Disability Biography

In 2018, Joe Hammond, wrote a piece for the Guardian about the 33 birthday cards he was writing for his two sons. It was shared by thousands. In A Short History of Falling he tells the story behind that piece, about the experience of living with - and dying of - motor neurone disease (ALS). A Short History of Falling is not a lament. It is a deeply imaginative meditation on what it feels like to confront the fact that your family will persist through time without you.

Jan Grue was diagnosed with spinal muscular atrophy at the age of three. Shifting between specific periods of his life - his youth with his parents and sister in Norway; his years of study in Berkeley, St. Petersburg, and Amsterdam; and his current life as a professor, husband, and father - he intersperses these histories with elegant, astonishingly wise reflections on the world, social structures, disability, loss, relationships, and the body: in short, on what it means to be human.

On July 4th, 2013, Connor Sparrowhawk, also known as Laughing Boy or LB, was found dead in a specialist NHS unit. Connor, who had autism and epilepsy, had a seizure while in the bath, and no member of staff was on hand to stop him from drowning. An entirely preventable death. Sara Ryan presents a frank, sometimes funny and touching account of her son's early life and preventable death and the unfolding #JusticeforLB campaign.

A raccoon bite on the arm doesn’t seem that serious, but it soon becomes a life-or-death medical crisis for Melissa Loomis. After days of treatment for recurring infection, it becomes obvious her arm must be amputated. Rewired is the inspirational, miraculous story of Dr. Ajay Seth’s revolutionary surgery that allows Melissa to not just move a prosthetic arm simply by thinking, but to actually feel with the prosthetic hand, just as she would with her natural arm. This resulted in what others have recognized as the world’s most advanced amputee.

When a devastating event takes away the way of life you are accustomed to, you have two choices: Stop living, or start planning! In this memoir, Shawn Paulsen demonstrates how he has overcome his stumbling blocks and turned them into stepping stones on his journey through the misfortunes of life. Shawn’s story inspires and motivates others to overcome. He describes how he has learned to face adversity with his chin up by taking a comedic view of his malady and life.

Now you can go where no one has been before: deep inside a mind with high-functioning autism. In his roller coaster of a life, Dylan Volk (aka Dielawn) has lived all over the country, tried to fit in with many different crowds, and been in jail a few times. Now he has written a tell-all book to give you all the juicy details. Don't listen to this book before you go to sleep - you may be up all night!

It was a crisp winter day when six-year-old Kacey McCallister lost both of his legs, forever altering the course of his life. This unthinkable trial could have broken him, but from that day forward, he chose to rise above his circumstances and learn to live without limits. For those struggling to find hope in the depths of physical, spiritual, or emotional trials, this incredible story of one man’s unbreakable courage will inspire and motivate listeners to not only survive, but thrive amidst life’s challenges.

Randy Pierce was 22 years old, fresh out of college, and thriving at an excellent job. His promising future seemed certain. Then, in just two short and devastating weeks, an unexpected neurological disorder plunged him into blindness. Randy, believing his future had vanished in the blink of an eye, wondered, “How can my life have meaning now?” Before he could fully answer, he had further to fall. Blindness was far from the worst challenge he would face. See You at the Summit is Randy’s uplifting personal account of his journey through adversity to accomplishment.

At 35, the same age as his mother when she had her accident, Mitch began experiencing symptoms of primary progressive multiple sclerosis, a particularly disabling form of MS, and his physical challenges grew to resemble his mother’s. In the ensuing years, he muddled through the ethical swampland of clinical trials, navigated the minefield of experimental treatments, and became a popular blogger and disability advocate. Equal parts entertaining and inspiring, Enjoying the Ride tells an extraordinary mother and son story.

Theresa Marafito, daughter of Irish immigrant parents, was born in 1933 in New York City, blind in one eye with partial vision in the other. She was a precocious child who wanted to appear “normal” to her peers and family, regardless of her disability. Her game was to be independent, not dependent, and would rarely ask for help. At 19, she graduated magna cum laude with two master’s degrees. Theresa and her husband, Jerry, who was also visually impaired, would build a house on a shoestring budget and had two daughters; one who was also born visually impaired.

