Remedies for Sorrow
An Extraordinary Child, a Secret Kept from Pregnant Women, and a Mother's Pursuit of the Truth
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Narrateur(s):
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Megan Nix
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Auteur(s):
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Megan Nix
À propos de cet audio
This "compulsively readable memoir...brings to light an issue that has been too long ignored...An immensely important book" (Emily Oster, New York Times bestselling author of Expecting Better and Cribsheet).
A story of a mother’s fierce love for her exceptional child and her courageous journey to break the silence about a hidden risk to pregnant women: "both a beautiful family story and an urgent call to action… [A] moving, potentially life-altering book" (Robert Kolker, author of #1 New York Times bestseller Hidden Valley Road).
After a seemingly uneventful pregnancy, Megan Nix’s second daughter, Anna, was born very small and profoundly deaf. Megan and her husband, Luke, learned that Anna could have lifelong delays due to an infection from a virus they had never heard of: cytomegalovirus, or CMV, which Megan had unwittingly contracted from her toddler during pregnancy.
Megan was electrified by this knowledge. She had been warned, while pregnant, about the risks of saunas, sushi, and unpasteurized cheese, a lack of folic acid, and an excess of kitty litter. She knew to fear a slew of genetic syndromes she could do little to prevent. But she had not been told that CMV is contagious in the saliva of one out of three toddlers, spread through a kiss, a shared cup, a bite of unfinished toast. She had not been told that the stakes were high, that congenital CMV causes more birth defects and childhood disabilities—including blindness, deafness, cerebral palsy, epilepsy, and autism—than any infectious disease. Or that some of these disabilities are evident at birth, but others appear suddenly at age two or three and are never traced back to congenital CMV.
Remedies for Sorrow unfolds across the dramatic landscape of Sitka, Alaska, where Luke makes his living as a salmon fisherman. There, Megan struggles to meet Anna’s needs and dives deeper into the mystery of why no one—not her OBGYN, not her toddler’s pediatrician—had mentioned CMV, despite the staggering cost of this silence to families and children like Anna. From this rugged and beautiful place comes a memoir about the boundless capacity of mothers, the extraordinary child that is Anna, and the lifesaving power of truth.
Ce que les critiques en disent
"How did a virus that mothers pass to their children — one that leads to significant, sometimes tragic, lifelong effects — become, as Megan Nix puts it, 'nonexistent in the narrative of pregnancy?' Written with passion, wisdom and grace, Remedies for Sorrow is both a beautiful family story and an urgent call to action. An essential, moving, potentially life-altering book."
—Robert Kolker, author of #1 New York Times bestseller Hidden Valley Road
"Remedies for Sorrow might be the most powerful book you read this year. Megan Nix is a writer of grace, intellect and bravery. Buy it for every mother you know."—Emily Rapp Black, New York Times bestselling author of The Still Point of the Turning World
"This is so much more than a book about medicine; it is a fierce, tender, intimate, beautifully written meditation on motherhood. The harsh beauty of Alaska and the intricate grace of her faith weave through Megan's story like silver and gold threads, invitations to sink deeply into the story of a life that is alternately heart-breaking and heart-healing—and that very much needs to be told."—Cara Wall, author of The Dearly Beloved, a Read with Jenna pick
Ce que les auditeurs disent de Remedies for Sorrow
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Au global
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Performance
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Histoire
- Lisa R.
- 2023-04-27
EVERYONE should read this brilliant book
Megan!!! I am a CMV parent advocating for change in Alberta Canada. THANK YOU for this book. You have so beautifully expressed the seasons and tides of grief, rage and joy that accompany our exceptional children. I can’t count the number of vigorous head nods, shouts of “yes!” and tears of feeling seen that your words drew out of me while I listened. This book is a gift and I already have plans to get it into the ears & eyes of as many people as I can. And we both know what that really means; as many Moms as I can because they are the people who really listen and open their hearts to our stories.
Brava!!!!!
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Histoire
- Megan S.
- 2023-10-11
Thank you
Thank you for this book.
I am a mom of a cCMV baby in BC Canada. He was born in 2022 and I had never heard of the virus before his birth either. You have actually taught me more about the disease than any of the Doctors and other medical practitioners that we have met so far.
My son was unfortunately not diagnosed untill 6 months so we never had the chance to receive the antiviral.
You describe the struggles, the joy and the anger at the medical system so well. I don't feel as alone anymore.
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- Marcia Bruce
- 2024-01-24
A great mix of story telling and medical education
Megan’s ability to tell a story and weave in all of the science and medical background that she did is truly outstanding! Vivid scenery, emotional stories that had me in tears and a motivating voice that inspires me to help raise awareness about CMV. Thank you for this book!
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