Disability Studies

In this collection of essays, Lambda Literary Award-winning writer and longtime activist and performance artist Leah Lakshmi Piepzna-Samarasinha explores the politics and realities of disability justice, a movement that centers the lives and leadership of sick and disabled queer, trans, Black, and brown people, with knowledge and gifts for all. Care Work is a mapping of access as radical love, a celebration of the work that sick and disabled queer/people of color are doing to find each other and to build power and community.

First published in 1999, the groundbreaking Exile and Pride is essential to the history and future of disability politics. Eli Clare's revelatory writing about his experiences as a white disabled genderqueer activist/writer established him as one of the leading writers on the intersections of queerness and disability and permanently changed the landscape of disability politics and queer liberation.

Junius Wilson (1908-2001) spent 76 years at a state mental hospital in Goldsboro, North Carolina, including 6 in the criminal ward. He had never been declared insane by a medical professional or found guilty of any criminal charge. But he was deaf and Black in the Jim Crow South. Unspeakable is the story of his life.

An approachable guide to being an informed, compassionate, and socially conscious person today - from discussions of race, gender, and sexual orientation to disability, class, and beyond - from critically acclaimed historian, educator, and author Blair Imani.

In Bodyminds Reimagined Sami Schalk traces how Black women's speculative fiction complicates the understanding of bodyminds - the intertwinement of the mental and the physical - in the context of race, gender, and (dis)ability. Bridging Black feminist theory with disability studies, Schalk demonstrates that this genre's political potential lies in the authors' creation of bodyminds that transcend reality's limitations.

In The Future Is Disabled, Leah Laksmi Piepzna-Samarasinha asks some provocative questions: What if, in the near future, the majority of people will be disabled—and what if that's not a bad thing? And what if disability justice and disabled wisdom are crucial to creating a future in which it's possible to survive fascism, climate change, and pandemics and to bring about liberation?

When Ashley Shew became a self-described "hard-of-hearing chemobrained amputee with Crohn's disease and tinnitus," there was no returning to "normal." Suddenly well-meaning people called her an "inspiration" while grocery shopping or viewed her as a needy recipient of technological wizardry. Most disabled people don't want what the abled assume they want—nor are they generally asked. In vibrant prose, Shew shows how we can create better narratives and more accessible futures by drawing from the insights of the cross-disability community.

Behind our current caregiving crisis, in which a broken system has left parents and caregivers exhausted, sits a fierce addiction to independence. But what would happen if we started to appreciate dependency, and the deep meaning of one person caring for another? If we start to care about care? With a curiosity and desire to understand more fully one of humanity’s most profound and essential relationships, journalist Elissa Strauss she interrogates our societal obsession with going it alone and poses a challenge to let ourselves be transformed by the act of caregiving.

As a deafblind woman with partial vision in one eye and bilateral hearing aids, Elsa Sjunneson lives at the crossroads of blindness and sight, hearing and deafness—much to the confusion of the world around her. And she knows how wrong our one-size-fits-all definitions of disability can be. Part memoir, part cultural criticism, part history of the deafblind experience, Being Seen explores how our cultural concept of disability is more myth than fact, and the damage it does to us all.

“What’s wrong with you?” Scholar, activist, and rabbi Julia Watts Belser is all too familiar with this question. What’s wrong isn’t her wheelchair, though—it’s exclusion, objectification, pity, and disdain. Loving Our Own Bones instead paints a luminous portrait of what it means to be disabled and one of God’s beloved. Belser delves deep into sacred literature, braiding the insights of disabled, feminist, Black, and queer thinkers with her own experiences as a queer disabled Jewish feminist.

This book explores the sex lives of women with disabilities in Nepal, showing that many women suffer more than men despite prevailing disability policies that emphasize nondiscrimination against people with disabilities. It also argues that far from general perceptions of women as asexual, women with disabilities are capable of leading highly creative and fulfilling sexual lives.

