Disability Memoir

Henry Markram is the Elon Musk of neuroscience, the man behind the billion-dollar Blue Brain Project to build a supercomputer model of the brain. He has set the goal of decoding all disturbances of the mind within a generation. This quest is personal for him. The driving force behind his grand ambition has been his son Kai, who has autism. Raising Kai made Henry Markram question all that he thought he knew about neuroscience, and then inspired his groundbreaking research that would upend the conventional wisdom about autism, expressed in his now-famous theory of Intense World Syndrome.

After a diagnosis of a degenerative eye disease, John Samuel’s life—and his chance at success—started to vanish. In a world systemically unequipped for accessibility, disability inclusion is often left out of conversations about diversity. For people with disabilities, it can feel impossible to adapt and thrive when you’re already set up for failure.

私たちは本当に「見て」いるのか?触れて、聴いて、初めてわかる、この社会のかたち。時に鋭く、そしてあたたかく。ユーモアに満ちた随想集。

A late bloomer’s coming-of-age memoir asks how does one accept and free themselves from visible and invisible disabilities and still retain their sense of connection and humor? Nothing Special is a disarmingly candid tale of two sisters growing up in the 1970s in rural Connecticut. Older sister Chris, who has Down syndrome, is an extrovert, while the author, her younger, typically developing sister, shoulders the burdens and grief of her parents.

From the author of the viral New York Times op-ed column "To Siri with Love" comes a collection of touching, hilarious, and illuminating stories about life with a 13-year-old boy with autism that hold insights and revelations for us all.

A fourteen-year-old teen’s life takes an unexpected turn. Will she be able to overcome the obstacles that life throws at her time and time again? Will she be able to battle her demons and not lose herself, or her life, due to the life-altering diagnosis and the darkness that seems to be lurking around every corner that she turns and overcome? Will she be able to live a life of brighter days ahead of her?

Why the Cane? is a personal memoir which recounts the true story of a man’s regaining a level of activity he thought would not be possible after a devastating injury. It chronicles his medical journey, the upheaval suffered by his family, and the counsel and support which shifted his focus and provided a framework to make thoughtful decisions for the long term.

My Four Seasons is a testimony of life. A personal diary transformed into a profound but also fun lecture about how to face an illness with a positive mind; describing how the family and the friends play the most important role in recovery.

This is a guide for anyone going into a mental asylum or institution for the first time, or if you have a delusional loved one, with a mental illness, this will help you relate to them better in understanding insanity. Now, join me, in the asylum, as together we go on a very odd journey of discovery in my first mental institution experience. Enter a strange world, before I was diagnosed with schizophrenia, as I compete against other game show contestants in a battle to win genetic traits for my family tree.

Sugar Mamas is a book of personal stories of women who have a condition called lipedema, which affects 11% of women in the world and results in often debilitating fat deposits in the legs, thighs, hips, arms and other areas. While lipedema is primarily a woman's disease, the research on the condition has only in the last five years really taken off, so the causes and treatments are still in early research stages.

Cancer is cancer. Chemo is chemo. Right? That's what Mel thought before she received her diagnosis. But she quickly found out she had a lot to learn! From bird poo to shingles, Aunt Sally to burnt boob, and too many other "special joys" to mention: Who knew?

Johann König verliert als Kind durch einen Unfall fast vollständig seine Sehkraft. Wie kann man sich Kunst erschließen, wenn man sich auf seine Augen nicht verlassen kann? Was ist Sehen überhaupt, wenn die Welt um einen herum verschwimmt? In seinem Buch "Blinder Galerist" beschreibt Johann König, wie es ihm gelang, die Welt und die Kunst neu wahrzunehmen. "Die Bilder, die im Kopf entstehen, sind genauso wichtig wie die Bilder an der Wand".

Inizia con un formicolio nella parte destra del corpo. E una strana stanchezza. L’equilibrio che si fa precario. Quando, mesi dopo i primi sintomi, arriva la diagnosi di sclerosi multipla, Marco ha trent’anni e una carriera da tenore appena avviata. Come gestire i concerti e le audizioni in giro per il mondo senza sapere come ci si sveglierà domani? Marco mantiene segreta la sua nuova, scomoda compagna di viaggio. Almeno fino al 2013, quando, nella prima apparizione di Sintomi di felicità, decide di rivelarla al mondo.

Steph Hammerman has been motivating herself and others her entire life. Since defying the odds by surviving as a one-pound, fifteen-ounce baby and weeks later being diagnosed with cerebral palsy, to beating Hodgkin's lymphoma stage 3B cancer in 2016, Steph has been a living example of overcoming seemingly insurmountable objects in order to achieve the impossible.

Was zählt wirklich im Leben? Zuhören! Moderator und Youtube-Star Leeroy Matata teilt seine Erfahrungen mit uns. Hey Freunde, herzlich willkommen! Mein Name ist Leeroy und ich freue mich, dass ihr euch dieses Hörbuch gerade anschaut. Denn hier spreche ich so offen wie noch nie über das, was mich bewegt. Wir alle machen unterschiedliche Erfahrungen, die uns oft ein Leben lang prägen. Und niemand von uns kann in den Kopf anderer Leute schauen, deshalb führt das oft zu Missverständnissen. Aber das muss nicht so sein.

Just when life seemed rosy and the sun was shining, Dr. Bhaskar Bora sustained a severe spinal cord injury in July 2019 following an operation, which left him with paralysis of both legs, a nonfunctioning right hand, and a long stay in the hospital, eventually leading to a forced medical retirement from his medical career and a wheelchair in place of a sports car. Poorer financially but richer in experiences of life, he is now a voice for the disabled and has written the book The Second Chance in Life as an honest reflection of his life experiences.

Die sechzehnjährige Nujeen erzählt, wie der syrische Krieg eine stolze Nation zerstört, Familien auseinanderreißt und Menschen zur Flucht zwingt. In Nujeens Fall zu einer Reise durch neun Länder, in einem Rollstuhl. Doch es ist auch die Geschichte einer willensstarken jungen Frau, die in Aleppo durch eine Krankheit ans Haus gefesselt ist und sich mit amerikanischen Seifenopern Englisch beibringt, weil sie die starke Hoffnung auf ein besseres Leben hat.

We think of perception as a passive, mechanical process, as if our eyes are cameras and our ears microphones. But as neurobiologist Susan R. Barry argues, perception is a deeply personal act. Our environments, our relationships, and our actions shape and reshape our senses throughout our lives. This idea is no more apparent than in the cases of people who gain senses as adults. Barry tells the stories of Liam McCoy, practically blind from birth, and Zohra Damji, born deaf, in the decade following surgeries that restored their senses.

We’ve all had moments of feeling like we didn’t belong, but imagine being born into a world where fitting in was never an option. Michele Sullivan, who has a rare form of dwarfism, shares how her physical posture taught her the most effective relational posture with others, which helped her become one of the most powerful women in philanthropy.

In 2012, combat engineer Curtis McGrath was serving in the Australian army in Afghanistan when, in the line of duty, he stepped on a mine. Seriously injured but still conscious and aware he'd bleed out and die within minutes, McGrath, as the unit's chief first-aid officer, directed his comrades to apply tourniquets and administer an IV and morphine. Then, as he was stretchered to a helicopter, fearing he would never see his family again, he joked that he planned to become a Paralympian.