Disability Memoir

"Det var inget jag hade valt, detta att inte höra ihop med dem. Det var bara så att jag inte gjorde det. Jag kunde inte ändra på det och jag visste inte vad en människa var meningen att vara. Inuti kände jag mig ledsen. Varför blev de alltid så arga? Varför begrep de inte?". Redan i tidig ålder insåg Gunilla Gerland att hon inte var som alla andra. Hon ville gärna röra vid saker som var böjda, undvek helst att tugga maten och hade ett stort behov av att få vara ifred.

Stoney McGurrin, in his debut book, brings us on the adventure of his lifetime. Having spent months in the hospital as a four-year-old, where he almost lost his arm, only to have it saved by a famous French surgeon Dr. Chance, he left Leitrim as a teenager on ship across the Atlantic to New York City. The stories are exciting, sad, happy, and true; from 1941 to the present, from pencil to paper.

Bill Rush lived with a significant disability of quadriplegic cerebral palsy. He did not have use of his arms, hands, or voice. Society’s prejudices proved to be a greater obstacle than his disability in attaining his first life goal of completing college. Rush chronicled his extraordinary life from childhood until graduation from the University of Nebraska - Lincoln in Journey Out of Silence, first published in 1986. This second edition brings back into print Bill's original chronicle. It also contains an introduction to Our Life Our Way, the sequel.

For 20 years, Lisa Murphy, Jeff Murphy, and a group of volunteers traveled the world with the Mobility Project, delivering mobility to the poorest people on the planet. They helped tens of thousands of disabled poor to gain mobility and hope. The disabled received wheelchairs, walkers, and crutches from the United States, items they never would have been able to afford. Like Simon of Cyrene, we helped people carry their cross of disability. From the hot tropical jungles of Costa Rica, Thailand, and São Tomé to the deserts of Afghanistan, the disabled poor got a new chance at life.

When a tragic accident crushes her dreams, can a young woman fight to thrive once again? As a teen growing up in the '80s, Jenny Smith loved life. But, when a spinal cord injury paralyzed her from the chest down, her days of gymnastics and playing music came to an agonizing end. Completely reliant on others for her most basic needs, privacy and independence became things of the past. Refusing to give up, Jenny struggled along the exhausting, painful, and endless road to living as a quadriplegic.

Life is never easy, but there are times when it feels like everything is against you. Tyra Hodge grew up feeling the world's weight pressing down on her. A nagging feeling awakened, whispering how she would never amount to anything the older she got. Daunted by the increasing demands of education and her private struggles, Tyra turned away.

Robert L. Metts was an adventurer and a disability activist that cared deeply about the lives of people with disabilities around the world. After receiving a BA in psychology from the University of California, Berkeley, Bob continued his education there to earn a PhD in economics with a focus on economic development. While in Kenya conducting research for his PhD dissertation, he had firsthand experience with the conditions disabled people faced in developing countries.

February 29th is a date that comes into existence just once every four years. It is also the birthday of Thais - author Anne-Dauphine Julliand's darling daughter - who died of a genetic disease. Thais lived just shy of her fourth birthday. She had a short life but good one. As this special day is about to reappear on her calendar for the first time since her daughter passed away, Anne-Dauphine struggles with how to mark this momentous occasion. She wants to live fully on this special day: Thais would have been eight years old.

Desde la infancia hasta la maternidad, Fernanda Gamboa comparte su experiencia vital con el Trastorno por Déficit de Atención e Hiperactividad (TDAH), revelando cómo una diferencia neurológica puede convertirse en fuente de fortaleza. A través de historias íntimas, anécdotas conmovedoras y reflexiones profundas, esta obra guía al lector por un viaje de autoconocimiento, sanación y empoderamiento. Con un enfoque práctico y humano, la autora desmitifica el diagnóstico, ofrece herramientas para familias y parejas, y construye una comunidad de aceptación: la Tribu Especial-Mente.

This book is about the life of the author. It focuses on her faith, her hope, and her endurance during the years of her illness. In this true story, you will learn the how and why about the effects that changed her family’s life—the author’s Crohn’s disease, the 14 blood clots, toxic gut syndrome, colitis, tumors, ulcers, vertigo, weight gain and loss, pregnancies, the many surgeries, and how her body would not wake up after some of her surgeries.

