Specific Person

How I Became a Human Being is Mark O'Brien’s account of his struggles to lead an independent life despite a lifelong disability. In 1955 he contracted polio and became permanently paralyzed from the neck down. O'Brien describes growing up without the use of his limbs, his adolescence struggling with physical rehabilitation and suffering the bureaucracy of hospitals and institutions, and his adult life as an independent student and writer. Despite his physical limitations, O'Brien crafts a narrative that is as rich and vivid as the life he led.

Conjoined twins Chang and Eng Bunker have fascinated the world since the 19th century. In her captivating book, Chang and Eng Reconnected, Cynthia Wu traces the "Original Siamese Twins" through the terrain of American culture, showing how their inseparability underscored tensions between individuality and collectivity in the American popular imagination.

The first significant book on the history and impact of the ADA - the "eyes on the prize" moment for disability rights. The Americans with Disabilities Act (ADA) is the widest-ranging and most comprehensive piece of civil rights legislation ever passed in the United States, and it has become the model for disability-based laws around the world. Yet the surprising story behind how the bill came to be is little known.

Connected at the chest by a band of flesh, Chang and Eng Bunker toured the United States and the world from the 1820s to the 1870s, placing themselves and their extraordinary bodies on exhibit as "freaks of nature". More famously known as the Siamese twins, they eventually settled in rural North Carolina, married two white sisters, became slave owners, and fathered 21 children between them. More than a biography of the twins, this is a study of 19th-century American culture and society that reveals how Americans projected onto the twins their own hopes and fears.

In 1959, at the age of 21, Max Starkloff was in a car accident that left him paralyzed from the neck down. His doctors doubted he would live longer than a few days, and, if he survived, the hope for his quality of life would be minimal. How did this young man with barely a high school education become the leader of a powerful disability rights movement and the founder of the Starkloff Disability Institute? This is his remarkable story.

While "freaks" have captivated our imagination since well before the 19th century, the Victorians flocked to shows featuring dancing dwarves, bearded ladies, "missing links", and six-legged sheep. Indeed, this period has been described by Rosemarie Garland-Thomson as the epoch of "consolidation" for freakery: an era of social change, enormously popular freak shows, and taxonomic frenzy. Victorian Freaks: The Social Context of Freakery in Britain, edited by Marlene Tromp, turns to that rich nexus, examining the struggle over definitions of "freakery".

Published in 1996, Life as We Know It introduced Jamie Bérubé to the world as a sweet, bright, gregarious little boy who loves The Beatles, pizza, and making lists. At four he is like many young people his age, but his Down syndrome leads most people to see him only in terms of his disability. Twenty years later Michael Bérubé chronicles his son's growth and his growing love of the world, writing as both a disability studies scholar and as a father.

A brilliantly honest, funny, and insightful account of a Buddhist's life, work, and family. For Satyadasa, the Buddhist path has been fulfilling and often joyous, but also full of doubts and obstacles.

More than 2,000 years ago, Aristotle said: "let there be a law that no deformed child shall live." This idea is alive and well today. During the past century, Supreme Court Justice Oliver Wendell Holmes Jr. argued that the United States can forcibly sterilize intellectually disabled women and philosopher Peter Singer argued for the right of parents to euthanize certain cognitively disabled infants. The Life Worth Living explores how and why such arguments persist by investigating the exclusion of and discrimination against disabled people across the history of Western moral philosophy.

Raúl Krauthausen ist der bekannteste Aktivist für Inklusion und Barrierefreiheit – und die lauteste Stimme in Deutschland, wenn es um die Durchsetzung der Rechte von Menschen mit Behinderung geht. "Betrachten Sie Behinderung einfach als eine Eigenschaft wie die Haarfarbe" ist eine seiner zentralen Botschaften, und er kämpft auf allen Plattformen – analog und digital – für Sichtbarkeit und gegen Diskriminierung.

A collision with a moose on a dark highway left Susan Mockler with an incomplete spinal injury, suddenly compromising her ability to walk and to care for herself. She spent months in a rehabilitation facility learning how to adjust to her new reality, and though her body partially recovered, every aspect of her life changed.

With the raging culture war, the underlying "race war" is rarely addressed in a more reasoned way. Roderick Edwards, author of many taboo-challenging books, takes on the controversial topic of what part other White people played in colonization and slavery. The Other White People is a detailed look into the history and contributions of peoples such as the Vikings and the Russians: White people who did not participate in the colonization of the Americas nor the Atlantic slave trade of Africans.

Do you know an adult with autism, Down syndrome, or another special need? One in eight people on our planet live with some form of disability. And they all deserve to live productive, engaged lives. Are we willing to help them accomplish this goal? The mother of an adult with autism, Andrea Moriarty leveraged her son’s passion, talent, and personality to help him create an out-of-the-box vocation: A podcast. After more than 80 interviews, she recognized three vital attitudes that people with disabilities teach us - risk taking, humility, and kindness.

Turning on the Light presents some of her personal stories and offers tips and tricks she has learned over years of study and learning. This narrative provides valuable information and guidance for those who are visually impaired, their caregivers, and their loved ones. It is full of ideas for adapting to diminished vision and dealing with fundamentally important day-to-day routines.

Invisible Visibility discusses the key barriers that marginalize disabled artists from taking center stage and looks at examples of good practice through three key case studies. This audiobook puts forward an agenda for change, inclusion, and, ultimately, visibility within the sector and beyond for disabled dancers from culturally diverse backgrounds.

In Beep, David Wanczyk illuminates the sport of blind baseball to show us a remarkable version of America’s pastime. With balls tricked out to squeal three times per second, and with bases that buzz, this game of baseball for the blind is both innovative and intense. And when the best beep baseball team in America, the Austin Blackhawks, takes on its international rival, Taiwan Homerun, no one’s thinking about disability. What we find are athletes playing their hearts out for a championship.

Three months into her pregnancy with her first child, Hilary Yancey received a phone call that changed everything. As she learned the diagnosis - cleft lip and palate, a missing right eye, possible breathing complications - Hilary began to pray in earnest. Even in the midst of these findings, she prayed that God would heal her son. God could do a miracle unlike anything she had seen. Only when Hilary held her baby, Jack, in her arms for the first time did she realize God had given her something drastically different than what she had demanded.

Sight Unseen reveals the cultural and biological realities of race, gender, and sexual orientation from the perspective of the blind. Through 10 case studies and dozens of interviews, Ellyn Kaschak taps directly into the phenomenology of race, gender, and sexual orientation among individuals born blind, along with the everyday epistemology of vision. Kaschak's work reveals not only how the blind create systems of meaning out of cultural norms but also how cultural norms inform our conscious and unconscious interactions with others regardless of our physical ability to see. She exposes gender, race, and sexual orientation as unconscious and pre-verbal in the sighted, an aspect of implicit bias.

When Tim Lefens walked into the Matheny School in New Jersey to show slides of his paintings, his one-hour visit became a life-changing experience. The students he met had severe physical challenges: only one of them could talk, none could walk, and all lacked the use of their hands.

Preeti was barely six years old when doctors diagnosed her deteriorating vision as a condition due to optic atrophy. Those were difficult days but with the support and encouragement of her parents she learnt to get the best out of her disability. She looked for possibilities, focused on every positive she could dream of, always playing her best shot at facing challenges and failures with dignity and without shame.