Disability Memoir

Bárbara Anderson narra con brutal franqueza el día a día de tener un hijo con discapacidad: los retos dentro y fuera de casa, las complicaciones de salud y de vida; los cambios de prioridades; el Everest de cada día al tener un hijo con - hasta ahora - un diagnóstico irreversible como es la parálisis cerebral infantil.

The spoiler is that Platinum, the shiny precious metal we may associate with glamour and wealth, was an ingredient in one of the chemo compounds. In this context, it functioned as a poison, carrying out the bizarre miracle of chemotherapy where death and life meet. Tracing through the paradoxical tensions of treatment, healing from treatment, succumbing to medicine and claiming autonomy, Hannah Kate guides us through essential components of the journey. There are material resources that will support you—yet much of what is needed requires connecting with the fundamental elements of life.

Living with multiple sclerosis was never going to be easy. The phrase 'I rule it, it doesn't rule me' was to become Lydia's benchmark. She clung fiercely to these words. They would booster her strength in the years ahead when at times, fear of the pain and its affects, especially the horrendous agony of an MS attack, would almost break her.

Monday, March 11, 2024, was remarkably uneventful—indeed, frankly dull—until around 5 p.m. that evening when Carl Davies collapsed in a heap. It was a day that would change his life forever. Stroke Me! Recounts the story of his recovery from a near-catastrophic brain haemorrhage. The author details, in often graphic detail, every step of his journey, from the stroke itself to the pain of physical and occupational therapy. He leaves no stone unturned as he describes the impact his illness has had on him and his family. Stroke Me!

For 18 years of my life, I dealt with harm daily. I suffered over 40 years with a substantial assortment of trauma-related manifestations. The devastation of the problems began when I was a child and lasted until I was in my mid-40s. I know my story sounds bleak but don’t be discouraged. Peace, laughter, joy, and happiness eventually came my way.

As a new mother to three nonverbal, profoundly autistic children, Christine Slack Roach felt lost and alone. There were resources about autism and about raising children with disabilities. But she couldn’t find anything that resonated with what she was experiencing with her own children. As her three children approach adulthood, Christine feels compelled to share the miracles, joys, pain and unending love she has experienced learning about and raising her kids so that other parents in a similar situation will know that they are not alone, and there are resources out there.

What do you do when multiple sclerosis knocks you on your ass, tells you your rap career is over, and dares you to stay down? You write a new story — and this one’s real as hell. Myelin My Shoes is the raw, unfiltered, punch-in-the-gut memoir from underground hip-hop artist Robert “B-Cide” Cardillo II, who turned pain into power and built something real in a world full of fake. From rocking shows with legends to dodging shady promoters, from touring the country to being forced into a wheelchair by multiple sclerosis — this is the story of a man who refused to tap out. No ghostwriters.

Growing up with Autism is hard enough. Growing up with Autism when you're a little gay weirdo is almost impossible. Greatest Hits of my Childhood Trauma is the story of a boy fighting to exist in a world that would rather throw him away. From overly religious mothers to prison sentences, drug overdoses, psychiatric facilities, bizarre sexual encounters, and queer high school romance, this tale of 90s middle America is heartbreaking, hilarious, and hard to put down. Alex Dark takes us through the darkest parts of his life with a charm that will keep you coming back for more.

Layered with physical, emotional, and relational tension, Through Blurred Vision brings forth the life of a young man that was given a diagnosis that appears in 0.0001% of births. As a result, Kurt Pangborn’s life was encompassed in darkness. Yet despite the daunting realty of this diagnosis’ limitations, Pangborn sought the true light of life in his darkness, and found a message that extends past human reason. Kurt Pangborn’s Through Blurred Vision inspires listeners to turn their pain into praise and apply the “Three P’s” of higher living.

