Medical Diseases

While everyone knows of the Ice Bucket Challenge, the viral craze that swept the nation in summer 2014, too few know the truly inspirational story behind it. Pete Frates was a man at war with his own body, a man whose love for others was unshakable. He was a man who refused to fight alone and, in so doing, mobilized a global army to combat one of the most devastating diseases on earth: ALS, or Lou Gehrig's disease.

Backbone is a life-fulfilling message about managing chronic pain and living a life of purpose. For two decades, Karen Duffy, New York Times bestselling author, former MTV VJ, Revlon model, and actress, has managed to live an enriching life despite living in a state of constant pain. In this powerful, inspirational, funny, and important manual for surviving pain, Duffy draws on her experience as a patient advocate, trained recreational therapist, and hospice chaplain to illuminate gratifying methods people can use to cope with chronic pain.

Freedom 55? The so-called “Golden Years”? What if you are slowly losing your memories and your motor skills? Or what if you are the devastated witness as your partner struggles with dementia? Lewy Body Disease is a form of dementia second only to Alzheimer’s in numbers, yet many doctors and almost no lay people have ever heard its name. This is the story of two courageous people, Julie and Ken Sobol, life partners as well as writing partners. Caught up in the frightening and fatal fog of Lewy Body Disease, they started writing this book together.

In researching his acclaimed true-crime books, Philip Carlo interviewed some of the most infamous criminals and killers of our times in prisons and on death rows throughout the country. He was able to forge trusting relationships with his subjects, enabling him to extract the facts behind their monstrous acts and identify what motivated them to commit their horrific crimes.

Christine Bryden was a top civil servant and single mother of three children when she was diagnosed with dementia at the age of 46. Since then she has gone on to challenge almost every stereotype of people with dementia. This is a vivid account of the author's experiences of living with dementia, exploring the effects of memory problems, loss of independence, difficulties in communication and the exhaustion of coping with simple tasks. She describes how, with the support of her husband, Paul, she continues to lead an active life and explains how professionals and carers can help.

In this book, Prusiner tells the remarkable story of his discovery of prions - infectious proteins that replicate and cause disease but surprisingly contain no genetic material - and reveals how superb and meticulous science is actually practiced with talented teams of researchers who persevere. He recounts the frustrations and rewards of years of research and offers fascinating portraits of his peers as they raced to discover the causes of fatal brain diseases.

It is 1919 and Elizabeth Hughes, the 11-year-old daughter of America's most-distinguished jurist and politician, Charles Evans Hughes, has been diagnosed with juvenile diabetes. It is essentially a death sentence. The only accepted form of treatment - starvation - whittles her down to 45 pounds, skin and bones. Miles away, Canadian researchers Frederick Banting and Charles Best manage to identify and purify insulin from animal pancreases - a miracle soon marred by scientific jealousy, intense business competition, and fistfights.

Playwright, author, and activist Eve Ensler has devoted her life to the female body - how to talk about it, how to protect and value it. Yet she spent much of her life disassociated from her own body - a disconnection brought on by her father’s sexual abuse and her mother’s remoteness. “Because I did not, could not inhabit my body or the Earth,” she writes, “I could not feel or know their pain.” But Ensler is shocked out of her distance.

Twenty-five years ago, my doctors had no cure for my cancer. So I went on a quest to find my own treatment. This is my story....

As scientists confidently look forward to average life expectancies hitting 100+ years in some Western societies, it’s easy to forget how precarious our grasp on good health has been. It is a struggle no better demonstrated than by the myriad and extraordinary measures that humans have gone to – as diverse as animal sacrifice to stem cell transplants – in their quest to stave off death and disease. Acclaimed historian Mark Jackson takes a fresh global view of mankind’s great battle, exploring both Western and Eastern traditions.

Leaving a life marked by crippling setbacks and his father's doubt, in 1967 a 20-something doctor from India arrived in America with only five dollars and the desire to claim his American dream. Faced with an entirely new culture, racism, and the lasting effects of disabling childhood injuries, through hard work and perseverance he overcame all odds. Now having performed over 15,000 open-heart surgeries, more than nearly every surgeon in history, Dr. Singh reflects on his most memorable patients and his incredible personal life.

Ever since the 1918 Spanish influenza pandemic, scientists have dreamed of preventing catastrophic outbreaks of infectious disease. Yet despite a century of medical progress, viral and bacterial disasters continue to take us by surprise, inciting panic and dominating news cycles. From the Spanish flu to the 1924 outbreak of pneumonic plague in Los Angeles to the 1930 "parrot fever" pandemic, through the more recent SARS, Ebola, and Zika epidemics, the last one hundred years have been marked by a succession of unanticipated pandemic alarms.

Restaurateur, magazine publisher, celebrity chef, and nationally known lifestyle maven, B. Smith is struggling at 66 with a tag she never expected to add to that string: Alzheimer's patient. She's not alone. Every 67 seconds someone newly develops it, and millions of lives are affected by its aftershocks.

On a family vacation in 2009, Dr. Renée Brown Harmon felt the first jolt of fear that something might be wrong. How could her husband, Harvey, a highly intelligent physician, marathon runner, and devoted father, be struggling to keep up with their guide’s simple instructions or unable to do simple math to calculate their daughter’s age? The heartbreaking truth was confirmed nine months later when he was diagnosed with younger-onset Alzheimer’s disease at age fifty.

In Making Tough Decisions About End-of-Life Care in Dementia, Dr. Anne Kenny, a skilled palliative care physician, describes how to navigate the difficult journey of late-stage dementia with sensitivity, compassion, and common sense. Combining her personal experience caring for a mother with dementia with her medical expertise in both dementia and end-of-life care, Dr. Kenny helps the listener prepare for a family member's death while managing their own emotional health.

Hayley Okines is like no other 13-year-old schoolgirl. In Old Before My Time, Hayley and her mum, Kerry, reflect on her unusual life. Share Hayley’s excitement as she travels the world meeting her pop heroes Kylie, Girls Aloud, and Justin Bieber and her sadness as she loses her best friend to the disease at the age of 11. Now as she passes the age of 13 - the average life expectancy for a child with progeria - Hayley talks frankly about her hopes for the future and her pioneering drug trials in America which could unlock the secrets of ageing for everyone....

Carrie Host has given us a book on how to believe in the future---a future Host visualizes as a painting made up of a multitude of tiny dots called "right now." An intensely intimate journey into the unseen and unspoken aspects of catastrophic illness, told from the determined viewpoint of a 40-year-old stay-at-home mother of three

From New York Times best-selling author, Emmy award-winning broadcast journalist, and leading Alzheimer's advocate Meryl Comer comes a profoundly intimate account of her husband's battle with Alzheimer's disease, one of today's most pressing - and least understood - health epidemics.

A leading oncologist at the University of California-San Francisco, Dr. Pamela Munster has advised thousands of women on how to deal with the life-altering diagnosis of breast cancer. But when she got a call saying that her own mammogram showed "irregularities", she found herself experiencing a whole new side of the disease she thought she was an expert in. Weaving together her personal story with her team's groundbreaking research on the BRCA gene, Twisting Fate is an inspiring guide to living with BRCA mutations.

From the challenges of navigating disorientation to the moments when guilt and resentments creep in, listeners are guided gently through slow-burning grief. Along the way, Davis shares how her own fractured family came together, and how her father revealed his true self - always kind, even when he couldn't recognize his own daughter. The result is an achingly beautiful work on the fragile human condition from a profoundly wise and empathetic writer.