The Heart of Hospice Podcast

Written by: Hosted by Helen Bauer BSN RN CHPN
  • Summary

  • The Heart of Hospice podcast is dedicated to helping personal and professional caregivers who are caring for someone with serious illness. We're here to provide information and education so people can make informed choices about end of life care.

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Episodes
  • When Professional Grief Becomes Personal: A Conversation with Barbara Karnes
    Nov 25 2024
    In this final episode of our special 4 part series, Hospice Educator Barbara Karnes shares the personal story of her husband’s end of life journey and death. She opens up about all the emotions she experienced as she and her family supported Jack Karnes after his diagnosis with a terminal illness. Jack died four months after he was diagnosed with lung cancer. Barbara and Jack had been married for 61 years at the time of his death. After working over 40 years in end of life care, Barbara experienced all the aspects of interdisciplinary hospice care, death, and grief in her personal life. We’re grateful for Barbara’s generosity and vulnerability in telling her story. After all the years she has spent educating hospice workers and end of life caregivers, she’s still teaching us. We’d like to thank Lisa Pahl, founder of The Death Death and End of Life, for sponsoring this special series in honor of National Family Caregivers Month and National Hospice and Palliative Care Month (National Home Care Month). Here’s are some details of what Barbara shares in this touching interview: What the process of a hospice admission is truly likeThe impact of staffing changes on the trust bond with a caregiverLearning to live as a “me” after living as a “we” after 60 years of marriageThe many emotions she experienced when Jack was terminally illThe music she wants to be part of her advance care plan Connect with Barbara Karnes: Website: bkbooks.com Blog: bkbooks.com Shop her products: bkbooks.com Socials: Facebook Instagram LinkedIn Twitter Pinterest YouTube Email: barbara@bkbooks.com Thank you to our series sponsor The Death Deck! Connect with the End of Life Deck and the Death Deck: Website: thedeathdeck.comhttps://thedeathdeck.com/ Shop: End of Life Deck Death Deck Socials for the Death Deck: Facebook IG Twitter (X) Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com. Connect with The Heart of Hospice Podcast and host Helen Bauer Website: theheartofhospice.com Email: helen@theheartofhospice.com More podcast episodes: The Heart of Hospice Podcast
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    45 mins
  • Caregiver Creates Legacy of Love After Loss
    Nov 22 2024

    Susan Combs will tell you she had a great dad. Her caregiving experience at the end of his life inspired her to give back to the veteran community. Susan’s dad Major General Roger E. Combs was a huge influence on her life. Roger battled with throat cancer related to Agent Orange for ten years, eventually dealing with a feeding tube toward the end of his life. A simple act - his request to eat pancakes - launched a non-profit organization that supports military veterans.

    Susan is the president of Combs and Company, based in New York City. Her movement Pancakes for Roger occurs every February. For every pancake-loving picture posted on social media post using the hashtag #PancakesForRoger, Combs & Company will make a donation to the University of Missouri School of Law Veterans Clinic which helps veterans and their families navigate the VA claims process and secure disability benefits when they are faced with obstacles along the way.

    Here’s some advice Susan gives to other end of life caregivers:

    • Do one thing every day for yourself
    • Bring in your “crew”, those friends who can support you
    • Have the advance care plan conversations, even though it’s difficult

    Connect with Susan Combs and Pancakes for Roger:

    Website: pancakesforroger.org

    Book: Pancakes for Roger

    Social media: Instagram Facebook Twitter (X) YouTube

    Honor your veteran on their Wall of Honor:

    Interested in purchasing a GrandPad to stay connected with a senior loved one?

    Get more information at https://www.grandpad.net/thoh.

    GrandPad website: https://www.grandpad.net/

    Social Media for GrandPad

    https://facebook.com/grandpad

    https://instagram.com/grandpad_social/

    https://www.linkedin.com/company/grandpad

    https://www.youtube.com/channel/UCuFAJCb7_tTneM_ikABq08Q

    Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.

    Connect with The Heart of Hospice Podcast and host Helen Bauer

    Website: theheartofhospice.com

    Email: helen@theheartofhospice.com

    More podcast episodes: The Heart of Hospice Podcast





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    52 mins
  • Learning How to Say the Last Goodbye with Barbara Karnes
    Nov 18 2024

    After a 40 year hospice career, Barbara Karnes knows a thing or two about end of life care. Today’s special episode is part 3 of our 4 part series in honor of National Family Caregivers Month and National Hospice and Palliative Care Month. Barbara calls her introduction to working with the dying “divine intervention” that occurred because of a random connection with a hospice worker. She spent five years working at the bedside, eventually moving into administrative positions and management. As a hospice educator, she supports family caregivers and end of life workers alike.

    Highlights from Barbara’s interview include:

    • A snapshot of Barbara’s advance care plan and why she thinks goodbyes are important
    • Her recognition of how hard it was to balance work life and family life as a young mother
    • How Barbara sees hospice work as a privilege

    Connect with Barbara Karnes:

    Website: bkbooks.com

    Blog: bkbooks.com

    Shop her products: bkbooks.com

    Socials: Facebook Instagram LinkedIn Twitter Pinterest YouTube

    Email: barbara@bkbooks.com

    Thank you to our series sponsor The Death Deck!

    Connect with the End of Life Deck and the Death Deck:

    Website: thedeathdeck.comhttps://thedeathdeck.com/

    Shop: End of Life Deck Death Deck

    Socials for the Death Deck: Facebook IG Twitter (X)

    Hospice Navigation Services is here for you. If you have questions about hospice care or need to troubleshoot the care you’re already receiving, book a session with an expert Hospice Navigator at theheartofhospice.com.

    Connect with The Heart of Hospice Podcast and host Helen Bauer

    Website: theheartofhospice.com

    Email: helen@theheartofhospice.com

    More podcast episodes: The Heart of Hospice Podcast



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    41 mins

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