Dementia Memoir

In 2015, Barbara Lipska - a leading expert on the neuroscience of mental illness - was diagnosed with melanoma that had spread to her brain. Within months, her frontal lobe, the seat of cognition, began shutting down. She descended into madness, exhibiting dementia- and schizophrenia-like symptoms that terrified her family and coworkers. But miraculously, the immunotherapy her doctors had prescribed worked quickly. Just eight weeks after her nightmare began, Lipska returned to normal. With one difference: she remembered her brush with madness with exquisite clarity.

At six years old, Terry was told by his headteacher that he would never amount to anything. He spent the rest of his life proving that teacher wrong. At 66, Terry had lived a life full of achievements: becoming one of the UK's best-selling writers, winning the Carnegie Medal and being awarded a knighthood for services to literature. Following his untimely death from Alzheimer's disease, the mantle of completing Terry's memoir was passed to Rob Wilkins, his former assistant, friend and now head of the author's literary estate.

Jann Arden moved in to a house just across the way from her parents in rural Alberta to be close to them but also so they could be her refuge from the demands of the music business and a performing career. Funny how time works. Since her dad died in 2015, Jann cooks for her mom five or six times a week. Her mom finds comfort in her daughter's kitchen, not just in the delicious food but also just sitting with her as she cooks. And Jann finds some peace in caring for her mom, even as her mom slowly becomes a stranger.

Many know Kimberly Williams-Paisley as the bride in the popular Steve Martin remakes of the Father of the Bride movies, the calculating Peggy Kenter on Nashville, or the wife of country megastar Brad Paisley. But in 2014, Williams-Paisley revealed a tragic secret: Her mother had been diagnosed with a rare form of dementia called primary progressive aphasia at the age of 61.

It has been said that everyone knows a cancer survivor, but no one has met an Alzheimer's survivor - until now. In his first two books, Dr. Dale Bredesen outlined the revolutionary treatments that are changing what had previously seemed like the inevitable outcome of cognitive decline and dementia. And in these moving narratives, you can hear directly from the first survivors of Alzheimer’s themselves - their own amazing stories of hope told in their own words.

Wendy Mitchell had a busy job with the British National Health Service, raised her two daughters alone, and spent her weekends running and climbing mountains. Then, slowly, a mist settled deep inside the mind she once knew so well, blurring the world around her. She didn’t know it then, but dementia was starting to take hold. In 2014, at age 58, she was diagnosed with young-onset Alzheimer’s. In this groundbreaking book, Mitchell shares the heartrending story of her cognitive decline and how she has fought to stave it off.

In the fall of 1988, Sue Miller found herself caring for her father as he slipped into the grasp of Alzheimer's disease. She was, she claims, perhaps the least constitutionally suited of all her siblings to be in the role in which she suddenly found herself, and in The Story of My Father she grapples with the haunting memories of those final months and the larger narrative of her father's life.

Dealing with Early-Onset Alzheimer’s: Love, Laughter & Tears is Sonia Discher’s heartbreaking but empowering story of caring for her husband, Steve. The story follows Steve’s diagnosis of early-onset Alzheimer’s at age 50 through treatment, care, and his passing. Sonia provides a look behind the curtain of this terrible sickness to reveal a treasure trove of tips and tricks she used to understand the disease, advocate for her husband, care for her family, and preserve her sanity throughout a confusing and sad time.

What happened to the kind, lighthearted gentleman whose strong faith had grounded him for eighty years? When I was growing up, Dad was a playful, happy man who enjoyed bringing pleasure to his loved ones. Constructing a skating rink in the barnyard, planning trailer trips to Disneyland or Montana, building a wakeboard to tow us behind his boat were gifts. Hard-working and ingenious, his whimsy disguised the changes taking place. Dads mission to protect and care for others, while seeking his childhood dream of owning a farm, triggered a slow slide into the current of dementia.

The creator of Deadwood and NYPD Blue reflects on his tumultuous life, driven by a nearly insatiable creative energy and a matching penchant for self-destruction. Life’s Work is a profound memoir from a brilliant mind taking stock as Alzheimer’s loosens his hold on his own past.

