Épisodes

  • Rheumatoid Arthritis

    Rheumatoid Arthritis
    Feb 28 2025

    "Rheumatoid arthritis (RA) is a chronic disease that causes inflammation around the body and commonly presents with pain in the joints.Untreated, RA can cause severe damage to the joints and their surrounding tissue. It can lead to heart, lung or nervous system problems.Common symptoms include chronic pain, stiffness, tenderness, heat and swelling in the joints. RA can make it hard to move and perform daily activities.The causes of rheumatoid arthritis are unknown. Risk factors include smoking, obesity and exposure to air pollution. Women and older people have a higher risk of developing RA."-WHO


    Facebook Support groups include;

    Rheumatoid Arthritis Group, National Rheumatoid Arthritis Society (NRAS) (also have a help line)

    In the Caribbean, The Caribbean Asocciation of Rheumatology in St. Lucia and they will be in Nassau, Bahamas from May 2-4, 2025. Registration open online at

    https://caribrheum.org/conferences/caribbean-rheumatology-conference-2025

    Arthritis Foundations in many countries also exist.


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    16 min
  • Osteoarthritis: A Silent Epidemic

    Osteoarthritis: A Silent Epidemic
    Feb 21 2025

    Support from a variety of source exists including health care providers, support groups, and assistive devices.


    Online groups


    Osteoarthritis Online Support Group: A private Facebook group for people with OA


    My Knee Community: An online peer-to-peer support group with a moderator who posts research and links to resources


    Local groups Versus Arthritis: Local groups that bring people with arthritis together to share experiences and get support in personPatient advocacy organisations.


    Osteoarthritis Action Alliance (OAAA): Offers brochures, guides, and fact sheets on OA, as well as a handout with resources and programs for self-care, pain management, and more.


    Arthritis Foundation Offers support, resources, research, and advocacy for people with arthritis Other resources.


    CreakyJoints: Helps people find arthritis support groups near them.


    Wellness Together Canada: Connects Canadians to peer support workers, social workers, and other professionals.


    Talking to friends and family.


    You can also talk to friends or family members who have arthritis about your experience.


    Celebrities with OA


    Gordie Howe: NHL player who was forced to retire in 1971 due to arthritis in his left wrist.


    Shaquille O'Neal: Basketball star who has had arthritis in his big toe.


    Dorothy Hamill: Figure skater who has osteoarthritis of the hips, knees, and neck.


    Robbie Coltrane: The actor who played Hagrid in the Harry Potter movies has severe osteoarthritis in one of his knees.


    Jennie Garth: The actress was diagnosed with osteoarthritis at age 47. She first noticed stiffness and aching in her hips.


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    27 min
  • Complex Regional Pain Syndrome