The power of communication is essential; some say a necessity. We all do it, humans, insects, birds, cats, dogs, etc. No matter which species we belong to, we all communicate. Unfortunately, some people struggle to do so. Damian was one of them. Developmental Language Disorder, a speech and language disability, which Damian has had from birth, causes sentences to come out muddled and slow, even though all Damian's ideas are there. Here Damian talks about how DLD has affected his life, and how the charity Afasic has been there to support him throughout.

In Queen of Hearts: Born a Lemon, Nova tells on herself; candidly, unapologetically, and often hilariously. She takes you through the surgeries, the setbacks, the sarcastic remarks that got her through, and the signs that kept showing up to remind her that she was never as alone as she felt.

With humility and candor, artist activist Mary Fisher inspires us when, in her eighth decade, she creatively takes on disease, poverty, hunger, injustice, racism and the role of women. Uneasy Silence tells her story of speaking truth to power while living with AIDS, journeying through cancer and surviving a near-death experience. Her steady concern for The Other enables her to find the strength to stand up, speak up and make a difference, inspiring us to do the same.

In the fall of 1961, a young girl eagerly anticipates the arrival of her baby brother, Ricky. But when he's born, the joy she expected is overshadowed by the unexpected tension that fills their home. Her mother, once lively and full of warmth, becomes distant, struggling to care for two children-especially a newborn with special needs. Raising Ricky is the poignant story of a family transformed, as a sister steps into a role far beyond her years to protect and care for her brother.

Most people encounter disability at some point in their lives, either in their own bodies or through a friend or loved one. Faith leaders, sacred texts, and members of religious communities frequently offer religious teachings and metaphors as explanation for the presence of disability, but rarely do we hear the voices of people living with disabilities reflecting on their experiences of God, faith, or religious life.

In this unique and exhilarating autobiography, Allan Jones - Canada’s first blind diplomat - vividly describes how an untreatable eye disease slowly decimated his visual world, most challengingly during his postings in Tokyo and New Delhi, and how he discovered and took to heart the revelatory Indian philosophy that changed his life.

An ambulance rushed her away to the emergency room at a local hospital. Her life was forever changed in that moment. In this powerful memoir and inspirational self-help book, Kimberly Muka Powers shares her triumphant story of living with bipolar type one disorder with psychotic features. Humbled by this life-altering mental health diagnosis, she learns to rise above the setbacks of her illness and empowers others to do the same.

On paper, Coach Rob Mendez sounds like any other football coach on any other field across America: passionate, authoritative, knowledgeable. But he’s unlike any other coach you know - in fact, he’s probably unlike any other person you know. Born with an extraordinarily rare condition called tetra-Amelia syndrome, Rob has no arms or legs. He moves with the assistance of a custom-made, motorized wheelchair that he operates with his back and shoulders.

Life is never easy, but there are times when it feels like everything is against you. Tyra Hodge grew up feeling the world's weight pressing down on her. A nagging feeling awakened, whispering how she would never amount to anything the older she got. Daunted by the increasing demands of education and her private struggles, Tyra turned away.

Lorenzo Amurri non nasce come scrittore, lo diventa in seguito a un tragico incidente di sci che, a soli 26 anni, frantuma la strada artistica sulla quale viaggiava sin da giovanissimo: chitarrista rock, produttore musicale. Un ragazzo dinamico e trasgressivo senza mezze misure. Dall'incidente e dalla sua nuova condizione segnata dalla tetraplegia e dall'impossibilità di stringere ancora tra le braccia la sua chitarra, Lorenzo rinasce. Nel 2008 decide di affidare al suo blog Tracce di ruote "riflessioni, denunce e cronaca della sua seconda vita".

In "You're Not Doing It Right," Ellen Patnaude bravely opens the door to the haunting reality of Lewy body dementia (LBD) and unravels its profound impact on families. One of the most common types of dementia after Alzheimer's disease, LBD is marked by fluctuations in cognition, hallucinations, and motor symptoms. The journey begins with subtle warnings of small changes in her mother's behavior that worry Patnaude's father, but go unnoticed by the author and her sibling.