Disability Science

Sam Jones and Zoe Miller have one thing in common: they both want an escape from reality. Loner Sam flies under the radar at school and walks on eggshells at home to manage her mom’s obsessive-compulsive disorder, wondering how she can ever leave to pursue her dream of studying aerospace engineering. Popular, people-pleasing Zoe puts up walls so no one can see her true self: the girl who was abandoned as an infant, whose adoptive mother has cancer, and whose disabled brother is being sent away to live in a facility.

Historically, they have borne the labels "freaks" and "oddities"; they have been collected as pets, displayed as spectacles, and treated as comic relief. Now, for the first time, in this comprehensive volume, the lives of dwarfs are explored in all their fullness and humanity. Spanning the centuries from ancient Egypt to the present, this unique social history chronicles the various ways this population has been exploited, describes their strategies for coping, and notes the persistent influence of mythology upon perceptions of them by others.

From the Periphery consists of more than 30 first-person narratives of everyday people who describe what it's like to be treated differently by society because of their disabilities. The stories are raw and painful, but also surprisingly funny and deeply inspiring. The oral histories describe anger, independence, bigotry, solidarity, and love - in the family, at school, and at the workplace. From the Periphery will become a classic collection that increases understanding of the lived experiences of people with disabilities.

Weaving together memoir, criticism, and cultural history, and touching on both the spectrum of the deaf experience and how society fails deaf people, Antrobus finds his own way to reclaim his deafness as a power and a joy, and to reconcile his relationship to words and the world around him.

Si no es cada cuatro años que se celebran los paralímpicos, si no se acerca el Día Internacional de las pcd, cuando las marcas realizan acciones; si no es que el gobierno da beneficios fiscales para impulsar la inserción laboral de este grupo, el resto del tiempo las personas con discapacidad viven entre las sombras.

Oliver Sacks widmet sich in seinem neuen Werk dem Zusammenhang von visueller Wahrnehmung und Bewusstsein. Es gelingt ihm wieder, komplexe Dinge verständlich zu beschreiben. Das Außergewöhnliche: Sacks schildert, wie er selbst 2005 an einem bösartigen Tumor im Auge erkrankte. Er berichtet vom Leben mit dem Krebs und dem Verlust seiner visuellen Fähigkeiten. Doch er entdeckt auch "positive" Phänomene: milde Illusion, Halluzinationen, Veränderungen in der Wahrnehmung von Farben und Umrissen.

Nate Trainor, born with Joubert syndrome, could not communicate with words until he was 21. Stuck in a system that prematurely labeled him "profoundly retarded", Nate shares his battles with the public school system to be included, his incredible efforts to prove his intelligence, and the breakthroughs that finally gifted him with words and a voice. His journey proves how one man at a vast disadvantage can prevail in a world that seems hostile or indifferent to him.

Meg Zucker was born with one finger on each hand, shortened forearms, and one toe on each misshapen foot, caused by a genetic condition called ectrodactyly. She would eventually pass this condition on to her two sons, and, along with her husband, raise them and their adopted daughter, who has her own invisible differences. Born of the family’s hard-won experiences, this book offers invaluable advice on raising confident, empathetic, and resilient children who succeed, not despite but because of their differences.

Do you have a special needs child or know someone who is? Room at the Table: Encouraging Stories from Special Needs Families is rooted in the 2 Samuel 9 account of King David, who extended kindness to Jonathon's disabled son, Mephibosheth, and granted him a seat at the king's table.

In the tiny Iowa farm town of Atalissa, dozens of men, all with intellectual disabilities and all from Texas, lived in an old schoolhouse. Before dawn each morning, they were bussed to a nearby processing plant, where they eviscerated turkeys in return for food, lodging, and $65 a month. They lived in near servitude for more than 30 years, enduring increasing neglect, exploitation, and physical and emotional abuse.

Connected at the chest by a band of flesh, Chang and Eng Bunker toured the United States and the world from the 1820s to the 1870s, placing themselves and their extraordinary bodies on exhibit as "freaks of nature". More famously known as the Siamese twins, they eventually settled in rural North Carolina, married two white sisters, became slave owners, and fathered 21 children between them. More than a biography of the twins, this is a study of 19th-century American culture and society that reveals how Americans projected onto the twins their own hopes and fears.

While "freaks" have captivated our imagination since well before the 19th century, the Victorians flocked to shows featuring dancing dwarves, bearded ladies, "missing links", and six-legged sheep. Indeed, this period has been described by Rosemarie Garland-Thomson as the epoch of "consolidation" for freakery: an era of social change, enormously popular freak shows, and taxonomic frenzy. Victorian Freaks: The Social Context of Freakery in Britain, edited by Marlene Tromp, turns to that rich nexus, examining the struggle over definitions of "freakery".

For more than 40 years, professionals in the field of disability studies have engaged in debates over the use of aversive interventions (such as electric shock) like the ones used at the Judge Rotenberg Center. This book is a historical case study of the Judge Rotenberg Center, named after the judge who ruled in favor of keeping its doors open to use aversive interventions.

Growing Up Disabled in Australia is the fifth book in the highly acclaimed, best-selling Growing Up series. It includes interviews with prominent Australians such as Senator Jordon Steele-John and Paralympian Isis Holt.

Published in 1996, Life as We Know It introduced Jamie Bérubé to the world as a sweet, bright, gregarious little boy who loves The Beatles, pizza, and making lists. At four he is like many young people his age, but his Down syndrome leads most people to see him only in terms of his disability. Twenty years later Michael Bérubé chronicles his son's growth and his growing love of the world, writing as both a disability studies scholar and as a father.

Natalie O'Rourke was an ordinary little girl from Birmingham in all respects save one: she was lonely. When she discovered how much she loved horses, she decided she wanted to grow up and run a riding stables. She wanted her stables to cater for children and adults with disabilities, additional needs and anyone who needed a friend—people who you might not expect to find riding, but who she knew could find happiness through horses, because she had.

Lt. Col. Tim Maxwell prided himself on being a hard-core Marinea patriotic Devil Dog on his third tour of Iraq. Then his brain was shredded with mortar shrapnel. Today, Maxwell has a large angry scar on the left side of his head. He forgets words, his wife has to read to him, and he drags one foot when he walks. Yet he works 12-hour days as commander of the Wounded Warrior Barracks at Camp Lejeune, North Carolina. For these warriors, Iraq and Afghanistan will never quite be in the past.

In The Price of Silence she takes a devastating look at how we address mental illness, especially in children, who are funneled through a system of education, mental health care, and juvenile detention that leads far too often to prison. In the end she asks one central question: if there's a poster child for cancer, why can't there be one for mental illness? The answer: the stigma.

Come, Let Me Guide You explores the intimate communication between author Susan Krieger and her guide dog Teela over the 10-year span of their working life together. This is a book about being led by a dog to new places in the world and new places in the self, a book about facing life's challenges outwardly and within, and about reading those clues - those deeply felt signals - that can help guide the way.

A 16 ans, Jacques Sémelin apprend qu'il va devenir aveugle. Pendant des années, il garde ce secret pour lui et affronte seul l'angoisse et la progression de la cécité.