Medical Dementia

Forfatter og antropolog Ina Kjøgx Pedersen har været på feltarbejde i sin egen familie. Hendes idé var på nærmeste hold at følge sin mors demenssygdom; den sygdom, som er udråbt til at være en af vor tids største personlige og verdensøkonomiske katastrofer, som i ringe omfang lader sig behandle, og som i sundhedsvæsnet kun kan måles negativt: I form af rask tilbagegang. Men ville det også opleves sådan for hende i virkeligheden?

In the fall of 1988, Sue Miller found herself caring for her father as he slipped into the grasp of Alzheimer's disease. She was, she claims, perhaps the least constitutionally suited of all her siblings to be in the role in which she suddenly found herself, and in The Story of My Father she grapples with the haunting memories of those final months and the larger narrative of her father's life.

National Book Award winner Jonathan Kozol is best known for his 50 years of work among our nation's poorest and most vulnerable children. Now, in the most personal book of his career, he tells the story of his father's life and work as a nationally noted specialist in disorders of the brain and his astonishing ability, at the onset of Alzheimer's disease, to explain the causes of his sickness and then to narrate, step by step, his slow descent into dementia.

Freedom 55? The so-called “Golden Years”? What if you are slowly losing your memories and your motor skills? Or what if you are the devastated witness as your partner struggles with dementia? Lewy Body Disease is a form of dementia second only to Alzheimer’s in numbers, yet many doctors and almost no lay people have ever heard its name. This is the story of two courageous people, Julie and Ken Sobol, life partners as well as writing partners. Caught up in the frightening and fatal fog of Lewy Body Disease, they started writing this book together.

Acclaimed CBS News reporter Barry Petersen writes about hearing the unimaginable; what it meant, what it still means, what he did---and didn't do---and how this beautiful love story needs to be heard by the thousands of families who have already heard that same devastating diagnosis: early onset Alzheimer's disease. Even though Barry has spent his long-time, award-winning television career covering wars and events that shaped the world, he was not even slightly prepared for what happened to his darling wife, Jan, and how it would impact his life.

At just past 70, Alex Witchel’s smart, adoring, ultra-capable mother began to exhibit undeniable signs of dementia. Witchel reacted as she’d been raised: If something was broken, she would fix it. But as medical reality undid that hope, she retreated to the kitchen, trying to reclaim the mother who was disappearing in plain sight, by cooking the comforting foods that were her mother’s signature. Reproducing the perfect meat loaf was no panacea, but it helped a grieving daughter come to terms with her predicament, the growing phenomenon of "ambiguous loss" - loss of a beloved one who lives on.

In Making Tough Decisions About End-of-Life Care in Dementia, Dr. Anne Kenny, a skilled palliative care physician, describes how to navigate the difficult journey of late-stage dementia with sensitivity, compassion, and common sense. Combining her personal experience caring for a mother with dementia with her medical expertise in both dementia and end-of-life care, Dr. Kenny helps the listener prepare for a family member's death while managing their own emotional health.

What if the dreaded world of Alzheimer's was also a world of emotional discovery? Eugenia Zukerman's poetry and simple prose, both heartbreaking and ultimately inspirational, ushers the listener into her world as she unflinchingly examines familial loyalties, moments from her past and present, and the need to face an uncertain future due to the diagnosis of a condition that she truly hopes "will remain unnamed."