Medical Diseases

When her daughter desperately needed a lung transplant to survive, Janet Murnaghan rallied against the outdated restrictions in health care that would limit her daughter's options. Transplant laws, restricting access to lungs based on arbitrary age restrictions, meant Sarah's options were limited. The injustice of her daughter's fate spurred Janet to start a public battle against outdated health-care regulations and a battle to save Sarah's life.

In My Hands is a rare, often emotional look at some of Dr. Curley's real patients and real situations in modern cancer care. These stories of resilience, hope, and determination changed and inspired Dr. Curley, and he uses these same stories to encourage patients dealing with the fear and uncertainty coupled with a diagnosis of cancer.

Robert McCrum was 42 when he suffered a massive stroke which left one side of his body paralysed, his speech drastically impaired and his sense of himself radically altered. My Year Off traces McCrum's gruelling recovery as he regains sensation and begins to come to terms, with the help of his family, with what can and cannot be recovered after a grave injury. It is a moving remonstrance against human frailty and a vital and insightful exploration of hope, despair, determination and, ultimately, love.

Renowned as a BBC journalist, Victoria Derbyshire has spent 20 years finding the human story behind the headlines. In 2015 she was diagnosed with breast cancer. With honesty and openness, she decided to live out her treatment and recovery in the spotlight in a series of video diaries. Victoria has kept a diary since she was nine years old, and in Dear Cancer, Love Victoria she shares her day-to-day experiences of life following diagnosis and coming to terms with a future that wasn't planned.

When Joselin Linder was in her 20s, her legs started to swell. She thought little of it until her health problems started to compound in ways that baffled her doctors. Diagnosed with extreme liver blockage and dangerous levels of lymph fluid, Joselin turned to the most similar case she could think of - her father's.

Acclaimed CBS News reporter Barry Petersen writes about hearing the unimaginable; what it meant, what it still means, what he did---and didn't do---and how this beautiful love story needs to be heard by the thousands of families who have already heard that same devastating diagnosis: early onset Alzheimer's disease. Even though Barry has spent his long-time, award-winning television career covering wars and events that shaped the world, he was not even slightly prepared for what happened to his darling wife, Jan, and how it would impact his life.

Matt Woodcock's frank, funny real-life diaries reveal what it was like for him to train as a vicar while struggling against all odds to become a father. In them he lays bare his joys and struggles as he attempts to reconcile his calling as a vicar with his life as a party-loving journalist, footie-freak, and incorrigible extrovert.

Wisenberg may have lost a breast, but she retained her humor, outrage, and skepticism toward common wisdom and most institutions. While following the prescribed protocols at the place she called Fancy Hospital, Wisenberg is unsparing in her descriptions of the fumblings of new doctors, her own awkward announcement to her students, and the mounds of unrecyclable plastic left at a survivors' walk.

Hilarious and heartbreaking, profane and profound, It Takes a Worried Man is the true story of a young husband and father whose life is changed forever by his wife’s breast cancer diagnosis. Following Brendan Halpin’s cranky, irreverent, and lustful thoughts through the diagnosis and treatment of his wife, Kirsten, It Takes a Worried Man is an unflinching and raw look at how cancer transforms a family. It’s also the funniest book about cancer you’ll ever read.

Freedom 55? The so-called “Golden Years”? What if you are slowly losing your memories and your motor skills? Or what if you are the devastated witness as your partner struggles with dementia? Lewy Body Disease is a form of dementia second only to Alzheimer’s in numbers, yet many doctors and almost no lay people have ever heard its name. This is the story of two courageous people, Julie and Ken Sobol, life partners as well as writing partners. Caught up in the frightening and fatal fog of Lewy Body Disease, they started writing this book together.

Nicky, a witty, intelligent, and clever 13-year-old, was diagnosed with a rare childhood bone cancer. However, this book is about more than cancer and its treatment and the fight to survive. It's about more than a mother and her son who accepted his mortality at such a young age and the strength and love between two loving souls.

