Medical Memoirs

As medical director of the famed Preventive Medicine Research Institute, Lee Lipsenthal helped thousands of patients struggling with disease to overcome their fears of pain and death, and to embrace a more joyful way of living. In his own life, happily married and the proud father of two remarkable children, Lee was similarly committed to living his life fully and gratefully each day. The power of those beliefs was tested in July 2009, when Lee was diagnosed with esophageal cancer.

In the early days of the Cold War, a spirit of desperate scientific rivalry birthed a different kind of space race: not the race to outer space that we all know, but a race to master the inner space of the human body. While surgeons on either side of the Iron Curtain competed to become the first to transplant organs like the kidney and heart, a young American neurosurgeon had an even more ambitious thought: Why not transplant the brain?

In the fall of 1988, Sue Miller found herself caring for her father as he slipped into the grasp of Alzheimer's disease. She was, she claims, perhaps the least constitutionally suited of all her siblings to be in the role in which she suddenly found herself, and in The Story of My Father she grapples with the haunting memories of those final months and the larger narrative of her father's life.

We have lost the war on cancer. We spend $150 billion each year treating it, yet - a few innovations notwithstanding - a patient with cancer is as likely to die of it as one was 50 years ago. Most new drugs add mere months to one's life at agonizing physical and financial cost. In The First Cell, Azra Raza offers a searing account of how both medicine and our society (mis)treats cancer, how we can do better, and why we must.

On the morning of October 21, 1966, Kathleen Middleton, a music teacher in suburban London, awoke choking and gasping, convinced disaster was about to strike. An hour later, a mountain of rubble containing waste from a coal mine collapsed above the village of Aberfan, swamping buildings and killing 144 people, many of them children. Among the doctors and emergency workers who arrived on the scene was John Barker, a psychiatrist from Shelton Hospital, in Shrewsbury.

That Julie Yip-Williams survived infancy was a miracle. Then, at age 37, with two little girls at home, Julie was diagnosed with terminal metastatic colon cancer, and a different journey began. The Unwinding of the Miracle is the story of a vigorous life refracted through the prism of imminent death. When she was first diagnosed, Julie Yip-Williams sought clarity and guidance through the experience and, finding none, began to write her way through it - a chronicle that grew beyond her imagining.

San Francisco's Laguna Honda Hospital is the last almshouse in the country, a descendant of the Hôtel-Dieu (God's hotel) that cared for the sick in the Middle Ages. Ballet dancers and rock musicians, professors and thieves - "anyone who had fallen, or, often, leapt, onto hard times" and needed extended medical care - ended up here. So did Victoria Sweet, who came for two months and stayed for 20 years. Laguna Honda, lower-tech but human-paced, gave Sweet the opportunity to practice a kind of attentive medicine that has almost vanished.

Tumors, injuries, ruptured vascular malformations—there is almost no such thing as a non-urgent brain surgery when it comes to kids. For a pediatric neurosurgeon working in the medical minefield of the brain—in which a single millimeter in every direction governs something that makes us essentially human—every day presents the challenge, and the opportunity, to give a new lease on life to a child for whom nothing is yet fully determined and all possibilities still exist.

It begins with numbness on her left leg. Then it spreads. Even though an MRI finds a "mass" on her brainstem, it takes two more years for Meredith O'Brien to learn what is causing that numbness. Months after her sixty-five-year-old mother dies from a fast-moving cancer, weeks after her father is hospitalized and she experiences an unexpected job change, she learns she has multiple sclerosis. Suddenly, Meredith, a married mother of three teens, has to figure out how to move forward into a life she no longer recognizes.

In November of 1970, the Finell family's lives were changed forever by a family vacation to Acapulco. Seven-year-old Stephanie fell ill soon after their return to the United States, but her mother, Karin, thinking it was an intestinal disorder, kept her home from school for a few days. She was completely unprepared when Stephanie went into violent convulsions on a Friday morning. Following a series of tests at the hospital, doctors concluded she had contracted viral equine encephalitis while in Mexico.