    Complex Regional Pain Syndrome
    Mar 8 2024
    Complex Regional Pain Syndrome (CRPS) Is poorly understood. CRPS is one of the highest pain & inflammatory diseases known carrying a 42/50 in the McGill pain scale. CRPS usually occurs after an injury. There is no simple cure or single treatment recommendations, it requires a multidisciplinary approach to help manage. CRPS has also been described as an “invisible” condition. People diagnosed with CRPS look perfectly healthy on the outside, nevertheless they are suffering from severe, life-altering chronic pain on the inside. The approximate overall incidence rate of CRPS was 26.2 per 100,000 person years with females affected at least three times more often than males. The highest incidence occurred in females aged 61-70 years. For newly diagnosed patients, it was found in research that one-year prior to diagnosis for all CRPS patients spent total costs of $7904 outpatient costs $6706 and pain prescription costs $1862-$7649. At the year of CRPS diagnosis, the median [IQR] costs were significantly higher than the baseline costs with a range of $8508-$16,666; outpatient costs $7251-$13,568; and pain prescription costs $2077-$8856. Over an eight-year period after CRPS diagnosis, costs between all the years ranged from the highest (one-year) to lowest (seven-years), $4845 to $3888. CELEBRITIES WITH CRPS Paula Abdul; American singer and dancer. Former judge on American Idol Constance Marley; half-sister to Reggae singer Robert ‘Bob’ Nesta Marley Barby Ingle; the head spirit program coach at Washington State University Toria Sullivan; collegiate triathlete at Georgetown University George Clooney; American actor Nazair Jones; Seattle Seahawks Maria Cross; American Actress David Beckham; former professional soccer player and international icon Nicole Kidman, American Actress Jo Whiley; British Radio DJ and television presenter Soumitra Chatterjee; a legendary Indian actor SUPPORT/RESOURCES Women & CRPS - cordiscosaile.com/crps-resource-for-women-and-veterans Trial by Fire A film about a rare disease (CRPS) https://youtu.be/B_ocn8Pcsxo?si=GRpCqGV79f33v4Pd The CRPS Warriors Foundation https://hubs.ly/Q01ZYHlt0 International Pain Foundation; https://internationalpain.org/ CRPS UK https://painuk.org/members/charities/crps-uk/ CRPS Facebook Group https://www.facebook.com/groups/2307309606/ The Purple Bucket Foundation https://www.tpbf.org.au/ London Pain Clinic https://www.londonpainclinic.com/complex-regional-pain-syndrome/living-with-complex-regional-pain-syndrome-a-guide-for-friends-and-family/ Chronic Regional Pain Syndrome there is nothing to be seen, apart from sometimes goose bumps or swelling. Remember, CRPS is a enfeeble and difficult condition so for those supporting someone with CRPS make sure that they talk to their friends and family as well, to express their emotions and fears, so that they can be more equipped to support the person with CRPS, even when it can be a very hard task at times. Follow us on Instagram https://www.instagram.com/_invisibility_by_ciardha_/ Facebook https://www.facebook.com/profile.php?id=100095151392397 Contact us email: invisibilitybyciardha@gmail.com inquires@invisibilitybyciardha.org WhatsApp: +1(876)4652274 "Invisible No More: Open eyes, open minds" See yah, next time!
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    11 min
  • Diabetic Neuropathy

    Diabetic Neuropathy
    Mar 1 2024

    Diabetic neuropathy is a type of nerve damage that can occur if you have diabetes. High blood sugar (glucose) can injure nerves throughout the body. Diabetic neuropathy most often damages nerves in the legs and feet.

    Diabetic neuropathy is a profoundly serious complication of diabetes that may affect up to 50% of people with diabetes. Slow its progress with consistent blood sugar management and a healthy lifestyle.

    There are different types of neuropathies based on the nerve that is involved:

    1. Peripheral neuropathy (very common) is a type of nerve damage that usually affects the feet and legs and sometimes affects the hands and arms. About one-third to one-half of people with diabetes have peripheral neuropathy.
    2. Autonomic neuropathy is damage to nerves that control your internal organs, leading to problems with your heart rate and blood pressure, digestive system, bladder, sex organs, sweat glands, and eyes. The damage can also lead to hypoglycaemia unawareness.
    3. Focal neuropathies are conditions in which you typically have damage to single nerves, most often in your hand, head, torso, or leg. The most common types of focal neuropathy are entrapment syndromes, such as carpal tunnel syndrome. Other types of focal neuropathy are much less common.
    4. Proximal neuropathy is a rare and disabling type of nerve damage in your hip, buttock, or thigh. The damage typically affects one side of your body and may rarely spread to the other side. Symptoms gradually improve over a period of months or years.

