I AM MADELINE

Auteur(s): I AM MADELINE
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  • Résumé

  • A performer (actress, singer), leader, mentor, and community volunteer with her hands on a number of projects, Madeline is a joy to know. She loves gardening and The Sound of Music. Her friends describe her as "effervescent." She's one of more than 600,000 Canadians living with family of diseases twice as common as Multiple Sclerosis that many doctors don't even believe in, despite a strong correlation to viral infections. She and others face painful deterioration without more government supports, with still untold numbers of COVID-19 survivors joining them.
    I AM MADELINE
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Épisodes
  • Arm Floaties

    Arm Floaties
    Sep 25 2024
    I'm having a hard time keeping my head above water so I'm this ep I talk about Arm floaties. Here's the text I talk about re what's the what with seem floaties https://www.tumblr.com/momentsinreading/701215724949094400/and-i-dont-think-anybody-should-feel-bad-if-they?source=share and here's the YouTube of Taylor Tomlinson talking about it. it's pretty funny. https://youtu.be/xuue-s8qM8w?si=FL0V1XxCw-ND2oy3 Ebv inserting itself the b cell Twitter thread https://x.com/BrainInflCollab/status/1831998355104289219?t=XniSFkLPxNatDtGx4P0Rzg&s=09 Ricochet article I mention https://ricochet.media/en/3991/Canada-MAID-policy-death-by-poverty Gfm https://gofund.me/cff39173
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    57 min
  • There was an old lady who swallowed a fly AKA The perils of lack of supports

    There was an old lady who swallowed a fly AKA The perils of lack of supports
    Aug 31 2024
    In this episode I talk about a recent eye infection that is very much living in the land of the song *THERE WAS AN OLD LADY WHO SWALLOWED A FLY* aka lack of supports creating a domino effect of problems for some reason the update to the Spotify for a podcasters app is not letting me add the photo I spoke of in the episode to this episode but you can see the photo of me doing my impression of a b-movie creature about to chase the villagers through the streets(AKA after the ER and before the antibiotics) on the latest update of the GoFundMe -the link is below Here is that blurb I spoke about in the episode that my advocate helped me write that it makes sharing what's happening to me easier for you Madeline is still valiantly struggling for her life and needs your help to get her to live long enough for a currently confidential in-development advocacy initiative to launch, tentatively spring 2025. Ways to help: -Share the gofundme - https://www.gofundme.com/f/MadelinesMiracle -Donate to the gofundme -Let Liza or Madeline know of any media sources or social media advocates that would be willing to tell her situation's new developments: that neither a human rights tribunal or supreme court Charter Challenge is possible for lack of supports to people with disabilities and/or no category of coverage for her disease, myalgic encephalomyelitis (ME)/Long-Viral this information was given to Madeline by multiple human rights lawyers and the BC Ombudsperson who have told her that all these issues are considered political, thus meaning no recourse is available For your reference and verification of her situation, here is a link to the twitter thread that includes the article by Ricochet Media and can be shared on instagram and facebook: https://twitter.com/SpichakSimon/status/1707785829433618864?t=RowAITYe-W17QLiZRGTNMQ&s=19
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    22 min
  • Constituency Appt + GENETIC testing in process

    Constituency Appt + GENETIC testing in process
    Aug 15 2024
    In this episode I speak about today's provincial constituency appointment and a genetics test that is processing. I was very grateful that friend helped me get it AKA paid for it and I'm hoping it will yield some results that will in turn yield some supports from within the British Columbia healthcare system. It's a hail Mary but at the time that the special came up on this full genome testing I was so close to running out of money that I thought if it doesn't come back before I run out of money at the very least maybe it's helps other people after I'm dead. It's so hard when things get that dark. But I'm still here! Thanks to GoFundMe donors and to some help from a friend this summer. The in the episode I talked about a myalgic encephalomyelitis death in the UK via starvation due to lack of medical intervention when her myalgic encephalomyelitis impeded her ability to digest food that went through a coroner's inquest. Maeve Boothby O’Neill After the coroner's inquest https://www.theguardian.com/uk-news/article/2024/aug/09/devon-woman-died-from-malnutrition-due-to-severe-me-coroner-concludes?utm_term=Autofeed&CMP=twt_gu&utm_medium&utm_source=Twitter#Echobox=1723221888 Right after her death https://www.theguardian.com/society/article/2024/aug/10/me-patients-maeve-boothby-o-neill-inquest I also speak about a YouTube episode I did entitled *I'm afraid* https://youtu.be/gdPfr-fCfGo?si=QHHZKMLJH81Kwm_I Since I currently run out of money the end of September Here is the GoFundMe link. If you're able to share it or the podcast link please do. Every little bit helps. Little things are big things!
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    17 min
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Sciences sociales Histoire
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