Disability Science

Disability and Political Representation explores how disabled people experience the various stages and aspects of the representation process, drawing upon extensive empirical research and a variety of qualitative and quantitative data. It discusses why increasing the number of disabled politicians matters, not only as a matter of justice and equality but also to better represent the issues and interests of importance to disabled people.

Lt. Col. Tim Maxwell prided himself on being a hard-core Marinea patriotic Devil Dog on his third tour of Iraq. Then his brain was shredded with mortar shrapnel. Today, Maxwell has a large angry scar on the left side of his head. He forgets words, his wife has to read to him, and he drags one foot when he walks. Yet he works 12-hour days as commander of the Wounded Warrior Barracks at Camp Lejeune, North Carolina. For these warriors, Iraq and Afghanistan will never quite be in the past.

Discover six stories sharing one impactful message in this fantasy collection.

How I Became a Human Being is Mark O'Brien’s account of his struggles to lead an independent life despite a lifelong disability. In 1955 he contracted polio and became permanently paralyzed from the neck down. O'Brien describes growing up without the use of his limbs, his adolescence struggling with physical rehabilitation and suffering the bureaucracy of hospitals and institutions, and his adult life as an independent student and writer. Despite his physical limitations, O'Brien crafts a narrative that is as rich and vivid as the life he led.

In The Price of Silence she takes a devastating look at how we address mental illness, especially in children, who are funneled through a system of education, mental health care, and juvenile detention that leads far too often to prison. In the end she asks one central question: if there's a poster child for cancer, why can't there be one for mental illness? The answer: the stigma.

In Everything Is Going to be K.O. Kaiya Stone writes about her own experiences of living with specific learning difficulties: from struggling at school to being diagnosed with dyslexia and dyspraxia while at university, to performing her own one-woman stand up show inspired by her journey. Always funny and unfailingly honest, Kaiya outlines the frustrations of having SPLDS but also the ways in which they have fuelled her creativity.

At a time when we are all more rudderless than ever, we look for the very best teachers and mentors to guide us. In Fully Alive, an unusual and gripping memoir, Timothy Shriver shows how his teachers have been the world's most forgotten minority: people with intellectual disabilities. In these pages we meet the individuals who helped him come of age and find a deeper and more meaningful way to see the world.

In the tiny Iowa farm town of Atalissa, dozens of men, all with intellectual disabilities and all from Texas, lived in an old schoolhouse. Before dawn each morning, they were bussed to a nearby processing plant, where they eviscerated turkeys in return for food, lodging, and $65 a month. They lived in near servitude for more than 30 years, enduring increasing neglect, exploitation, and physical and emotional abuse.

As director of legendary Pommery Champagnes, Philippe Pozzo di Borgo was not generally someone in the habit of asking for help. Then, in 1993, an accident left him a quadriplegic. Passing his days hidden in his Paris townhouse, Philippe found himself the modern equivalent of an “untouchable.” The only person who seemed not to be bothered by Philippe’s condition was someone who had been marginalized his entire life - Abdel, the unemployed, uninhibited immigrant from the outskirts of society who would become Philippe’s caretaker.

A collision with a moose on a dark highway left Susan Mockler with an incomplete spinal injury, suddenly compromising her ability to walk and to care for herself. She spent months in a rehabilitation facility learning how to adjust to her new reality, and though her body partially recovered, every aspect of her life changed.

Historically, they have borne the labels "freaks" and "oddities"; they have been collected as pets, displayed as spectacles, and treated as comic relief. Now, for the first time, in this comprehensive volume, the lives of dwarfs are explored in all their fullness and humanity. Spanning the centuries from ancient Egypt to the present, this unique social history chronicles the various ways this population has been exploited, describes their strategies for coping, and notes the persistent influence of mythology upon perceptions of them by others.

While finishing off her degree in Gerontology at Umass Boston, Yvonne Decelis started writing about her life in the hope of showing others with similar conditions that they are not alone in the trials they face. Yvonne goes over her upbringing and life prior to, during, and after diagnosis covering things like medications, “healthful living”, work, SSDI disability benefits, friendships, and relationships, etc. This was also written for people seeking information on how to interact with others who have "invisible illnesses" like MS, Fibro, Post-traumatic Stress injury, etc.

Meg Zucker was born with one finger on each hand, shortened forearms, and one toe on each misshapen foot, caused by a genetic condition called ectrodactyly. She would eventually pass this condition on to her two sons, and, along with her husband, raise them and their adopted daughter, who has her own invisible differences. Born of the family’s hard-won experiences, this book offers invaluable advice on raising confident, empathetic, and resilient children who succeed, not despite but because of their differences.

David Aguilar was born missing part of one arm, a small detail that seemed to define his life and limit people’s ideas of who he was and who he could be. But in this funny and heartfelt memoir, David proves that he can throw out the rulebook and people’s expectations and maybe even make a difference in the world—and all with a sense of humor.

Challenging the view that autism is something that needs to be ‘cured', Virginia Bovell testifies to the extraordinary care Danny has received for over 30 years and the everyday kindness and decency of the people – ‘the band of angels' – that surround him. She asks us to consider what makes a thriving individual versus an inadequate one; what it means to be ill versus what it means to not to conform; what roles society values and rewards; and how humans might flourish outside of failing political and economic systems.

Introducing "How To Write Your Own Successful VA Claim For Service-Connected Disability Compensation (A VA Claim Guide For Veterans)" by Nicasio Rios Jr. This comprehensive guide is designed to help veterans navigate the complicated veterans benefits and claims process.

Who knows better about developing the talents of those with autism than Temple Grandin? This updated and expanded third edition of Developing Talents considers the continuing dismal employment statistics for individuals with autism. The authors take an in-depth look at entrepreneurship and many other options.

Jessica Slice’s disability is exactly what her child needed as a newborn. After becoming disabled a handful of years prior from a shift in her autonomic nervous system, Jessica had done the hard work of disentangling her worth from productivity and learning how to prepare for an unpredictable and fragile world. Blending her experience of becoming disabled in adulthood and later becoming a parent with interviews, social research, and disability studies, Slice describes what the landscape is like for disabled parents.

This book explores gender, disability, and literature in the Global South, concentrating on Nepal in particular. Religious and cultural values disable women’s autonomy in general, and create even greater disadvantages for women who are physically disabled. This study examines two Nepali women writers, Bishnu Kumari Waiwa and Jhamak Ghimire, who challenge stigmas of the disabled body by deconstructing the “ideology of ability” through their autobiographical narratives.

A former Social Security Administration (SSA) attorney goes behind the scenes to show you why it’s so difficult to win a Social Security Disability case. Working as an attorney advisor for over 10 years, the author drafted and reviewed thousands of disability decisions. During this time, he learned why the system is stacked against the claimant throughout the process. After he left SSA, he wanted to make this knowledge available to everyone.