I will state that though listed as a memoir, this is for the most part a fiction book subject (epilepsy Zen). They say that Yin Zen questioning is talking to your higher consciousness; epilepsy Zen meditation is contemplating your navel or lower than your tanzen - doorway to the hara and hearing the giant ocean roar from within a fragile seashell and learning the Yang illuminating answer.

Mit 15 Jahren verliert der Deutsch-Singhalese Saliya Kahawatte innerhalb von Monaten einen Großteil seines Augenlichts. Die Ärzte sagen, dass er eines Tages völlig blind sein wird. Er soll die Schule verlassen und in die Blindenwerkstatt, er aber träumt von Abitur, Studium und selbstbestimmtem Leben. 15 Jahre lang verschweigt er seine Behinderung, um in der Welt der Sehenden Karriere machen zu können. Fingerspitzen, Ohren und seine Intuition ersetzen seine Augen.

Blaze Ginsberg offers a unique view into his mind and life as a high functioning autistic teenager. Inspired by the format of the Internet Movie Database, Ginsberg organizes the events in his life as a collection of "episodes." Some of these are ongoing (like Thanksgiving dinners with his family), some are in syndication, and some (his crush on Hillary Duff, for example) have sadly come to an end. Using a style and a language all his own, Blaze reinvents the traditional memoir for listeners of all ages.

Blind from birth, Graeme Innes was blessed with a family who refused to view his blindness as a handicap, instilling in him a belief in his own abilities; blessed with a determination to persevere. After a long and successful career as a lawyer, company director and Human Rights Commissioner, Graeme has written his story. Finding a Way shares his memories of love and support, challenges, failures and overcoming the discrimination so many people with disabilities face.

In the mid-1970s, brothers Buddy and Jimmy Miley were close, both on the verge of impressive athletic careers. A promising high school quarterback, Buddy's potential was cut short by an injury that left him quadriplegic. Immobile and imprisoned in his body for decades, Buddy would watch life pass by from his wheelchair, living at home under his mother's and brother's care and wondering what his life could have been.

Gradually going blind in his 20s, Rich Ruffalo refused to face reality. And then, one rainy evening, unable to make sense of the road before him, he suddenly felt his car thud against a little girl. Jolted into reality, Ruffalo refused to be knocked down and, instead, put his all into achieving. As a teacher he excelled, winning the Princeton University Distinguished Secondary School Teacher of the Year Award and Disney's Outstanding Teacher of the Year Award. Then, he set the bar even higher.

A young man with special powers is forced to retire from a life of violent crime and escape from New York City at the age of 18. He gets his life together and becomes a respected physician. Thirty years later, he is afflicted with a mysterious illness silently sweeping across the globe. While desperately struggling to find redemption and a cure, he learns that violent associates from his past and federal law enforcement agents are still relentlessly in pursuit.

At age 54, Chris Monnette is diagnosed with neovascular macular degeneration, an incurable retinal disease that slowly robs him of his eyesight. As each cell in his macula dies and his vision diminishes, he is forced, literally and figuratively, to see the world through different eyes. Raised in the shadow of an emotionally stifled father, Chris learns early on to mirror the belief that vulnerability equals weakness. A piercingly honest meditation on the emotional legacy of stoicism, Seeing Clearly is much-needed proof that being a man and being vulnerable are one and the same.

Have you ever wondered how a blind person pours a cup of coffee? Or how they and their guide dog know when it's safe to cross a busy road? When Lois Strachan lost her sight at the age of 21 years, she had to learn the answers to these and countless other questions of how to live as a blind person in a sighted world. In this delightfully quirky and entertaining book, Lois shares some of the secrets she discovered about how to live an “ordinary” life in an extraordinary way despite her disability.

私たちは本当に「見て」いるのか?触れて、聴いて、初めてわかる、この社会のかたち。時に鋭く、そしてあたたかく。ユーモアに満ちた随想集。