Myeloma Matters: A Podcast Series from the Multiple Myeloma Research Foundation

Written by: Multiple Myeloma Research Foundation
  • Summary

  • Each episode focuses on patients’ experiences with and perspectives on multiple myeloma topics that matter to anyone affected by this blood cancer.
    Multiple Myeloma Research Foundation
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Episodes
  • Survivorship
    Nov 22 2024

    In this episode, you’ll learn what being a cancer survivor means, why the concept of survivorship is important to patients living with myeloma, how to be an empowered advocate for your care, and what to expect day-to-day in your myeloma journey.

    MMRF patient navigators Erin Mensching, Grace Allison, and Brittany Hartmann join the podcast to provide up-to-date information on myeloma management, talk about resources that are available to myeloma patients, and offer suggestions on connecting with other myeloma patients, caregivers, and experts.

    (0:00) Definition of survivorship

    (2:04) Learning the diagnosis

    (10:24) Shared decision-making

    (39:28) Empowerment through knowledge

    This episode is supported by AbbVie, Adaptive, BMS, CURE, Genentech, Kite/Arcellx, Pfizer, Regeneron, and Sanofi.

    To learn more about newly diagnosed multiple myeloma, download the Survivorship Fast Facts in Myeloma here.

    To learn more about multiple myeloma, visit www.themmrf.org.

    If you want to learn more about the MMRF’s FREE resources for patients and caregivers, visit the MMRF Education Hub.

    If you have additional questions, call our MMRF Patient Navigation Center at 1-888-841- 6673.

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    57 mins
  • ASCT
    Nov 12 2024

    In this episode of Myeloma Matters, you’ll learn about autologous stem cell transplantation and why it is considered the standard of care for eligible newly diagnosed patients. You’ll hear from four patients who have undergone the procedure—sometimes even twice.

    Topics of discussion:

    (22:45) Stem cell transplantation as a treatment option

    (28:30) What type of support is needed before and after a transplant?

    (40:05) Potential long-term complications from a transplant

    (43:40) Fertility issues when diagnosed at a young age

    (45:24) Potential concerns when considering a transplant

    (50:15) Concerns about the risk of secondary cancers from maintenance therapy

    (57:57) Advice to those considering a transplant

    (1:07:04) Can a transplant be saved for relapse?

    This episode is supported by Adaptive, Amgen, Bristol Myers Squibb, GSK, and Janssen.

    To learn more about autologous stem cell transplantation, download the Multiple Myeloma: Autologous Stem Cell Transplantation information sheet here.

    To learn more about multiple myeloma, visit www.themmrf.org.

    Stay up to date on the MMRF’s FREE programs and resources at the MMRF Education Hub.

    If you have additional questions, call our MMRF Patient Navigation Center at 1-888-841- 6673.

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    1 hr and 19 mins
  • Targeted Immunotherapy
    Nov 12 2024

    In this episode of Myeloma Matters, you’ll learn about targeted immunotherapy, a unique type of myeloma treatment that specifically targets myeloma cells. You’ll hear from three patients who have been on a targeted immunotherapy to get a sense of the patient experience and how these patients wound up receiving targeted immunotherapy.

    Topics of discussion:

    (0:00) Introduction to myeloma and targeted immunotherapy

    (17:15) Differences between targeted immunotherapy and traditional drugs

    (18:58) Preparing for CAR T-cell therapy compared to an autologous stem cell transplant

    (22:34) The role of the caregiver during and after hospitalization for treatment

    (32:25) Experience with a bispecific antibody

    (36:21) Handling being off treatment after CAR T-cell therapy

    To learn more about immunotherapy, download the Multiple Myeloma Immunotherapy booklet here.

    To learn more about multiple myeloma, visit www.themmrf.org.

    If you want to learn more about the MMRF’s FREE resources for patients and caregivers, visit the MMRF Education Hub.

    If you have additional questions, call our MMRF Patient Navigation Center at 1-888-841- 6673.

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    1 hr and 6 mins

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