    SUPPORT GROUPS

    The Foundation for Peripheral Neuropathy www.foundationforpn.org/support/support-groups

    Peripheral Neuropathy Resources Online Support Group www.peripheralneuropathyresources.com

    Peripheral Neuropathy Success Stories (Private Facebook Group)

    Peripheral Neuropathy Resources (Facebook Group)

    Neuropathy Care Support Group (Facebook Group)

    Our Neuropathy Friends (Facebook Group)

    Our Neuropathy Friends Spouses (Facebook Group)

    Peripheral Neuropathy Support Network www.pnsnetwork.org

    On Your Feet (Facebook Group)

    Western Neuropathy Association Contact: Katherine Stenzel at klstenzel@hotmail.com

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    14 min
  • Trigeminal Neuralgia

    Trigeminal Neuralgia
    Dec 23 2023

    Trigeminal neuralgia (TN), also known as tic douloureux, is a disorder of the fifth cranial nerve (trigeminal nerve). We have two for each side of our face. However, TN affects only one side of the face.

    Treatment for TN can be very expensive, with a studying showing that it cost USD3900-USD40,000 in the year of 2018 for sufferers in Taiwan.

    There are several very famous people that suffer openly of this painful condition;


    *Salman Khan (Bollywood)

    *Travis Barker (Blink-182 drummer)

    *Salma Hayek (Desperado)

    *Marcia Cross (Desperate Housewives)

    *Kristin Chenoweth (Glee)

    *George Clooney (ER)

    *Steve Kerr (Head coach Golden State Warrior)

    *Joey Kramer (Aerosmith drummer)


    There are several places that support can be garnered from:


    Trigeminal Neuralgia Association UK (also on Facebook) www.tna.org.uk


    Facial Pain Association www.facepain.org

    www.painuk.org


    The Brain Charity

    www.thebraincharity.org.uk


    Stanford Healthcare

    www.stanfordhealthcare.org

    650-736-0262


    The Facial Pain Association

    www.raredisease.org


    UCL Health: Trigeminal Neuralgia Association Support Group

    www.ucihealth.org

    714-944-3044

    They meet quarterly from 1300-1500


    Trigeminal Neuralgia Association of Canada

    tnac.org>tnac>support-group


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    13 min
  • Fibromyalgia

    Fibromyalgia
    Oct 6 2023

    Fibromyalgia sufferers represent over two million people worldwide. It is one of the most misunderstood conditions due to its non-specific symptoms. As sufferers we need support in many ways especially from our friends and family. Never blame us for developing this conditions especially as it gets worse. No, it is not life-threatening but it is life-changing.


    Treating FMS is also expensive as it not only costs money but manpower where the sufferer misses work frequently. Studies show treatments are more than USD$393.75/annually with an additional USD$2034/annually depending on severity.


    Did you know there are many celebrities that have came out as having fibromyalgia?

    "I wish to help raise awareness & connect people who have it," wrote Lady Gaga, (Stefani Germanotta) on Fibromyalgia.

    Some other celebrities include;

    • Morgan Freeman
    • Mary McDonough
    • Janeane Garofalo
    • Sinéad O'Connor
    • Susan Flannery
    • Florence Nightingale
    • Rosie Hamlin and many more


    Get more help from the following organizations:


    The United Kingdom

    1. Fibromyalgia Association UK: https://www.fmauk.org/
    2. Fibromates (North West Fibro Support Group) : https://www.facebook.com/fibromates/


    United States of America

    1. American Chronic Pain Association in California https://www.acpanow.com/
    2. National council on Disability in Washington, DC https://www.ncd.gov
    3. Fibromyalgia Coalition International Inc. in Kansas https://www.fibrocoalition.org
    4. National Fibromyalgia & Chronic Pain Association in Utah https://www.fmcpaware.org Email- info@fmcpaware.org
    5. FibroFitWarriors https://fibrofitwarriors.com/

    Australia

    1. MoreGoodDays https://www.moregooddays.com/
    2. Fibromyalgia Australia https://www.painaustralia.org.au
    3. Pain Australia https://www.painaustralia.org.au
    4. The Australia Prevention Partnership Centre https://www.preventioncentre.org.au


    Jamaica

    Jamaica Council for Persons with Disability https://jcpd.gov.jm/


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    20 min