Disability Biography

One in five people in the United States lives with a disability. Some disabilities are visible, others less apparent - but all are underrepresented in media and popular culture. Now, just in time for the 30th anniversary of the Americans with Disabilities Act, activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people.

Macular degeneration affects over eight million people in the United States. Patients lose central vision, the ability to read fine print and recognize faces. A diagnosis doesn't mean surrendering to these challenges. Instead, understanding this medical condition will help pave the way toward a better future-for yourself or loved one.

I grew up believing that perfection was the only way to gain approval and feel safe. Every item in my room had to be aligned just right, every deadline met without fail, and every mistake felt like a personal failure. It wasn’t until adulthood that I realized these behaviors went far beyond simple neatness or discipline. They were signs of Obsessive-Compulsive Personality Disorder (OCPD)—an unyielding drive toward order and control that had slowly taken over my life.

Meet over twenty people with Down syndrome who have accomplished amazing things in their lives. Excelling in film, sports, business, photography, and more, these people are changing hearts and minds about their disability. Hear about Chris Nikic, the first person with Down syndrome to complete an Ironman Triathlon, and Isabella Springmuhl Tejada, the first designer with Down syndrome invited to showcase her work at London Fashion Week.

The autobiography is told in an honest and very candid way, from the very first diagnosis in 2011 right up to the present day, showing how I was forced to crowdfund to have my leg amputated, what it took to overcome the struggles of four operations, and what it meant for me and my young family.

Darlene was a small-town single mother from Arkansas. Bert was a small-town preacher’s son from Oklahoma. Polio crippled both of them as teenagers. When their paths crossed at a rehab center in 1952, these young adults questioned how anything good could come from this crippling virus. Bert’s faith in the Biblical passage of Romans 8:28 gave him hope that “Polio was not good, but God would bring good out of it.” Darlene’s journey to the rehab center was “the one way for God to get me in the right place at the right time.”

When you hear the word “disability”, what comes to mind? Cheryl Schiltz tells her story of being introduced to disability. She shares her journey from a silent world to one that encased her in constant anxiety. Her life as she knew it had disappeared. It became one of a continuous fight between psychological and physical change. Noise. From her childhood, you’ll find yourself traveling with her as she discovers the power to gain control. She shares her story openly and honestly, raw and sensitive.

You struggle with your disability. You're tired of being counted out of life. Are you frustrated because you feel, or have been told, you can't be 100% healthy with your disability? It's time for a change! It's time to prove everyone (including your doctors) wrong! Author and certified personal trainer Tony Jacobsen, who has Osteogenesis Imperfecta (Brittle Bones Disease), has transformed his entire life and now shares the formula to empower other people with disabilities.

Everything happens for a reason; I truly believe writing these words was one of the primary purposes of my life. Father God gave me this disability - I’m just trying to make the most out of it. This is not your typical autobiography or memoir. I’m sharing my life experiences as more of a commentary on humanity as a whole. I do my best to sprinkle bits of comedy throughout the composition so it feels more like a conversation between friends than me just talking at you.

I know this sounds a bit cliche, but life truly is a journey. It evidences as a unique sojourn for every individual person. This is the story of a child born seventy years ago. It is a story of triumph and setbacks, of joy and sorrow, of weakness and strength. But most of all, it is a story of courage. Brian J. Woznicki was born with cerebral palsy. He was dealt a very difficult hand in life.

In 1959, at the age of 21, Max Starkloff was in a car accident that left him paralyzed from the neck down. His doctors doubted he would live longer than a few days, and, if he survived, the hope for his quality of life would be minimal. How did this young man with barely a high school education become the leader of a powerful disability rights movement and the founder of the Starkloff Disability Institute? This is his remarkable story.

Adversity Builds Character is the story of a young man's life struggles to find his way through the trials and tribulations of family turmoil, self-determination, and personal judgment. This transformational life experience, like so many, demonstrates the triumph of the human spirit over the pitfalls in our modern world. From a divorce wrecked family life through the upheavals of a shattered home brought on by a disease-ridden single mom, Thomas Ufert is blessed with the first of many second chances granted to him by his Godmother and her family.

See how, throughout her life, she became a believer, and even with Kerry and Kaylynn's love and support, she had to find the strength elsewhere to get up each and every day to be the best mom she could be for Austin. Listen to how still, to this day, she struggles with negative emotions and guilt and needs to be reminded often that God is in control, and he will never forsake her, even when she feels she is alone.

As a boy, severely disabled after contracting polio as a baby in working class Liverpool, Bert Massie found himself wondering why disabled people were expected to adapt to the world around them, and not the other way round. In his teens, he began to campaign for rights for disabled people, and having battled his way through prejudice and the education system to become a Bachelor of Arts and a qualified social worker, he became a prominent figure in the fight for fair treatment for disabled people leading to the ground breaking Disability Discrimination Act.