Invisibility By Ciardha

Auteur(s): Kimberley Hepburn
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  • Résumé

  • Join us to learn more about those disabilities/disorders that are 'invisible' to the naked eye. Some includes mental health conditions, chronic pain conditions and many more.
    Kimberley Hepburn
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Hygiene & Healthy Living Troubles et maladies
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Épisodes
  • Rheumatoid Arthritis

    Rheumatoid Arthritis
    Feb 28 2025

    "Rheumatoid arthritis (RA) is a chronic disease that causes inflammation around the body and commonly presents with pain in the joints.Untreated, RA can cause severe damage to the joints and their surrounding tissue. It can lead to heart, lung or nervous system problems.Common symptoms include chronic pain, stiffness, tenderness, heat and swelling in the joints. RA can make it hard to move and perform daily activities.The causes of rheumatoid arthritis are unknown. Risk factors include smoking, obesity and exposure to air pollution. Women and older people have a higher risk of developing RA."-WHO


    Facebook Support groups include;

    Rheumatoid Arthritis Group, National Rheumatoid Arthritis Society (NRAS) (also have a help line)

    In the Caribbean, The Caribbean Asocciation of Rheumatology in St. Lucia and they will be in Nassau, Bahamas from May 2-4, 2025. Registration open online at

    https://caribrheum.org/conferences/caribbean-rheumatology-conference-2025

    Arthritis Foundations in many countries also exist.


    Follow us on

    Instagram https://www.instagram.com/_invisibility_by_ciardha_/

    Facebook ⁠https://www.facebook.com/profile.php?id=100095151392397⁠

    Contact us

    email: invisibilitybyciardha@gmail.com

    WhatsApp: +1(876)4652274


    "Invisible No More: Open eyes, open minds"

    See yah, next time!

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    16 min
  • Osteoarthritis: A Silent Epidemic

    Osteoarthritis: A Silent Epidemic
    Feb 21 2025

    Support from a variety of source exists including health care providers, support groups, and assistive devices.


    Online groups


    Osteoarthritis Online Support Group: A private Facebook group for people with OA


    My Knee Community: An online peer-to-peer support group with a moderator who posts research and links to resources


    Local groups Versus Arthritis: Local groups that bring people with arthritis together to share experiences and get support in personPatient advocacy organisations.


    Osteoarthritis Action Alliance (OAAA): Offers brochures, guides, and fact sheets on OA, as well as a handout with resources and programs for self-care, pain management, and more.


    Arthritis Foundation Offers support, resources, research, and advocacy for people with arthritis Other resources.


    CreakyJoints: Helps people find arthritis support groups near them.


    Wellness Together Canada: Connects Canadians to peer support workers, social workers, and other professionals.


    Talking to friends and family.


    You can also talk to friends or family members who have arthritis about your experience.


    Celebrities with OA


    Gordie Howe: NHL player who was forced to retire in 1971 due to arthritis in his left wrist.


    Shaquille O'Neal: Basketball star who has had arthritis in his big toe.


    Dorothy Hamill: Figure skater who has osteoarthritis of the hips, knees, and neck.


    Robbie Coltrane: The actor who played Hagrid in the Harry Potter movies has severe osteoarthritis in one of his knees.


    Jennie Garth: The actress was diagnosed with osteoarthritis at age 47. She first noticed stiffness and aching in her hips.


    Follow us on Instagram, Facebook, email us at invisibilitybyciardha@gmail.com


    Invisible no more: Open eyes,open minds!


    See you next time
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    27 min
  • Complex Regional Pain Syndrome

    Complex Regional Pain Syndrome
    Mar 8 2024
    Complex Regional Pain Syndrome (CRPS) Is poorly understood. CRPS is one of the highest pain & inflammatory diseases known carrying a 42/50 in the McGill pain scale. CRPS usually occurs after an injury. There is no simple cure or single treatment recommendations, it requires a multidisciplinary approach to help manage. CRPS has also been described as an “invisible” condition. People diagnosed with CRPS look perfectly healthy on the outside, nevertheless they are suffering from severe, life-altering chronic pain on the inside. The approximate overall incidence rate of CRPS was 26.2 per 100,000 person years with females affected at least three times more often than males. The highest incidence occurred in females aged 61-70 years. For newly diagnosed patients, it was found in research that one-year prior to diagnosis for all CRPS patients spent total costs of $7904 outpatient costs $6706 and pain prescription costs $1862-$7649. At the year of CRPS diagnosis, the median [IQR] costs were significantly higher than the baseline costs with a range of $8508-$16,666; outpatient costs $7251-$13,568; and pain prescription costs $2077-$8856. Over an eight-year period after CRPS diagnosis, costs between all the years ranged from the highest (one-year) to lowest (seven-years), $4845 to $3888. CELEBRITIES WITH CRPS Paula Abdul; American singer and dancer. Former judge on American Idol Constance Marley; half-sister to Reggae singer Robert ‘Bob’ Nesta Marley Barby Ingle; the head spirit program coach at Washington State University Toria Sullivan; collegiate triathlete at Georgetown University George Clooney; American actor Nazair Jones; Seattle Seahawks Maria Cross; American Actress David Beckham; former professional soccer player and international icon Nicole Kidman, American Actress Jo Whiley; British Radio DJ and television presenter Soumitra Chatterjee; a legendary Indian actor SUPPORT/RESOURCES Women & CRPS - cordiscosaile.com/crps-resource-for-women-and-veterans Trial by Fire A film about a rare disease (CRPS) https://youtu.be/B_ocn8Pcsxo?si=GRpCqGV79f33v4Pd The CRPS Warriors Foundation https://hubs.ly/Q01ZYHlt0 International Pain Foundation; https://internationalpain.org/ CRPS UK https://painuk.org/members/charities/crps-uk/ CRPS Facebook Group https://www.facebook.com/groups/2307309606/ The Purple Bucket Foundation https://www.tpbf.org.au/ London Pain Clinic https://www.londonpainclinic.com/complex-regional-pain-syndrome/living-with-complex-regional-pain-syndrome-a-guide-for-friends-and-family/ Chronic Regional Pain Syndrome there is nothing to be seen, apart from sometimes goose bumps or swelling. Remember, CRPS is a enfeeble and difficult condition so for those supporting someone with CRPS make sure that they talk to their friends and family as well, to express their emotions and fears, so that they can be more equipped to support the person with CRPS, even when it can be a very hard task at times. Follow us on Instagram https://www.instagram.com/_invisibility_by_ciardha_/ Facebook https://www.facebook.com/profile.php?id=100095151392397 Contact us email: invisibilitybyciardha@gmail.com inquires@invisibilitybyciardha.org WhatsApp: +1(876)4652274 "Invisible No More: Open eyes, open minds" See yah, next time!
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    11 min

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