, and he continues to feel tremendous guilt over the loss of a friend. It's haunting him. He's having vivid nightmares, passing out frequently, and starting to question his role in the world.

When Ashley Shew became a self-described "hard-of-hearing chemobrained amputee with Crohn's disease and tinnitus," there was no returning to "normal." Suddenly well-meaning people called her an "inspiration" while grocery shopping or viewed her as a needy recipient of technological wizardry. Most disabled people don't want what the abled assume they want—nor are they generally asked. In vibrant prose, Shew shows how we can create better narratives and more accessible futures by drawing from the insights of the cross-disability community.

We think of Alexander Graham Bell as the inventor of the telephone, but that’s not how he saw his own career. As the son of a deaf woman and, later, husband to another, his goal in life from adolescence was to teach deaf students to speak. Even his tinkering sprang from his teaching work; the telephone had its origins as a speech reading machine. The Invention of Miracles takes a new look at an American icon, revealing the astonishing true genesis of the telephone and its connection to another, far more disturbing legacy of Bell’s.

More than 2,000 years ago, Aristotle said: "let there be a law that no deformed child shall live." This idea is alive and well today. During the past century, Supreme Court Justice Oliver Wendell Holmes Jr. argued that the United States can forcibly sterilize intellectually disabled women and philosopher Peter Singer argued for the right of parents to euthanize certain cognitively disabled infants. The Life Worth Living explores how and why such arguments persist by investigating the exclusion of and discrimination against disabled people across the history of Western moral philosophy.

Autism is often diagnosed during childhood but can also be diagnosed well into adulthood. If you feel you have been misunderstood your whole life, take heart, you are not alone.

Blinded at age three, Mike May defied expectations by breaking world records in downhill speed skiing, joining the CIA, and becoming a successful inventor, entrepreneur, and family man. He had never yearned for vision. Then, in 1999, a chance encounter brought startling news: a revolutionary stem-cell transplant surgery could restore May's vision.

An approachable guide to being an informed, compassionate, and socially conscious person today - from discussions of race, gender, and sexual orientation to disability, class, and beyond - from critically acclaimed historian, educator, and author Blair Imani.

The first accessible guide to examine Sensory Processing Disorder, The Out-of-Sync Child touched the hearts and lives of thousands of families. Carol Stock Kranowitz continues her significant work with this companion volume, which presents more than one hundred playful activities specially designed for kids with SPD.

Prison abolition and decarceration are increasingly debated, but it is often without taking into account the largest exodus of people from carceral facilities in the 20th century: the closure of disability institutions and psychiatric hospitals. Decarcerating Disability provides a much-needed corrective, combining a genealogy of deinstitutionalization with critiques of the current prison system.