Health Care Ethics

Uwe Reinhardt was a towering figure and moral conscience of health care policy in the United States and beyond. Famously bipartisan, he advised presidents and Congress on health reform and originated central features of the Affordable Care Act. In Priced Out, Reinhardt offers an engaging and enlightening account of today's US health care system, explaining why it costs so much more and delivers so much less than the systems of every other advanced country, why this situation is morally indefensible, and how we might improve it.

Doctors and patients have lost control of American medicine. Generative AI can put the power back in their hands, save millions of lives, and restore the doctor-patient relationship. Welcome to ChatGPT, MD. In this unique collaboration, renowned healthcare leader Dr. Robert Pearl teams up with the artificial intelligence system ChatGPT to examine the transformational power of generative AI in medicine.

The experiments conducted during World War II provide some of the most extreme examples in breaches of human rights and ethics the world has so far seen. There is no benefit in considering the Nazi experiments as “other” or irrelevant. The greatest good that can come out of these atrocities is the lessons they have to teach about what plays into and creates a hostile research environment. Before the rise of Hitler and the Nazi party, Germany was at the forefront of both medical research and medical ethics.

After his father died, James L. Nolan, Jr., took possession of a box of private family materials. To his surprise, the small secret archive contained a treasure trove of information about his grandfather's role as a doctor in the Manhattan Project. Dr. Nolan, it turned out, had been a significant figure.

Where does one go without health insurance, when turned away by hospitals, clinics, and doctors? In The People’s Hospital, physician Ricardo Nuila’s stunning debut, we follow the lives of five uninsured Houstonians as their struggle for survival leads them to a hospital where insurance comes second to genuine care.

Sick Business is a clarion call for reform and change. A gripping expose, in the end the book equips you with some real answers and the tough questions you need to ask when your family's health—and perhaps your own—is at stake.

Making ethical decisions involves more than listening to an inner moral compass, a feeling in the gut of what’s right and wrong. Questions of ethics in science are becoming increasingly complex, especially as technology encroaches upon even our most private cellular spaces. In Doing the Right Thing: Ethics in Science, we cover a wide range of areas in science and medicine where complicated ethical questions come to bear, including genomics and research where informed - and ethically sound - choices are the basis of many scientific studies.

American taxpayers spend $30 billion annually funding biomedical research, but over half of these studies can't be replicated due to poor experimental design, improper methods, and sloppy statistics. Bad science doesn't just hold back medical progress, it can sign the equivalent of a death sentence for terminal patients. In Rigor Mortis, Richard Harris explores these urgent issues with vivid anecdotes, personal stories, and interviews with the top biomedical researchers. We need to fix our dysfunctional biomedical system - before it's too late.

In recent years there have been major outbreaks of whooping cough among children in California, mumps in New York, and measles in Ohio's Amish country - despite the fact that these are all vaccine-preventable diseases. Although America is the most medically advanced place in the world, many people disregard modern medicine in favor of using their faith to fight life-threatening illnesses. In 21st-century America, how could this be happening?

Still Not Safe is the story of the rise of the patient - safety movement - and how an "epidemic" of medical errors was derived from a reality that didn't support such a characterization. Physician Robert Wears and organizational theorist Kathleen Sutcliffe trace the origins of patient safety to the emergence of market trends that challenged the place of doctors in the larger medical ecosystem.

Scientists have long struggled to make pregnancy easier, safer, and more successful. In The Dance of Life, developmental and stem-cell biologist Magdalena Zernicka-Goetz takes us to the front lines of efforts to understand the creation of a human life. She has spent two decades unraveling the mysteries of development, as a simple fertilized egg becomes a complex human being of 40 trillion cells. Zernicka-Goetz's work is both incredibly practical and astonishingly vast.

No one could believe the handsome young doctor might be a serial killer. Wherever he was hired - in Ohio, Illinois, New York, South Dakota - Michael Swango at first seemed the model physician. Then his patients began dying under suspicious circumstances.

In this gripping, intimate memoir about health, illness, and the invisible reverberating effects of our medical system, Standefer recounts the astonishing true story of the rare diagnosis that upended her rugged life in the mountains of Wyoming and sent her tumbling into a fraught maze of cardiology units, dramatic surgeries, and slow, painful recoveries. As her life increasingly comes to revolve around the internal defibrillator freshly wired into her heart, she becomes consumed with questions about the supply chain that allows such an ostensibly miraculous device to exist.

Four decades after And the Band Played On created an image of the AIDS epidemic that has survived in the public consciousness to this very day, mathematician Rebecca Culshaw is sounding the alarm that everything that iconic book told us about AIDS is demonstrably wrong. And that mistaken understanding of AIDS and its cause has the potential to affect all of us, not just certain so-called risk groups. Rebecca Culshaw describes her slow uncovering of these reasons over her years researching HIV for her work constructing mathematical models of its interaction with the immune system.

In The Science of Good and Evil, psychologist and science historian Michael Shermer explores how humans evolved from social primates into moral primates, how and why morality motivates the human animal, and how the foundation of moral principles can be built upon empirical evidence. Along the way he explains the implications of scientific findings for fate and free will, the existence of pure good and pure evil, and the development of early moral sentiments among the first humans.

Technological innovation is deeply woven into the fabric of American culture, and is no less a basic feature of American health care. Medical technology saves lives and relieves suffering, and is enormously popular with the public, profitable for doctors, and a source of great wealth for industry. Yet its costs are rising at a dangerously unsustainable rate. The control of technology costs poses a terrible ethical and policy dilemma. How can we deny people what they may need to live and flourish?

In Mercies in Disguise, acclaimed New York Times reporter and best-selling author Gina Kolata tells the story of the Baxleys, an upstanding family in small-town South Carolina. Many of them were doctors, but still, they are struck down by an inscrutable illness. Finally they discover the cause of the disease after a remarkable sequence of providential events. Meanwhile science, progressing for 50 years along a parallel track, handed the Baxleys a question - not a cure but a blood test that would reveal who had the gene for the disease.

One day in 2004, Gardiner Harris, a pharmaceutical reporter for The New York Times, was early for a flight and sat down at an airport bar. He struck up a conversation with the woman on the barstool next to him, who happened to be a drug sales rep for Johnson & Johnson. Her horrific story about unethical sales practices and the devastating impact they’d had on her family fundamentally changed the nature of how Harris would cover the company—and the entire pharmaceutical industry—for the Times.

Journalist Sarah Dingle was 27 when she learned that her identity was a lie. Over dinner one night, her mother casually mentioned Sarah had been conceived using a sperm donor. The man who’d raised her wasn’t her father; in fact, she had no idea who her father was. Or who she really was. As the shock receded, Sarah began to investigate her own existence. Thus began a 10-year journey - digging through hospital files, chasing leads and taking a DNA test - that finally led to her biological origins.

An incisive examination of bioethics and American healthcare, and their profound affects on American culture over the last 60 years, from two eminent scholars. An eye-opening look at the inevitable moral choices that come along with tremendous medical progress, Everybody Wants to Go to Heaven but Nobody Wants to Die is a primer for all Americans to talk more honestly about health care.