At first glance, Josh Hanagarne seems an improbable librarian. He stands 6'7", competes in strongman contests, and was diagnosed in high school with Tourette's syndrome. But books are his first love - Josh's earliest memories involve fantastic adventures between the pages of Gulliver’s Travels and a passionate infatuation with Fern from Charlotte’s Web. Everything in Josh’s life - from his Mormon upbringing, to finally finding love, to learning to control his tics through lifting - circles back to a close connection with books.

An inclusive and empowering manifesto for change in women’s healthcare – exploring the systemic and deep rooted sexism within medicine, and offering actionable ways for women to advocate for ourselves and others and get the diagnosis and treatment we need. Have you ever been to a doctor and felt like you were being fobbed off or ignored? Did they belittle or overlook your concerns about your health? Ever been told you’re just ‘hormonal’? You’re not alone.

What would it be like to see everyone as a friend? Twelve-year-old Eli D'Angelo has a genetic disorder that obliterates social inhibitions, making him irrepressibly friendly, indiscriminately trusting, and unconditionally loving toward everyone he meets. It also makes him enormously vulnerable. Eli lacks the innate skepticism that will help his peers navigate adolescence more safely - and vastly more successfully.

Connected at the chest by a band of flesh, Chang and Eng Bunker toured the United States and the world from the 1820s to the 1870s, placing themselves and their extraordinary bodies on exhibit as "freaks of nature". More famously known as the Siamese twins, they eventually settled in rural North Carolina, married two white sisters, became slave owners, and fathered 21 children between them. More than a biography of the twins, this is a study of 19th-century American culture and society that reveals how Americans projected onto the twins their own hopes and fears.

It’s 1970, and Jerry Walker is six years old. His consciousness revolves around being a member of a church whose beliefs he finds not only confusing but terrifying. Composed of a hodgepodge of requirements and restrictions—including a prohibition against doctors and hospitals—the underpinning tenet of Herbert W. Armstrong’s Worldwide Church of God was that its members were divinely chosen and all others would soon perish in rivers of flames.

Kimberly Crowe was back for the second year in a row with a world-renowned event in honor of International Women’s Day. International Women’s Day (IWD) 2022 celebrates the tremendous efforts of women and girls around the world in shaping the future. This summit was an epic, fun, connecting, and delightful one-day virtual event in celebration of International Women’s Day, March 8, 2022. Our speakers are an amazing array of women bringing their brilliance to serve the greater good and contribute their zone of genius to the world.

In 1959, the year Terry Galloway turned nine, the voices of everyone she loved began to disappear. No one yet knew that an experimental antibiotic given to her mother had wreaked havoc on her fetal nervous system, eventually causing her to go deaf. As a self-proclaimed "child freak," she acted out her fury with her boxy hearing aids and Coke-bottle glasses by faking her own drowning at a camp for crippled children

Sight Unseen reveals the cultural and biological realities of race, gender, and sexual orientation from the perspective of the blind. Through 10 case studies and dozens of interviews, Ellyn Kaschak taps directly into the phenomenology of race, gender, and sexual orientation among individuals born blind, along with the everyday epistemology of vision. Kaschak's work reveals not only how the blind create systems of meaning out of cultural norms but also how cultural norms inform our conscious and unconscious interactions with others regardless of our physical ability to see. She exposes gender, race, and sexual orientation as unconscious and pre-verbal in the sighted, an aspect of implicit bias.

We treat the body as an afterthought, until it no longer can be. Until the pain or the pleasure is too great. Sinéad Gleeson's life has been marked by terrible illness, including leukemia and debilitating arthritis. As a child, she bathed in the springs of Lourdes, ever hopeful that her body would cooperate, ever looking forward to the day when she could take her body for granted. But just as she turns inward to explore her own pain, and then the marvel of recovery, and then the arrival of her greatest joys—falling in love, becoming a mother—she turns her gaze outward.