Samantha Irby meets Bettyville in this darkly funny and poignant memoir about love, loss, Alzheimer's, and reviving her father's pornographic writing career, from writer and Mortified live producer Sara Faith Alterman. In this cringeworthy, hilarious, and moving memoir, Sara shares the profound experience of discovering new facets of her father; once as a child, and again as an adult. Let's Never Talk About This Again is a must-hear confessional from a woman who spent years trying to find humor in the perverse and optimism in the darkness, and succeeded.

Mom loved adages, quotes, slogans. There were always little reminders pasted on the kitchen wall. For example, the word THINK. I found THINK thumbtacked on a bulletin board in her darkroom. I saw it Scotch-taped on a pencil box she’d collaged. I even found a pamphlet titled THINK on her bedside table. Mom liked to THINK.

Almost six million Americans—about one in every ten people over the age of sixty-five—have Alzheimer’s disease or related dementias, and this number is projected to more than double by 2050. What is it like to live with and amid this increasingly prevalent condition—an affliction that some fear more than death? In My Father’s Brain, the distinguished physician and author Sandeep Jauhar sets his father’s descent into Alzheimer’s alongside his own journey toward understanding this disease and how it might best be coped with, if not cured.

Pat Summitt, the all-time winningest coach in NCAA basketball history and best-selling author of Reach for the Summitt and Raise the Roof, tells for the first time her remarkable story of victory and resilience as well as facing down her greatest challenge: early-onset Alzheimer's disease. Pat Summitt was only 21 when she became head coach of the Tennessee Vols women's basketball team. For 38 years, she has broken records, winning more games than any NCAA team in basketball history.

As a child, Maggie Downs often doubted that she would ever possess the courage to visit the destinations her mother dreamed of one day seeing. "You are braver than you think," her mother always insisted. That statement would guide her as, over the course of one year, Downs backpacked through seventeen countries - visiting all the places her mother, struck with early-onset Alzheimer's disease, could not visit herself - encountering some of the world's most striking locales while confronting the slow loss of her mother.

On April 9th, 2019, Jonathan got the dreaded call: his father Thomas had been rushed to the ER. He’d known for a while that Thomas’s health was in decline, but at this pivotal moment, he had no choice but to step into the role of caretaker—a role Thomas himself was never able to grasp. In The Mind is Burning, Jonathan recounts the stranger-than-fiction true story of the Hirsch family.

Mary Lou Falcone takes listeners on a cathartic journey of caregiving that is filled with hope, laughter, and tears. At the age of ten, Mary Lou's life was forever changed when her father had a severe stroke that took away his ability to speak. While her mother worked three jobs, Mary Lou cared for not only her father but two younger siblings. Echoes of her childhood challenge return when she later faces the biggest test of her life: her soulmate of forty-seven years, the artist Nicky Zann, is diagnosed with the little-known disease Lewy body dementia, which ultimately claims his life.

Acclaimed CBS News reporter Barry Petersen writes about hearing the unimaginable; what it meant, what it still means, what he did---and didn't do---and how this beautiful love story needs to be heard by the thousands of families who have already heard that same devastating diagnosis: early onset Alzheimer's disease. Even though Barry has spent his long-time, award-winning television career covering wars and events that shaped the world, he was not even slightly prepared for what happened to his darling wife, Jan, and how it would impact his life.

In March 2020, Martha McPhee, her husband, and their two children set out for her childhood home in New Jersey, where she finds herself grappling simultaneously with a mother slipping into severe dementia and a house that’s fallen into neglect. As Martha works to manage her mother’s care and the sprawling, ramshackle property—a broken septic system, invasive bamboo, dying ash trees—she is swept back, unwillingly, into memories of her fraught, dysfunctional childhood.

In My Two Elaines, author Marty Schreiber, former governor of Wisconsin, watches his beloved wife, Elaine, gradually transform from the woman he fell in love with in high school, and who diligently supported his political career, to the Elaine who knows she is declining and can’t remember how to cook a meal, and finally to the Elaine who no longer recognizes Marty or their children. Beyond sincere, practical advice, My Two Elaines gives the listener permission to feel the full spectrum of emotions, including humor, even in the face of this relentless illness.