Disability Memoir

One in five people in the United States lives with a disability. Some disabilities are visible, others less apparent - but all are underrepresented in media and popular culture. Now, just in time for the 30th anniversary of the Americans with Disabilities Act, activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people.

A story of fighting to belong in a world that wasn't built for all of us and of one woman's activism - from the streets of Brooklyn and San Francisco to inside the halls of Washington - Being Heumann recounts Judy Heumann's lifelong battle to achieve respect, acceptance, and inclusion in society. From fighting to attend grade school after being described as a "fire hazard" to later winning a lawsuit against the New York City school system for denying her a teacher's license because of her paralysis, Judy's actions set a precedent that improved rights for disabled people.

Close your eyes and get ready to see the world in a new and more positive way. As a child in Toronto, Molly Burke was diagnosed with retinitis pigmentosa and became completely sightless as a teenager. Now an award-winning YouTube star and global influencer, Molly shares what it’s like to be a purple-haired, pink-obsessed fashion and makeup lover in a seeing world. She speaks with authenticity and candor about how she tackles the preconceived notions we have around blindness; Molly has made it her mission to make us see her - and ourselves- in a wholly empowering way.  

The entire world knows Michael J. Fox as Marty McFly, the teenage sidekick of Doc Brown in Back to the Future; as Alex P. Keaton in Family Ties; as Mike Flaherty in Spin City; and through numerous other movie roles and guest appearances on shows such as The Good Wife and Curb Your Enthusiasm. Diagnosed at age 29, Michael is equally engaged in Parkinson’s advocacy work, raising global awareness of the disease and helping find a cure through The Michael J. Fox Foundation for Parkinson's Research, the world's leading nonprofit funder of PD science.

It never gets better, but it does get easier. That’s the first thing Roz says to anyone who asks him for advice. Anyone who’s fighting like hell, just hanging on or putting the pieces back together. When you’re broken, fixed becomes an obsession.

With his signature acerbic wit and hilarious voice, 20-something author, blogger, and entrepreneur Shane Burcaw is back with an essay collection about living a full life in a body that many people perceive as a tragedy. From anecdotes about first introductions where people patted him on the head instead of shaking his hand, to stories of passersby mistaking his able-bodied girlfriend for a nurse, Shane tackles awkward situations and assumptions with humor and grace.

John Cotter was thirty years old when he first began to notice a ringing in his ears. Soon the ringing became a roar inside his head. Next came partial deafness, then dizziness and vertigo that rendered him unable to walk, work, sleep, or even communicate. At a stage of life when he expected to be emerging fully into adulthood, teaching, and writing books, he found himself “crippled and dependent” and in search of care.

We meet Andrew Leland as he’s suspended in the liminal state of the soon-to-be blind: he’s midway through his life with retinitis pigmentosa, a condition that ushers those who live with it from sightedness to blindness over years, even decades. He grew up with full vision, but starting in his teenage years, his sight began to degrade from the outside in, such that he now sees the world as if through a narrow tube. Soon—but without knowing exactly when—he will likely have no vision left.

In 1972, at the age of 21, John Callahan was involved in a car crash that severed his spine and made him a quadriplegic. A heavy drinker since the age of 12, the accident could have been the beginning of a downward spiral. Instead, it sparked a personal transformation. After extensive physical therapy, he was eventually able to grasp a pen in his right hand and make rudimentary drawings. By 1978, Callahan had sworn off drinking for good and begun to draw cartoons. Over the next three decades, Callahan would become one of the nation's most beloved cartoonists.

Former high school teacher and New York-based comedian Mimi Hayes is a brain injury survivor. She wrote her first humorous memoir while recovering from a traumatic head injury at the age of 22. Her honest take on trauma and love followed her to the stage as a stand-up comedian, where she has performed on stages such as Denver Comedy Works, Broadway Comedy Club, Stand Up NY, Dangerfield's, and The Upright Citizen's Brigade.

