Disability Memoir

Tommy Jessop is a multi-award winning actor, theatre performer, and campaigner. Tommy has been at the vanguard of bringing awareness of the potential of people living with Down syndrome to the media, and to government. A Life Worth Living will be Tommy's story - from his journey into acting and campaigning while showing his unstoppable determination, charisma, and love for life.

Growing up in Mineral Wells, Texas during the 1950s and 60s was anything but idyllic for Walter Ashby. Due to a misdiagnosis and medical error, his sister Janie went from being a lively young girl to a shell of a person who required their parents’ attention 24 hours a day, every day. To add insult to injury, his parents received another blow: before Walter was six-years-old, he lost 98 percent of his vision, leaving him legally blind.

People around the world have fallen in love with Penguin the Magpie, a global social media sensation, and her adventures with her human family. But there is far more to Penguin's story than meets the eye. It all begins when Sam, Cameron Bloom's wife, suffers a near fatal fall that leaves her paralyzed and deeply depressed. One of their three sons, reeling from the tragic accident, discovers an injured magpie chick abandoned after she had fallen from her nest. The boys name the bird Penguin, for her black-and-white plumage.

I matti ci incuriosiscono, ci costringono a riflettere, ci cambiano lo sguardo, ci mettono davanti ai nostri fantasmi, non ci lasciano mai indifferenti. La storia dell’uomo è costellata di individui eccentrici, bizzarri, anticonformisti, visionari, in molti casi con disturbi psichici gravi, ma altamente creativi in campo letterario, artistico, scientifico. Partendo da queste considerazioni, è nata l’idea di una sorta di calendario che racconti, al posto del santo del giorno, il matto del giorno.

Randy Pierce was 22 years old, fresh out of college, and thriving at an excellent job. His promising future seemed certain. Then, in just two short and devastating weeks, an unexpected neurological disorder plunged him into blindness. Randy, believing his future had vanished in the blink of an eye, wondered, “How can my life have meaning now?” Before he could fully answer, he had further to fall. Blindness was far from the worst challenge he would face. See You at the Summit is Randy’s uplifting personal account of his journey through adversity to accomplishment.

At 35, the same age as his mother when she had her accident, Mitch began experiencing symptoms of primary progressive multiple sclerosis, a particularly disabling form of MS, and his physical challenges grew to resemble his mother’s. In the ensuing years, he muddled through the ethical swampland of clinical trials, navigated the minefield of experimental treatments, and became a popular blogger and disability advocate. Equal parts entertaining and inspiring, Enjoying the Ride tells an extraordinary mother and son story.

Published in 1996, Life as We Know It introduced Jamie Bérubé to the world as a sweet, bright, gregarious little boy who loves The Beatles, pizza, and making lists. At four he is like many young people his age, but his Down syndrome leads most people to see him only in terms of his disability. Twenty years later Michael Bérubé chronicles his son's growth and his growing love of the world, writing as both a disability studies scholar and as a father.

During an ordinary Fall afternoon, Kimber Hanchey-Ogden was delivered devastating news: Seth, her 17-year-old son, had been hit by a car and airlifted to a hospital! Having sustained a traumatic brain injury, doctors told her that if Seth made it, he would never be able to walk or talk; he would not remember his past or understand humor. And that was just for starters.

When Pepper Stetler was told that her daughter who has Down Syndrome would be regularly required to take IQ tests to secure support in school, she asked a simple question: why? In questioning the authority and relevance of the test, Stetler sets herself on a winding investigation into how the IQ test came to be the irrefutable standard for measuring intelligence. The unsettling history causes Stetler to wonder what influence this test will have over her daughter's future and whether Louisa should be taking it at all.

In the depths of despair, contemplating suicide, I gazed out a rain-streaked window in Maryland, where blurred colors in a parking lot mirrored my shattered soul. The shame of being sexually abused haunted me with recurring nightmares and PTSD, leading to a life cloaked in a complex facade of military titles and untold secrets. In this powerful memoir, published poet and author Adam Volant shares his raw and inspiring testimony of overcoming unimaginable brokenness to achieve success.

