Rare Care Podcast

Written by: Rare Care Podcast
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  • Summary

  • Rare Disease Advisor's Rare Care Podcast features exclusive interviews with experts and stakeholders from the rare disease community.
    Copyright © 2022 Haymarket Media, Inc. All Rights Reserved
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Hygiene & Healthy Living Science
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Episodes
  • 156: An Interview With Dr. James Bussel on Fetal and Neonatal Alloimmune Thrombocytopenia (FNAIT)

    156: An Interview With Dr. James Bussel on Fetal and Neonatal Alloimmune Thrombocytopenia (FNAIT)
    Feb 5 2025

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews James Bussel, MD, emeritus professor of pediatrics, medicine, and obstetrics and gynecology at New York's Weill Cornell Medicine. The topic of their discussion is nipocalimab as a potential treatment for fetal and neonatal alloimmune thrombocytopenia (FNAIT).
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    13 mins
  • 155: An Interview With Rigoberto Garcia, Executive Director of the Hemophilia Foundation of Southern California

    155: An Interview With Rigoberto Garcia, Executive Director of the Hemophilia Foundation of Southern California
    Jan 31 2025

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Rigoberto Garcia, executive director of the Hemophilia Foundation of Southern California, about the difficulty minorities—especially undocumented Hispanics—have in accessing treatment for their bleeding disorders.
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    15 mins
  • 154: An Interview With AATD Patient Kristin Hatcher of the Global Liver Institute

    154: An Interview With AATD Patient Kristin Hatcher of the Global Liver Institute
    Jan 24 2025

    Larry Luxner, senior correspondent for Rare DIsease Advisor, interviews Kristin Hatcher, director of pediatric and rare diseases at the Global Liver Institute. Hatcher has both alpha-1 antitrypsin deficiency (AATD) and Von Willebrand disease, a rare clotting disorder.
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    13 mins

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