Disability Memoir

Carly-Jay Metcalfe was born with cystic fibrosis, survived a double-lung transplant at the age of 21 and faced a rare cancer at the age of 30. What she has endured should have killed her, but her humour, courage and optimism became her best survival skills. From her hospitalised childhood to her many friendships, loves and losses, Metcalfe shares the fickle nature of life with candour and warmth. She writes with compelling insight about organ donation, opioid addiction and survivor's guilt, while still managing to find joy amongst the wreckage.

Theirs was an unlikely life together. Sheila gave birth to Josephine on 11th May 1993 and for twenty-three years they co-existed in a loving mother-daughter relationship, but one with a difference. Josephine suffered catastrophic brain injury at birth, never spoke to Sheila, rarely smiled and was barely able to see the faces of the people who loved her.

I am not trying to be a role model, just a possibility. There are obstacles, and people may not always treat you properly, but there is progress. My story is one of many that doesn't choose death over paralysis. It's just a story that doesn't get told often enough.

The Umbrella Picker tells the true story of a woman who was lost for 45 years until she learned that she is Autistic. After a long and relentless journey of searching for answers, the hand of fate finally revealed to her what she had waited a lifetime for. Learning she was Autistic was life changing. She is no longer lost, and having found her own, unique way, Jane has written the (brutally honest!) book she wished was available to her years earlier.

Her Name Was Lola is the story of Trish Ryan’s triumphant recovery from a stroke that should have killed her. She had a successful career in the entertainment industry for over 30 years until May 5th, 2017, when she suffered a severe stroke that changed her life forever. Living a very fast-paced life had not prepared her for when it all came to a grinding halt. Lost and confused with no roadmap to follow, she relied on her faith to show her the way to embrace what happened and move forward.

This book is about one big rollercoaster. It's about a girl who has CP (cerebral palsy) and the challenges she has faced throughout her life. A girl who is lucky to be blessed with people who stood beside her all the way. A girl who tries to do it all and doesn't let her CP get in the way of life. She just goes with it!

Darkness—that’s what Bozena Gasior remembers feeling when she first heard her two-year-old son’s autism diagnosis. What followed was a cacophony of despair and cries, not knowing what to do, say, or feel. It was the day she thought that part of her son’s life had died. But one eventful day some four years later, his fingers touched the piano keys for the first time, and she felt something—a glimmer of light shining down, illuminating her home and family.

The story of Dr Amo Raju OBE DL is truly remarkable. Today, he is a multi-award winning member of society. Yet as a disabled child to present day, many around him have attempted to determine his future according to their own limiting expectations which led him to a thirty-year secret ‘relationship’ with depression. Authors Amo and Mani have ensured the protagonist, AJ Rai, based on Dr Amo Raju OBE DL, takes you on a journey of pain, heartache, laughter and triumph whilst capturing real-life scenarios which will keep you gripped to the next chapter.

Damaged is a story of survivor's guilt coupled with resentment tempered by love. It reveals the changing dynamics of a family faced with an injury no one could heal. Nancy Klein was in the first trimester of her second pregnancy when she made headlines as "Coma Mom." This intimate memoir, written by Klein's sister, reveals all that happened to her and her family after the news cycle moved on. The family: a mother who never gave up hope, even when hope was long gone, and a father who couldn't live without his wife's love.

Hilda’s family didn’t know she had muscular dystrophy. They just knew their preschooler was losing her ability to walk. But they were determined to find a cure. Being disabled in Cameroon meant not only obstacles to transport, but visits to diviners and evangelists, threats of sexual assault, discrimination, and a crisis of faith. Despite the hardship Hilda has faced, her family’s unwavering support and God’s unwavering grace have helped her persevere to become a national broadcaster.

Born four weeks premature and weighing little more than five pounds, Scott A. McCreight had a rough start and uncertain future. He was placed for adoption, but the good news didn’t last long: shortly after, Scott was diagnosed with cerebral palsy. Developmental delays permeated his childhood, the odds for a “normal” life seemingly stacked against him.

