Disability Memoir

A Michele La Pusata, dodici anni fa, è stata diagnosticata la Sclerosi laterale amiotrofica, meglio conosciuta come SLA. Prima, la sua era una vita più che normale, tra figli, lavoro e piccole incombenze, poi non lo è stata più. Non si mette mai in conto di affrontare una malattia lenta e invalidante come questa e infatti nessuno è preparato.

We think of perception as a passive, mechanical process, as if our eyes are cameras and our ears microphones. But as neurobiologist Susan R. Barry argues, perception is a deeply personal act. Our environments, our relationships, and our actions shape and reshape our senses throughout our lives. This idea is no more apparent than in the cases of people who gain senses as adults. Barry tells the stories of Liam McCoy, practically blind from birth, and Zohra Damji, born deaf, in the decade following surgeries that restored their senses.

We’ve all had moments of feeling like we didn’t belong, but imagine being born into a world where fitting in was never an option. Michele Sullivan, who has a rare form of dwarfism, shares how her physical posture taught her the most effective relational posture with others, which helped her become one of the most powerful women in philanthropy.

In 2012, combat engineer Curtis McGrath was serving in the Australian army in Afghanistan when, in the line of duty, he stepped on a mine. Seriously injured but still conscious and aware he'd bleed out and die within minutes, McGrath, as the unit's chief first-aid officer, directed his comrades to apply tourniquets and administer an IV and morphine. Then, as he was stretchered to a helicopter, fearing he would never see his family again, he joked that he planned to become a Paralympian.

The Umbrella Picker tells the true story of a woman who was lost for 45 years until she learned that she is Autistic. After a long and relentless journey of searching for answers, the hand of fate finally revealed to her what she had waited a lifetime for. Learning she was Autistic was life changing. She is no longer lost, and having found her own, unique way, Jane has written the (brutally honest!) book she wished was available to her years earlier.

A fourteen-year-old teen’s life takes an unexpected turn. Will she be able to overcome the obstacles that life throws at her time and time again? Will she be able to battle her demons and not lose herself, or her life, due to the life-altering diagnosis and the darkness that seems to be lurking around every corner that she turns and overcome? Will she be able to live a life of brighter days ahead of her?

" On ne saura jamais quel aurait été mon destin sans cette maladie – une méningite bactérienne foudroyante à l’âge de six ans –, mais je n’aurais sans doute pas vécu le quart de ce que j’ai eu la chance de vivre jusqu’à présent. Je suis Théo Curin, vingt-deux ans, amputé des quatre membres, bien dans ma tête, bien dans ma peau. Quand on me demande comment je réagirais si on me rendait bras et jambes, je réponds : “Non, merci, je ne saurais qu’en faire !” J’ai des choses à dire et le sentiment d’être écouté, que demander de plus ? "

This book is about one mom's journey in raising a child with special needs. Her daughter Lydia has Down syndrome. This is the story of their life together. Kerry Lynn Patton shares the blessings, trials, and what their family has learned by having Lydia in their lives. This is not meant to be a “How To” book for raising a child with special needs, but rather a book to encourage moms, dads, family, and friends. This delightful book is written in whimsical and heartfelt “snippets" for the listener to enjoy a little at a time or easily in one sitting.

Madness and genius are often said to be close bedfellows, although the link between the two is little understood. Chris Joseph has known both extremes, and in The Golden Straitjacket, he lays bare his struggle with bipolar disorder and the condition's pendulum-like swing between creative dynamism and dark despair. The 66 stories or "manicdotes" can be enjoyed together or in isolation - they tell the tale of an extraordinary man whose struggle to overcome physical and mental obstacles will be an inspiration to anyone facing the stigma of physical disability and mental illness.

In the face of a mysterious and terrifying illness, this is the story of a family trying to maintain some kind of togetherness. Torn between his commitment to keep Clarisa a part of Janir’s life and the threat she poses to that life, John acknowledges that he can care for his son in ways he never could for Clarisa. All who have experienced the wrench of mental illness in the family will recognize their own journey in this heartfelt story of fatherhood.

