Health Care Ethics

In Feminist, Queer, Crip, Alison Kafer imagines a different future for disability and disabled bodies. Challenging the ways in which ideas about the future and time have been deployed in the service of compulsory able-bodiedness and able-mindedness, Kafer rejects the idea of disability as a predetermined limit.

The experiments conducted during World War II provide some of the most extreme examples in breaches of human rights and ethics the world has so far seen. There is no benefit in considering the Nazi experiments as “other” or irrelevant. The greatest good that can come out of these atrocities is the lessons they have to teach about what plays into and creates a hostile research environment. Before the rise of Hitler and the Nazi party, Germany was at the forefront of both medical research and medical ethics.

The timeless human desire to be more beautiful, intelligent, healthy, athletic, or young has given rise in our time to technologies of human enhancement. Some condemn these developments as a new kind of cheating - not just in sports but in life itself - promising rewards without effort and depriving us most of all of what it means to be authentic human beings. "Transhumanists", on the other hand, reject what they see as a rationalizing of human limits, as if being human means being content forever with underachieving bodies and brains.

Sick Business is a clarion call for reform and change. A gripping expose, in the end the book equips you with some real answers and the tough questions you need to ask when your family's health—and perhaps your own—is at stake.

In recent years there have been major outbreaks of whooping cough among children in California, mumps in New York, and measles in Ohio's Amish country - despite the fact that these are all vaccine-preventable diseases. Although America is the most medically advanced place in the world, many people disregard modern medicine in favor of using their faith to fight life-threatening illnesses. In 21st-century America, how could this be happening?

American taxpayers spend $30 billion annually funding biomedical research, but over half of these studies can't be replicated due to poor experimental design, improper methods, and sloppy statistics. Bad science doesn't just hold back medical progress, it can sign the equivalent of a death sentence for terminal patients. In Rigor Mortis, Richard Harris explores these urgent issues with vivid anecdotes, personal stories, and interviews with the top biomedical researchers. We need to fix our dysfunctional biomedical system - before it's too late.

Still Not Safe is the story of the rise of the patient - safety movement - and how an "epidemic" of medical errors was derived from a reality that didn't support such a characterization. Physician Robert Wears and organizational theorist Kathleen Sutcliffe trace the origins of patient safety to the emergence of market trends that challenged the place of doctors in the larger medical ecosystem.

Scientists have long struggled to make pregnancy easier, safer, and more successful. In The Dance of Life, developmental and stem-cell biologist Magdalena Zernicka-Goetz takes us to the front lines of efforts to understand the creation of a human life. She has spent two decades unraveling the mysteries of development, as a simple fertilized egg becomes a complex human being of 40 trillion cells. Zernicka-Goetz's work is both incredibly practical and astonishingly vast.

No one could believe the handsome young doctor might be a serial killer. Wherever he was hired - in Ohio, Illinois, New York, South Dakota - Michael Swango at first seemed the model physician. Then his patients began dying under suspicious circumstances.

In this gripping, intimate memoir about health, illness, and the invisible reverberating effects of our medical system, Standefer recounts the astonishing true story of the rare diagnosis that upended her rugged life in the mountains of Wyoming and sent her tumbling into a fraught maze of cardiology units, dramatic surgeries, and slow, painful recoveries. As her life increasingly comes to revolve around the internal defibrillator freshly wired into her heart, she becomes consumed with questions about the supply chain that allows such an ostensibly miraculous device to exist.

Four decades after And the Band Played On created an image of the AIDS epidemic that has survived in the public consciousness to this very day, mathematician Rebecca Culshaw is sounding the alarm that everything that iconic book told us about AIDS is demonstrably wrong. And that mistaken understanding of AIDS and its cause has the potential to affect all of us, not just certain so-called risk groups. Rebecca Culshaw describes her slow uncovering of these reasons over her years researching HIV for her work constructing mathematical models of its interaction with the immune system.

One day in 2004, Gardiner Harris, early for a flight, sat down at an airport bar and started talking to the woman on the barstool beside him. She was a drug sales rep for Johnson & Johnson, and her horrific story about unethical sales practices and the devastating impact they’d had on her family fundamentally changed the nature of how Harris covered the company—and the entire pharmaceutical industry—for The New York Times.

In The Science of Good and Evil, psychologist and science historian Michael Shermer explores how humans evolved from social primates into moral primates, how and why morality motivates the human animal, and how the foundation of moral principles can be built upon empirical evidence. Along the way he explains the implications of scientific findings for fate and free will, the existence of pure good and pure evil, and the development of early moral sentiments among the first humans.

Technological innovation is deeply woven into the fabric of American culture, and is no less a basic feature of American health care. Medical technology saves lives and relieves suffering, and is enormously popular with the public, profitable for doctors, and a source of great wealth for industry. Yet its costs are rising at a dangerously unsustainable rate. The control of technology costs poses a terrible ethical and policy dilemma. How can we deny people what they may need to live and flourish?

In Mercies in Disguise, acclaimed New York Times reporter and best-selling author Gina Kolata tells the story of the Baxleys, an upstanding family in small-town South Carolina. Many of them were doctors, but still, they are struck down by an inscrutable illness. Finally they discover the cause of the disease after a remarkable sequence of providential events. Meanwhile science, progressing for 50 years along a parallel track, handed the Baxleys a question - not a cure but a blood test that would reveal who had the gene for the disease.

Journalist Sarah Dingle was 27 when she learned that her identity was a lie. Over dinner one night, her mother casually mentioned Sarah had been conceived using a sperm donor. The man who’d raised her wasn’t her father; in fact, she had no idea who her father was. Or who she really was. As the shock receded, Sarah began to investigate her own existence. Thus began a 10-year journey - digging through hospital files, chasing leads and taking a DNA test - that finally led to her biological origins.

An incisive examination of bioethics and American healthcare, and their profound affects on American culture over the last 60 years, from two eminent scholars. An eye-opening look at the inevitable moral choices that come along with tremendous medical progress, Everybody Wants to Go to Heaven but Nobody Wants to Die is a primer for all Americans to talk more honestly about health care.

Carte Blanche is the alarming tale of how the right of Americans to say "no" to risky medical research is eroding at a time when we are racing to produce a vaccine and treatments for COVID-19. This medical right that we have long taken for granted was first sacrificed on the altar of military expediency in 1990 when the Department of Defense asked for and received from the FDA a waiver that permitted it to force an experimental anthrax vaccine on the ranks of ground troops headed for the Persian Gulf.

There are disorders that defy treatment with prescribed pharmaceuticals: a man's hands shake so hard that he cannot hold anything; a woman is mired in severe inescapable depression. For these patients and others, an alternative is emerging: deep brain stimulation. In this fascinating and timely investigation, well-known science writer Jamie Talan explains a cutting-edge medical development that is surprising and impressing researchers around the world.

Important and provocative, The Undead examines why even with the tools of advanced technology, what we think of as life and death, consciousness and nonconsciousness, is not exactly clear - and how this problem has been further complicated by the business of organ harvesting.