In this episode of Talking Head Pain, Sarah is joined by Christa, a death doula and community care facilitator navigating the complex intersections of chronic illness and queer identity for Black, Indigenous and People of Color (BIPOC) individuals. Together, they explore Christa's journey through the debilitating impacts of migraine and endometriosis, highlighting the profound role of community care and self-advocacy in managing chronic conditions. This conversation sheds light on the resilience required to live authentically while coping with chronic pain, offering insights and solidarity to those on similar paths.

Among the highlights in this episode:

01:16: Christa highlights the significance of Pride Month and discusses the pain associated with queer history, emphasizing that existence as queer people of color with disabilities is an act of resistance

03:01: Christa describes how migraine attacks have been a longstanding issue since high school, often overlooked due to other health challenges, and particularly exacerbated by hormonal changes

06:14: Christa talks about the professional challenges posed by migraine, affecting their ability to work on screens and requiring time off, which impacted her past employment

07:01: Sarah and Christa discuss the complexities of managing multiple chronic illnesses, including the crucial timing of medication to handle migraine symptoms effectively

08:36: Christa explains how transitioning to self-employment has allowed them to manage their health better, accommodating their migraines and other chronic conditions more effectively

10:22: Christa reflects on the cultural and familial challenges of addressing chronic conditions within immigrant families, highlighting the gap between generational approaches to health and wellness

13:46: Christa discusses the evolution of their support systems and the challenges of initiating conversations about needs and support with loved ones, especially during significant life transitions

18:07: Christa discusses the importance of creating care plans, especially within the context of chronic illness and disability

22:20: Christa emphasizes the importance of workplace accommodations for chronic illnesses and advocates for better understanding and support from employers

27:36: Christa shares personal strategies for dealing with bad days due to chronic conditions, emphasizing the importance of resting and listening to one’s body

Contact Our Hosts:

Joe Coe, Director, Chief Value, Growth, and Therapeutic Solutions Officer, Country Manager, Canada at GHLF: jcoe@ghlf.org

Sarah Shaw, Associate Director, Diversity, Equity and Inclusion at GHLF: sshaw@ghlf.org

A podcast episode produced by Ben Blanc, Associate Director, Digital Production and Engagement at GHLF.

We want to hear what you think. Send your comments, or a video or audio clip of yourself, to podcasts@ghlf.org

Catch up on all our episodes on our website or on your favorite podcast channel.

See omnystudio.com/listener for privacy information.

In this special episode of Talking Head Pain, Joe speaks with Dr. Christopher Gottschalk, Director of Headache Medicine and the Headache Medicine Training Program at Yale University, Connecticut, live from the American Headache Society's scientific meeting. Dr. Gottschalk shares insights from a new study revealing how prolonged use of anti-CGRP drugs can reduce prodromal symptoms and the occurrence of headaches. He discusses the evolving understanding of migraine phases and the broader impacts of treatment on quality of life and cognitive function.

Join Joe and Dr. Gottschalk as they discuss these significant advancements in migraine treatment and education.

Contact Our Hosts:

Joe Coe, Director, Chief Value, Growth, and Therapeutic Solutions Officer, Country Manager, Canada at GHLF: jcoe@ghlf.org

Sarah Shaw, Associate Director, Diversity, Equity and Inclusion at GHLF: sshaw@ghlf.org

A podcast episode produced by Ben Blanc, Associate Director, Digital Production and Engagement at GHLF.

We want to hear what you think. Send your comments, or a video or audio clip of yourself, to podcasts@ghlf.org

Catch up on all our episodes on our website or on your favorite podcast channel.

See omnystudio.com/listener for privacy information.

In this special episode of Talking Head Pain, Joe is live from the American Headache Society's scientific meeting with Alicia Duyvejonck, a nurse practitioner at Genesis Headache Clinic in Davenport, Iowa. Together they discuss a research poster to which they both contributed titled "Person-Centric Communications in Migraine: Delphi-Like Consensus on Best Practice." This study, conducted using the Delphi consensus model, involved headache neurologists, nurse practitioners, psychologists, and advocacy community representatives, focusing on enhancing communication between patients and health care professionals in migraine care. They emphasize the importance of person-centric communication and individualizing treatment, highlighting key recommendations for both providers and patients to improve understanding and reduce migraine stigma.

Join Joe and Alicia as they explore how effective communication is essential in managing this heterogeneous condition and fostering shared decision-making.

Contact Our Hosts:

Joe Coe, Director, Chief Value, Growth, and Therapeutic Solutions Officer, Country Manager, Canada at GHLF: jcoe@ghlf.org

Sarah Shaw, Associate Director, Diversity, Equity and Inclusion at GHLF: sshaw@ghlf.org

A podcast episode produced by Ben Blanc, Associate Director, Digital Production and Engagement at GHLF.

We want to hear what you think. Send your comments, or a video or audio clip of yourself, to podcasts@ghlf.org

Catch up on all our episodes on our website or on your favorite podcast channel.

See omnystudio.com/listener for privacy information.