"Ich bin einer derer, die die Jahreskarte gezogen haben. Wenn ich abrutsche oder hochfliege, dann für eine lange Zeit. Dann bin ich nicht mehr zu halten, ob im Flug oder im Fall." Die fesselnde Chronik einer manisch-depressiven Erkrankung: ein autobiografisch radikales Werk von höchster literarischer Kraft.

Eight Fingers and Eight Toes: Accepting Life's Challenges is a story of the power of a mother's love for her children and her journey of self-love. It is a story of struggles and learning to accept and overcome challenges. One takes a front row seat as the author learns answers to questions asked decades ago that result in part from the family being the first ever to have their entire genome sequenced.

Brendan Conboy published his biography, ‘The Golden Thread’ in 2015. This is his continuing story and is an example of how God can still use us regardless of our weaknesses, disabilities, age and infirmities. Brendan lives with a life-limiting and disabling kidney disease. He has faced many life-threatening battles and persevered. Nearly died four times, been on life support twice. He has been in the well-known tunnel of light twice, the approach road to heaven.

In January 2016, life took an unexpected turn for Marilyn Miller Lowry when a stroke abruptly had her asking those questions—and more. In the years since, Lowry examined her life and made dramatic changes that opened up more possibilities than she ever imagined. Grateful to be able to author A Stroke of Magic, Lowry uses her background as a counselor to share candid observations of the trauma that comes with unexpected physical disability.

If you're skeptical about changing society's discriminatory treatment of people with dwarfism and other disabilities, Van Etten offers hope with these words: "Advocacy makes change possible when people call out what is wrong, care enough to stand up for what is right, commit to the cause for as long as it takes, and have confidence in God's power to change hearts". Van Etten repeatedly demonstrates the power of advocacy in this audiobook.

See how, throughout her life, she became a believer, and even with Kerry and Kaylynn's love and support, she had to find the strength elsewhere to get up each and every day to be the best mom she could be for Austin. Listen to how still, to this day, she struggles with negative emotions and guilt and needs to be reminded often that God is in control, and he will never forsake her, even when she feels she is alone.

Jen Bricker was born without legs. Shocked and uncertain they could care for her, her biological parents gave her up for adoption. In her loving adoptive home, there was just one simple rule: never say "can't". And pretty soon there was nothing this small but mighty powerhouse set her sights on that she couldn't conquer: roller-skating, volleyball, power tumbling, and spinning from silk ribbons 30 feet in the air. Everything Is Possible is her incredible story.

La forza necessaria per superare i nostri limiti è già dentro di noi. L'importante è non perdere di vista l'obiettivo finale. Questa è la storia di un ragazzo molto speciale. Ma è anche la storia di un ragazzo come tutti gli altri, che deve crescere e imparare ad accettarsi così com'è, ad aprirsi e a farsi voler bene, a superare i momenti difficili e ad apprezzare la meraviglia di ogni giorno. E scoprire che, a volte, avere il vento contro è proprio quella condizione ideale che ti fa venire voglia di volare. Questo ragazzo si chiama Daniele, ed è cieco dalla nascita.

Be inspired by the story of Kevin Atlas (formerly Laue), whose faith and perseverance helped him become an NCAA Division I basketball player, despite being born with only one arm. Even before entering the world, Kevin Atlas was a fighter. He should have died in childbirth, as the umbilical cord was wrapped around his neck twice, but he survived because his left arm was in the middle of it, allowing blood to flow to his brain. But since circulation was cut off in that arm, he was born with his left arm ending just below his elbow.

An eye-opening wife’s journal which speaks about an amazing and unbelievable traumatic brain injury adventure. Written with love, respect, and humor, this is a must-listen for anyone who wants to know about a TBI survivor’s daily routine.