As director of the world's largest abortion clinic and the nation's most prominent abortionist, Dr. Bernard Nathanson presided over 60,000 abortions. As co-founder of the National Abortion Rights Action League, he helped make abortion legal. Then, in a conversion that made headkines and astonished both sides of the abortion debate, he renounced his profession to become a pro-life advocate. But Dr. Nathanson's journey was not over.

A week after her 41st birthday, the acclaimed poet Anne Boyer was diagnosed with highly aggressive triple-negative breast cancer. For a single mother living paycheck to paycheck who had always been the caregiver, the catastrophic illness was both a crisis and an initiation into new ideas about mortality and the gendered politics of illness. The Undying explores the experience of illness as mediated by digital screens, weaving in ancient Roman dream diarists, cancer hoaxers and fetishists, cancer vloggers, pro-pain "dolorists", and the many little murders of capitalism.

In this evocative account of navigating pregnancy loss, Jessica Zucker confronts the cultural silence around miscarriages and illuminates how she built a movement from her experience, transforming trauma into human connection. Drawing from her psychological expertise and her work as the creator of the #IHadaMiscarriage campaign, I Had a Miscarriage is a heart-wrenching, thought-provoking, and validating book about navigating these liminal spaces and the vitality of truth telling.

Written in 1857, this is the autobiography of a Jamaican woman whose fame rivalled Florence Nightingale's during the Crimean War. Seacole's offer to volunteer as a nurse in the war met with racism and refusal. Undaunted, Seacole set out independently to the Crimea where she acted as doctor and 'mother' to wounded soldiers while running her business, the 'British Hotel'. A witness to key battles, she gives vivid accounts of how she coped with disease, bombardment and other hardships at the Crimean battlefront.

Offering examples of how to make medicine better for the healers and those they serve, If I Betray These Words profiles clinicians across the country who are tough, resourceful, and resilient, but feel trapped between the patient-first values of their Hippocratic oath and the business imperatives of a broken healthcare system. If I Betray These Words confronts the threat and broken promises of moral injury—what it is; where it comes from; how it manifests; and who’s fighting back against it. We need better healthcare—for patients and for the workforce. It’s time to act.

Issa Ibrahim's memoir details in searing prose his development of severe mental illness leading to a horrific family tragedy, his acquittal by reason of insanity, and his subsequent commission to a mental hospital for nearly 20 years. Written with great verve and immediacy, The Hospital Always Wins paints a detailed picture of a broken mental-health system but also reveals the power of art, when nurtured in a benign environment, to provide a resource for recovery.

While much has been written about the minds and methods of the medical professionals who save our lives, precious little has been said about their emotions. Physicians are assumed to be objective, rational beings, easily able to detach as they guide patients and families through some of life’s most challenging moments. But understanding doctors’ emotional responses to the life-and-death dramas of everyday practice can make all the difference on giving and getting the best medical care.

Patti Davis, the daughter of Ronald and Nancy Reagan, writes about losing her father to Alzheimer's disease, saying goodbye in stages, and watching the progression of a disease that steals what is most precious: a person's memory. Past and present come together in this illuminating portrait of grief, of a man, a disease, and a girl and her father.

While in her early-30s, Anna Byrne was diagnosed with a rare and aggressive form of lymphoma. Over the next seven years, she endured four relapses, two stem cell transplants, and spent over 2,000 hours in Canadian hospitals. In 2014, she was given two years to live. Despite the odds, Anna left treatment cancer-free. She became a hospice volunteer and met Eleanor, a woman in her 70s whose death was imminent, and the two formed an unlikely friendship. Part memoir, medical guide, and spiritual text, Seven Year Summer explores the nuances of healing and hope.

Dr. Ala Stanford knew she wanted to be a doctor by the time she was eight years old. But role models were few and far between in her working-class North Philly neighborhood. Her teachers were dismissive, and the realities of racism, sexism, and poverty threatened to derail her at every turn. Nevertheless, thanks to her faith, family, and the sheer strength of her will, today she is one of the vanishingly small number of Black women surgeons in America—and an unrelenting force in the fight for health justice.