This book is written from an actual survivor who wants to provide helpful information to anyone who is going through their own serious health issue or is close to someone who is battling through a major medical problem. The author was a caregiver and then, went through his own cancer diagnosis and treatments. These provided the experiences to learn how to recognize and manage the physical, mental, emotional, and spiritual challenges that everyone must face during these difficult times.

From a darkened world, bound by four walls, a young woman called Jessica tells the tale of her battle against the M. E. Monster. The severest form of a neuroimmune disease called Myalgic Encephalomyelitis went to war with her at just 15 years old. From beneath her dark glasses, Jessica glimpses a world far different from the one she remembers as a teenage schoolgirl. This true story follows her path as she ends up living in a hospital for years with tubes keeping her alive.

While everyone knows of the Ice Bucket Challenge, the viral craze that swept the nation in summer 2014, too few know the truly inspirational story behind it. Pete Frates was a man at war with his own body, a man whose love for others was unshakable. He was a man who refused to fight alone and, in so doing, mobilized a global army to combat one of the most devastating diseases on earth: ALS, or Lou Gehrig's disease.

At just past 70, Alex Witchel’s smart, adoring, ultra-capable mother began to exhibit undeniable signs of dementia. Witchel reacted as she’d been raised: If something was broken, she would fix it. But as medical reality undid that hope, she retreated to the kitchen, trying to reclaim the mother who was disappearing in plain sight, by cooking the comforting foods that were her mother’s signature. Reproducing the perfect meat loaf was no panacea, but it helped a grieving daughter come to terms with her predicament, the growing phenomenon of "ambiguous loss" - loss of a beloved one who lives on.

Hayley Okines is like no other 13-year-old schoolgirl. In Old Before My Time, Hayley and her mum, Kerry, reflect on her unusual life. Share Hayley’s excitement as she travels the world meeting her pop heroes Kylie, Girls Aloud, and Justin Bieber and her sadness as she loses her best friend to the disease at the age of 11. Now as she passes the age of 13 - the average life expectancy for a child with progeria - Hayley talks frankly about her hopes for the future and her pioneering drug trials in America which could unlock the secrets of ageing for everyone....

In the fall of 1988, Sue Miller found herself caring for her father as he slipped into the grasp of Alzheimer's disease. She was, she claims, perhaps the least constitutionally suited of all her siblings to be in the role in which she suddenly found herself, and in The Story of My Father she grapples with the haunting memories of those final months and the larger narrative of her father's life.

Pro football Hall of Famer Jim Kelly and his wife, Jill, were catapulted from a seemingly fairy-tale life of celebrity into a world of private struggle and medical uncertainty. What the public didn’t know, however, was that behind the scenes lurked more than a family’s pain at the dire prognosis of their only son. Hunter’s illness exposed the troubled depths of a marriage that had long been shadowed by uncertainties of its own.

Called a "groundbreaking masterpiece" by Dr. Gregory O'Shanick, medical director emeritus of the Brain Injury Association of America, this is the gold edition of the unabridged audiobook of the critically acclaimed memoir The Day My Brain Exploded, which tells the story of Ashok Rajamani, a first-generation Indian American who had to relearn everything about life after a full-throttle brain hemorrhage at 25. With humor and insight, he describes the events of that day (his brain exploded just before his brother's wedding!) as well as the long, difficult recovery period. In the process he introduces listeners to his family - his principal support group as well as a constant source of frustration and amazement. Irreverent, coruscating, angry, at times shocking, but always revelatory, his memoir takes the listener into unfamiliar territory, much like the experience Alice had when she fell down the rabbit hole. That he lived to tell the story is miraculous; that he tells it with such aplomb is simply remarkable.

National Book Award winner Jonathan Kozol is best known for his 50 years of work among our nation's poorest and most vulnerable children. Now, in the most personal book of his career, he tells the story of his father's life and work as a nationally noted specialist in disorders of the brain and his astonishing ability, at the onset of Alzheimer's disease, to explain the causes of his sickness and then to narrate, step by step, his slow descent into dementia.