Here is the inspiring story of a man who overcame childhood polio to live an adventure-filled life as captain of Maine's most famous windjammer, the schooner Adventure, now a national historic landmark in Gloucester, Massachusetts. Captain Jim shares his adventures afloat, his battles with bureaucracy, and even how he created one of Maine's most unusual restaurants.

A two-week vacation to the Florida Keys meant Mary and Jameson Sr. could share the beauty of their favorite turquoise-blue waters with their four children. On that serene day at Looe Key Reef, after they finished lunch on the boat, their oldest, ten-year-old Jameson Jr., was swimming among the marine life, capturing breathtaking footage of a sea turtle. Until a massive bull shark attacked.

At age 54, Chris Monnette is diagnosed with neovascular macular degeneration, an incurable retinal disease that slowly robs him of his eyesight. As each cell in his macula dies and his vision diminishes, he is forced, literally and figuratively, to see the world through different eyes. Raised in the shadow of an emotionally stifled father, Chris learns early on to mirror the belief that vulnerability equals weakness. A piercingly honest meditation on the emotional legacy of stoicism, Seeing Clearly is much-needed proof that being a man and being vulnerable are one and the same.

In this intimate story of relationship resilience, marine biologist Beth Mathews’s adventurous life as a professor and mother in Alaska is upended when her healthy husband is slammed by a rare type of stroke. Jim’s radical approach to recovery clashes with Beth’s instinct to keep him safe at home and sets them on a collision course as he insists on ambitious sailing expeditions with Beth and their young son in Alaska’s magnificent yet unforgiving waters.

It’s 1970, and Jerry Walker is six years old. His consciousness revolves around being a member of a church whose beliefs he finds not only confusing but terrifying. Composed of a hodgepodge of requirements and restrictions—including a prohibition against doctors and hospitals—the underpinning tenet of Herbert W. Armstrong’s Worldwide Church of God was that its members were divinely chosen and all others would soon perish in rivers of flames.

The book is an exciting true story filled with adventure and humorous anecdotes. The narrative starts by providing a background from earlier ancestors - through four generations. The author gives a unique account, beginning in Chipinge, located in Zimbabwe's eastern highlands. The villagers are confused by the ambiguous nature of how their ancestral land changed ownership.

One September day in 1955, Rita’s life changed forever when polio struck her family. She was five years old. Rita became totally paralyzed; her brother was partially affected, and she lost her mother to the virus. The hospital became her home, and the ward sister her mother. Hospital life was harsh in the 1950s: Crying was a punishable offence and meant solitary confinement. Rita struggled to walk again using leg callipers and a spinal brace, and later became mobile with the use of a wheelchair.

When a devastating event takes away the way of life you are accustomed to, you have two choices: Stop living, or start planning! In this memoir, Shawn Paulsen demonstrates how he has overcome his stumbling blocks and turned them into stepping stones on his journey through the misfortunes of life. Shawn’s story inspires and motivates others to overcome. He describes how he has learned to face adversity with his chin up by taking a comedic view of his malady and life.

Do you know an adult with autism, Down syndrome, or another special need? One in eight people on our planet live with some form of disability. And they all deserve to live productive, engaged lives. Are we willing to help them accomplish this goal? The mother of an adult with autism, Andrea Moriarty leveraged her son’s passion, talent, and personality to help him create an out-of-the-box vocation: A podcast. After more than 80 interviews, she recognized three vital attitudes that people with disabilities teach us - risk taking, humility, and kindness.

Now you can go where no one has been before: deep inside a mind with high-functioning autism. In his roller coaster of a life, Dylan Volk (aka Dielawn) has lived all over the country, tried to fit in with many different crowds, and been in jail a few times. Now he has written a tell-all book to give you all the juicy details. Don't listen to this book before you go to sleep - you may be up all night!