«Sono Rachele e ho 29 anni. A un mese dalla nascita, è stato detto ai miei genitori che avevo la fibrosi cistica, una malattia genetica degenerativa da cui non si può guarire. La malattia non si vede perché colpisce principalmente gli organi interni; tutte le secrezioni sono alterate e molto dense, il muco ristagna ed è difficile respirare. Quando sono stata invitata a un evento della Fondazione per la Ricerca sulla Fibrosi Cistica, mi sono chiesta: come faccio a unire la mia passione per i motori con quello che mi sta più a cuore?»

Desde la infancia hasta la maternidad, Fernanda Gamboa comparte su experiencia vital con el Trastorno por Déficit de Atención e Hiperactividad (TDAH), revelando cómo una diferencia neurológica puede convertirse en fuente de fortaleza. A través de historias íntimas, anécdotas conmovedoras y reflexiones profundas, esta obra guía al lector por un viaje de autoconocimiento, sanación y empoderamiento. Con un enfoque práctico y humano, la autora desmitifica el diagnóstico, ofrece herramientas para familias y parejas, y construye una comunidad de aceptación: la Tribu Especial-Mente.

Cassy is the first of her generation born into a Christian Lebanese family after they emigrated to Australia, and she was set to be the golden grandchild. But when it was discovered that she had cerebral palsy, the promise of her wonderful future vanished, and a veil of shame descended. Now an embarrassment to the family, Cassy was hidden away from the community, just tolerated at home, and told she was an embarrassment, useless and would have no future.

Si no es cada cuatro años que se celebran los paralímpicos, si no se acerca el Día Internacional de las pcd, cuando las marcas realizan acciones; si no es que el gobierno da beneficios fiscales para impulsar la inserción laboral de este grupo, el resto del tiempo las personas con discapacidad viven entre las sombras.

I Sverige finns mer än en miljon anhöriga som vårdar eller stöttar en närstående med fysisk eller psykisk ohälsa eller funktionsnedsättning. Även om var och en har sin unika historia är det mycket som förenar oss. Anhörig i ett hav av känslor ger röst åt våra berättelser. Om ovisshet och oro, otillräcklighet och frustration, skuld och skam, sorg och maktlöshet. En situation som kan utveckla oss som människor, men också utmana och slita ut oss. Det handlar om avgrunder och guppande känslohav, men också om stillsamma solgläntor och fascinerande utsiktsplatser.

2020 was a hard year for everyone. In this journal, learn how one woman experienced the pandemic while also having to deal with the effects of having bipolar disorder. From the book: "Truth is best expressed as silence. Words are our creations. They come and go, live and die. They are incapable of expressing what is real. This has been a journal of a false identity assuming itself to be real. From this new vantage point, I see how I am creating this story. Today I start a new chapter. Or maybe it is just a page. Even if I could just cobble together a sentence. Make it meaningful!"

"Det var inget jag hade valt, detta att inte höra ihop med dem. Det var bara så att jag inte gjorde det. Jag kunde inte ändra på det och jag visste inte vad en människa var meningen att vara. Inuti kände jag mig ledsen. Varför blev de alltid så arga? Varför begrep de inte?". Redan i tidig ålder insåg Gunilla Gerland att hon inte var som alla andra. Hon ville gärna röra vid saker som var böjda, undvek helst att tugga maten och hade ett stort behov av att få vara ifred.

Stoney McGurrin, in his debut book, brings us on the adventure of his lifetime. Having spent months in the hospital as a four-year-old, where he almost lost his arm, only to have it saved by a famous French surgeon Dr. Chance, he left Leitrim as a teenager on ship across the Atlantic to New York City. The stories are exciting, sad, happy, and true; from 1941 to the present, from pencil to paper.

Bill Rush lived with a significant disability of quadriplegic cerebral palsy. He did not have use of his arms, hands, or voice. Society’s prejudices proved to be a greater obstacle than his disability in attaining his first life goal of completing college. Rush chronicled his extraordinary life from childhood until graduation from the University of Nebraska - Lincoln in Journey Out of Silence, first published in 1986. This second edition brings back into print Bill's original chronicle. It also contains an introduction to Our Life Our Way, the sequel.