Rosemary Mahoney tells the story of Braille Without Borders, the first school for the blind in Tibet, and of Sabriye Tenberken, the remarkable blind woman who founded the school. Fascinated and impressed by what she learned from the blind children of Tibet, Mahoney was moved to investigate further the cultural history of blindness. As part of her research, she spent three months teaching at Tenberken's international training center for blind adults in Kerala, India, an experience that reveals both the shocking oppression endured by the world's blind, as well as their great resilience.

The incredible life story of Haben Girma, the first Deafblind graduate of Harvard Law School, and her amazing journey from isolation to the world stage. Haben defines disability as an opportunity for innovation. She learned non-visual techniques for everything from dancing salsa to handling an electric saw. She developed a text-to-braille communication system that created an exciting new way to connect with people.

This intimate memoir reveals the woman inside one of autism’s most prominent figures, Jennifer O'Toole. At the age of 35, Jennifer was diagnosed with Asperger's syndrome, and for the first time in her life, things made sense. Now, she exposes the constant struggle between carefully crafted persona and authentic existence, editing the autism script with wit, candor, passion, and power. Her journey is one of reverse-self-discovery not only as an Aspie but - more importantly - as a thoroughly modern woman.

The first story Selma Blair Beitner ever heard about herself is that she was a mean, mean baby. With her mouth pulled in a perpetual snarl and a head so furry it had to be rubbed to make way for her forehead, Selma spent years living up to her terrible reputation: biting her sisters, lying spontaneously, getting drunk from Passover wine at the age of seven, and behaving dramatically so that she would be the center of attention. In a memoir that is as wildly funny as it is emotionally shattering, Blair tells the captivating story of growing up and finding her truth.

Diagnosed with pathological demand avoidance (PDA) in his teenage years, Harry Thompson looks back with wit and humour at the ups and downs of family and romantic relationships, school, work and mental health, as well as his teenage struggle with drugs and alcohol. By embracing neurodiversity and emphasising that autistic people are not flawed human beings, Thompson demonstrates that some merely need to take the 'scenic route' in order to flourish and reach their full potential.

Despite being a winner of the Pulitzer Prize for Poetry in 2008, Philip Schultz could never shake the feeling of being exiled to the “dummy class” in school, where he was largely ignored by his teachers and peers and not expected to succeed. Not until many years later, when his oldest son was diagnosed with dyslexia, did Schultz realize that he suffered from the same condition.

Temple Grandin, Ph.D., is a gifted animal scientist who has designed one third of all the livestock-handling facilities in the United States. She also lectures widely on autism - because Temple Grandin is autistic, a woman who thinks, feels, and experiences the world in ways that are incomprehensible to the rest of us.

From the Periphery consists of more than 30 first-person narratives of everyday people who describe what it's like to be treated differently by society because of their disabilities. The stories are raw and painful, but also surprisingly funny and deeply inspiring. The oral histories describe anger, independence, bigotry, solidarity, and love - in the family, at school, and at the workplace. From the Periphery will become a classic collection that increases understanding of the lived experiences of people with disabilities.

Hiroshima was one of the great tragedies of WWII. But out of the devastation of the first atomic bomb, some survivors emerged, 25 courageous Japanese women who became part of a remarkable humanitarian epic. Victims of the atomic blast that ushered in the Nuclear Age, these women were brought to the United States in 1955, where they underwent reconstructive surgery to repair the ravages of the bomb. Schoolgirls when the bomb destroyed their futures, they began to remake their lives and re-create themselves. This is the compassionate, often bittersweet chronicle of the Hiroshima Maidens.

“At the beginning I was only a little mass of possibilities. It was my teacher who unfolded and developed them.” The Story of My Life, Helen Keller’s autobiography, is the story of that unfolding. It is the story of how, with Anne Sullivan as her guide, Keller developed from “a mass of possibilities” to become one of the most beloved and admired women in American history. With intelligence, humor and wisdom, Keller describes her passage, “from darkness into light, from isolation to friendship, companionship, knowledge, love.”