Luisa L’Audace wächst als einziges behindertes Kind in ihrem Heimatdorf auf. Warum sie im Sportunterricht immer als Letzte gewählt wird, in der Pause nicht mitspielen soll und ihre Freundinnen plötzlich nicht mehr neben ihr sitzen wollen, versteht sie lange Zeit nicht. Während andere Kinder Freizeitbeschäftigungen nachgehen, verbringt Luisa viel Zeit in Krankenhäusern, bei Therapien und Spezialist*innen. Als sie mit 14 einen Rollstuhl bekommt, fühlt sie sich zum ersten Mal in ihrem Leben frei. Doch mit der neu gewonnenen Mobilität nehmen auch die Anfeindungen zu.

I discover a "lost" aunt, separated from our family due to racism and discrimination against the disabled. She had a mental disability due to childhood meningitis. She was taken away in 1942 when all Japanese Americans were considered the enemy and imprisoned. She then became a "ward" of the state. We believed she had died but 70 years later found her alive and living a few miles from our family farm. How did she survive? Why was she kept hidden? How did both shame and resilience empower my family to forge forward in a land that did not want them?

As a new mother to three nonverbal, profoundly autistic children, Christine Slack Roach felt lost and alone. There were resources about autism and about raising children with disabilities. But she couldn’t find anything that resonated with what she was experiencing with her own children. As her three children approach adulthood, Christine feels compelled to share the miracles, joys, pain and unending love she has experienced learning about and raising her kids so that other parents in a similar situation will know that they are not alone, and there are resources out there.

What do you do when multiple sclerosis knocks you on your ass, tells you your rap career is over, and dares you to stay down? You write a new story — and this one’s real as hell. Myelin My Shoes is the raw, unfiltered, punch-in-the-gut memoir from underground hip-hop artist Robert “B-Cide” Cardillo II, who turned pain into power and built something real in a world full of fake. From rocking shows with legends to dodging shady promoters, from touring the country to being forced into a wheelchair by multiple sclerosis — this is the story of a man who refused to tap out. No ghostwriters.

This narrative nonfiction novel chronicles my son’s twenty-year journey to get his Cushing’s disease diagnosed—a journey that took far too long. Throughout the book, I highlight opportunities for testing that could have been done according to endocrinologist guidelines. The core message is clear: early diagnosis is crucial for people to live vibrant lives.

Growing up with Autism is hard enough. Growing up with Autism when you're a little gay weirdo is almost impossible. Greatest Hits of my Childhood Trauma is the story of a boy fighting to exist in a world that would rather throw him away. From overly religious mothers to prison sentences, drug overdoses, psychiatric facilities, bizarre sexual encounters, and queer high school romance, this tale of 90s middle America is heartbreaking, hilarious, and hard to put down. Alex Dark takes us through the darkest parts of his life with a charm that will keep you coming back for more.

Layered with physical, emotional, and relational tension, Through Blurred Vision brings forth the life of a young man that was given a diagnosis that appears in 0.0001% of births. As a result, Kurt Pangborn’s life was encompassed in darkness. Yet despite the daunting realty of this diagnosis’ limitations, Pangborn sought the true light of life in his darkness, and found a message that extends past human reason. Kurt Pangborn’s Through Blurred Vision inspires listeners to turn their pain into praise and apply the “Three P’s” of higher living.

Jon Attenborough, a visually impaired football fan, embarked on an extraordinary journey across Scotland with his guide dog, Sam, visiting every single one of the 42 Scottish Professional Football League (SPFL) grounds. Jon and Sam made each journey by public transport – legends! This memoir chronicles their shared experiences, blending Jon's love for football with the profound bond he shares with Sam. As they travel the length and breadth of Scotland, Jon navigates the challenges of accessibility, the unpredictability of live sports, and the warmth of Scotland's football community.

In Queen of Hearts: Born a Lemon, Nova tells on herself; candidly, unapologetically, and often hilariously. She takes you through the surgeries, the setbacks, the sarcastic remarks that got her through, and the signs that kept showing up to remind her that she was never as alone as she felt.

With humility and candor, artist activist Mary Fisher inspires us when, in her eighth decade, she creatively takes on disease, poverty, hunger, injustice, racism and the role of women. Uneasy Silence tells her story of speaking truth to power while living with AIDS, journeying through cancer and surviving a near-death experience. Her steady concern for The Other enables her to find the strength to stand up, speak up and make a difference, inspiring us to do the same.