Disabled Child

For parents of disabled children, navigating the systems, services, and supports is a daunting, and often overwhelming, task. No one explains to parents how to figure out the complex medical, educational, and social service systems essential to their child’s success. Over and over, parents are being asked to reinvent the exact same wheels.

An approachable guide to being a thoughtful, informed ally to disabled people, with actionable steps for what to say and do (and what not to do) and how you can help make the world a more accessible, inclusive place.

In Chasing the Intact Mind, Lutz traces the history of the intact mind concept, explaining how it influences current policy and practice affecting those with autism.

In this biography anthology, meet 34 artists, thinkers, athletes and activists with disabilities, from past and present. From Frida Kahlo to Stephen Hawking, find out how these iconic figures have overcome obstacles, owned their differences and paved the way for others by making their bodies and minds work for them.

In The Hardest Hardest Job, Atkins-Griffith makes room for the “dark side” of disability parenting, without seeing this as diametrically opposed to boundless love for your child. Amanda takes parents through the different challenging phases in their child’s life, covering everything from the frustration of school advocacy to navigating your child’s adolescence to setting them up for their future without you.

An unflinching and luminous memoir that explores a father’s philosophical transformation when he must reconsider the questions what makes us human? and whose life is worth living? Before becoming a father, Chris Gabbard was a fast-track academic finishing his doctoral dissertation at Stanford. A disciple of Enlightenment thinkers, he was a devotee of reason, believed in the reliability of science, and lived by the dictum that an unexamined life is not worth living. That is, until his son August was born.

Aidan Thomas is miserable. And it's much more than the strange nightmares he's been having. Just when life seemed to be coming together for Aidan, his parents suddenly move the family across the country to take care of his wheelchair-bound grandfather. When strange events begin to occur, Aidan is drawn into his grandfather's basement where he discovers three ancient scrolls and an invitation to another world. No longer confined to the realm of his own imagination, Aidan embarks on an adventure where he joins them in the struggle between good and evil.

Step into a family that believes wellness and potential are their little son's birthright. Even though he has acute and mysterious developmental problems, even though his doctors advise only patience and acceptance, parents Judy and Steve plan to bring about a full recovery, one way or another.

Starting college is an exciting and daunting prospect - but for students with disabilities, the process of enrolling and participating in classes comes with unique challenges. Millions of parents each year face the perplexing, sometimes contradictory policies of colleges and universities when it comes to disability accommodations. Packed with relevant information about university policies, legal rights, and accessibility options, you'll find the answers to your most pressing questions about your child's college experience.

You couldn't really tell about Mama's brain just from looking at her, but it was obvious as soon as she spoke. She had a high voice, like a little girl's, and she only knew 23 words. I know this for a fact, because we kept a list of the things Mama said tacked to the inside of the kitchen cabinet. Most of the words were common ones, like good and more and hot, but there was one word only my mother said, soof.

Hannah, Maria, and Seb are at the World Championships in Tokyo, bonding over their excitement at watching their favourite athletes compete. But Jesse Marks, a star runner on the US relay team has had his gold medal stolen! The sport park is alive with gossip and as the three new friends begin to investigate, several suspects begin to emerge. With time running out before the final race is run, can the detectives uncover who is out to sabotage the team?

Owen-known to his family as "little buddy" or "Little B"-has a rare genetic disorder that leaves him largely confined to a wheelchair. Before being united with Haatchi, Little B was anxious and found it difficult to make friends. Haatchi-an adorable Anatolian Shepherd puppy-was abused and left for dead on railroad tracks. He was struck by an oncoming train, and although his life was saved, his leg and tail were partially severed. Haatchi was left massively disabled and totally dispirited.

Sadie Wynn doesn't want a new life; her old one suits her just fine. But times are hard in drought-plagued Missouri, and Daddy thinks they'll be better off in Texas. Sadie hates this strange new place, where even children must work at the cannery to help make ends meet and people are rude to her disabled father. Yet when trouble comes, it is the kindness of these new neighbors that helps the family make it through.

Born in Ghana, West Africa, with one deformed leg, he was dismissed by most people - but not by his mother, who taught him to reach for his dreams. As a boy, Emmanuel hopped to school more than two miles each way, learned to play soccer, left home at age 13 to provide for his family, and, eventually, became a cyclist. He rode an astonishing 400 miles across Ghana in 2001, spreading his powerful message: Disability is not inability. Today, Emmanuel continues to work on behalf of the disabled.

Growing up and learning the facts of life, children of PTSD parents can struggle for a lifetime, having had their developmental years marred by confusion and grief. Lack of open communication from a child's point of view may lead to costly therapy and the future expenses of children damaged by PTSD, as in broken homes, toxic relationships, and poor life choices.

In Lost and Found, I use my expertise to provide a behind-the-scenes experience and a firsthand account of the vulnerabilities presented for caregivers raising an intellectually disabled child when information is not readily accessible. In this book you will learn how to determine the level of intellectual disability for your child and understand what this may mean for your family.

Born with a hole in his heart that required invasive surgery when he was only three months old, Quinn Bradlee suffered from a battery of illnesses - seizures, migraines, fevers - from an early age. But it wasn't until he was 14 that Bradlee was correctly diagnosed with Velo-Cardio-Facial Syndrome (VCFS), a widespread, little-understood disorder that is expressed through a wide range of physical ailments and learning disabilities.