On this episode, Maria shares the sarcoma journey of her daughter Aubrie, who was diagnosed with CIC-DUX4. Maria speaks about the diagnosis experience of a teenager, including having conversations about fertility preservation before starting chemo and ways she's honoring Aubrey after her passing. While working to fulfill her daughter's bucket list, Maria has also been the driver for helping SFA bring the Race to Cure Sarcoma to Austin, Texas for its inaugural Austin race on March 22nd, 2025.

Content Warning: Death from sarcoma, death of a child.

Aubrie's Subtype: https://curesarcoma.org/sarcoma-subtypes/cic-rearranged-sarcoma/

Sarcoma Stories Facebook Group: https://www.facebook.com/groups/512452631597704

Caregiver Connect Facebook Group: https://www.facebook.com/groups/1342913339758774

RTCS Austin: https://secure3.convio.net/soa/site/TR/RacetoCureSarcoma/General?fr_id=1454&pg=entry

All RTCS Locations: https://curesarcoma.org/race-to-cure-sarcoma/

Sarcoma Survey: https://www.surveymonkey.com/r/SFASarcomaSurvey

IRB Protocol ID 0686

In this episode, we speak with the Brenneman family who lost their father and husband, David, 12 years ago. We discuss the care partner experience of navigating a spouse's sarcoma diagnosis while also raising young children and what it has been like for the family to find connection to David after his passing. The Brenneman family shares about how this experience has fit into their lives and evolved over the years and talk about their unique experience walking the Camino de Santiago to raise awareness and funds in support of the sarcoma community. Thank you to the Brenneman family for sharing their story and allowing us to be a small part of honoring David's legacy.

content warning: death from sarcoma, death of a parent, death of a spouse

AJ's Blog: https://www.200-miles-closer-to-dad.com/

David's Subtype: https://curesarcoma.org/sarcoma-subtypes/alveolar-rhabdomyosarcoma/

https://imermanangels.org

Sarcoma Stories FB Group: https://www.facebook.com/groups/512452631597704

We're thrilled to welcome Susie Donohue, a uterine leiomyosarcoma survivor, for our third episode! We talk about navigating a new sarcoma diagnosis, what exactly a sarcoma center is, and the decision to disclose or not disclose your diagnosis at work.

Join us after the episode on our new Sarcoma Stories Facebook group to discuss the episode. https://www.facebook.com/groups/512452631597704

Discussion Guide: https://curesarcoma.org/sfa-launches-sarcoma-diagnosis-and-treatment-discussion-guide/

Sarcoma Centers: https://curesarcoma.org/support-resources/treatment-centers/

Race to Cure Sarcoma: https://curesarcoma.org/race-to-cure-sarcoma/

Facebook Group: https://www.facebook.com/groups/512452631597704

Where to connect with Susie:

IG: @susie.donohue

LinkedIn: https://www.linkedin.com/in/susie-donohue-9286579/

FB: https://www.facebook.com/susie.donohue.9

We're thrilled to welcome Jenna Pothier for our second episode! Join us as this DFSP survivor shares the importance of shared decision making between care team, patient, and care partners. She also talks about the challenges of being an adolescent young adult going through a life changing diagnosis during big life transitions, finding supportive communities and purpose in advocacy work, and shares her advice on supporting someone during their sarcoma diagnosis.

Join us after the episode on our new Sarcoma Stories Facebook group to discuss the episode. https://www.facebook.com/groups/512452631597704

Where to connect with Jenna:

IG: @jennapothier19

TikTok: https://www.tiktok.com/@jpot13

Join us for our first episode of our new podcast "Sarcoma Stories". We're thrilled to welcome our first guest, Natasha Allen! Join us as this synovial sarcoma survivor shares her inspiring journey, from diagnosis and clinical trials to using social media as a therapeutic tool and platform for awareness.

Join us after the episode on our new Sarcoma Stories Facebook group to discuss the episode. https://www.facebook.com/groups/512452631597704

Where to connect with Natasha

IG: @natashaallen

TikTok: https://www.tiktok.com/@possiblynatasha